Disability Advice and Welfare Network (DAWN)

Disability Advice and Welfare Network (DAWN)
Name
Disability Advice and Welfare Network (DAWN)
Category
, ,
Condition(s)
, , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , ,
Short Description
Specialising in benefits claims and appeals for clients who are of Neurodiverse development, and will support anyone with any condition.
Website Address
https://dawnsupport.co.uk/
Town
Colchester
County
Essex
Address
CO7 7UG
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Submitted by DAWN. 19/8/24

Last Updated
20/08/2024
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Disability Rights UK (formerly RADAR)

Name
Disability Rights UK (formerly RADAR)
Category
Exclude All
Yes
Short Description
The UK’s leading organisation led by, run by, and working for disabled people.
Telephone Number
0330 995 0400
Website Address
https://www.disabilityrightsuk.org/
Town
Stratford
Address
E20 3BS
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Updated as per website, name change, website, email and wording by KC on 9.9.13Refresh Project- email 1 sent 5.11.13 to disability alliance, disability rights UK responded on 5.11.13 ( Mary [email protected] ) to say disability alliance and NCIL have merged to disability Rights UK- info added to this entry about the handbook- KC updated 6.11.13Updated address using info from website - RC 21/07/2016

Last Contacted
11/06/2013
Last Updated
24/09/2021
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Disabled Children’s Partnership

Name
Disabled Children’s Partnership
Category
Exclude All
Yes
Short Description
A coalition of organisations campaigning for improved health and social care for disabled children, young people and their families.
Website Address
https://disabledchildrenspartnership.org.uk/
Town
Hampton
Address
PE7 8HP
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Entry created from website only. 2.2.18 AP

Last Updated
11/04/2023
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Disabled Motoring UK

Name
Disabled Motoring UK
Category
,
Exclude All
Yes
Short Description
The campaigning charity for disabled drivers, passengers and blue badge holders
Telephone Number
01508 489449
Website Address
https://www.disabledmotoring.org/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to web site, and email - consent via telephone from Sarah. updated online 11/2/10. Refresh Project- email 1 sent 26.9.13- bounceback, phoned- received updated email, email 2 sent, email updates- 3/10/13 KCPhone call 25.4.14 (AT) - name of organisation changed and website updated LMFax removed and entry amended following research by JH 16.6.14 LM

Last Contacted
30/04/2014
Last Updated
24/09/2021
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Down’s Syndrome Association

Name
Down’s Syndrome Association
Category
Condition(s)
Exclude All
No
Short Description
Supporting people with Down's syndrome throughout their lives.
Telephone Number
0333 1212 300
Website Address
https://www.downs-syndrome.org.uk/
Address
TW11 9PS
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project- email 1 sent 10.9.13, email response received on 11.9.13 from Vanda Ridley with new telephone number- KC updated 11.11.13

Last Contacted
11/11/2013
Last Updated
10/12/2021
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Down’s Syndrome Research Foundation

Name
Down’s Syndrome Research Foundation
Category
Condition(s)
Exclude All
No
Short Description
The only UK charity solely dedicated to medical research to help everyone with Trisomy 21 (Down's syndrome).
Telephone Number
01892 711121
Website Address
http://www.dsrf-uk.org/
Town
Tunbridge Wells
Address
TN2 9WJ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

slight change to description, change of website - consent via phone from Director, updated online 20/01/10 - EGRefresh Project - Email 1 sent 10.9.13 (BB), email 2 sent 28.11.13. Telephone number inactive. Info checked on website - address and email changed, telephone number removed, name changed from 'Down's' to 'Down' LM

Last Contacted
22/05/2014
Last Updated
10/12/2021
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Down Syndrome Education Online

Name
Down Syndrome Education Online
Category
Condition(s)
Exclude All
No
Short Description
Working to improve early intervention and education for children with Down syndrome around the world.
Telephone Number
0300 330 0735
Website Address
https://www.down-syndrome.org/en-gb/
County
Cumbria
Address
LA6 2DY
Age Relevance
0+, 4+, 7+, 11+, 16+
Last Updated
10/12/2021
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Down Syndrome Medical Interest Group

Name
Down Syndrome Medical Interest Group
Category
Condition(s)
Exclude All
No
Short Description
DSMIG is a network of healthcare professionals whose aim is to promote best practice in healthcare of people with Down syndrome by sharing information.
Telephone Number
0333 1212 300
Website Address
https://www.dsmig.org.uk/
Town
Teddington
County
Middlesex
Address
TW11 9PS
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project - online resource added as recommended by Dr Jayakumar LMadded email, phone number and address using info from website - RC 17/8/16

Last Contacted
13/05/2014
Last Updated
10/12/2021
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Down Syndrome UK (DSUK)

Name
Down Syndrome UK (DSUK)
Category
Condition(s)
Short Description
A national charity passionate about empowering parents and professionals to improve the lives of those with Down syndrome and their families in the UK.
Telephone Number
0330 111 2121
Website Address
https://downsyndromeuk.co.uk/
Age Relevance
0+, 4+, 7+, 11+, 16+
Last Updated
07/04/2026
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Dyslexia Assessment and Consultancy

Name
Dyslexia Assessment and Consultancy
Category
Condition(s)
Exclude All
No
Short Description
A team of dyslexia and dyspraxia experts specialising in assessment, training and employment consultancy.
Age Relevance
4+, 7+, 11+, 16+
Contact History

Information taken from website so no consent sought. PK 17/05/2016added phone number using info from website - RC 17/8/16. removed all info - ceased trading 31/08/2023 AC 2/10/23

Last Contacted
17/05/2016
Last Updated
02/10/2023
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Dyslexia Research Trust

Name
Dyslexia Research Trust
Category
Condition(s)
Exclude All
No
Short Description
Helping people with reading difficulties to reach their full potential.
Telephone Number
0118 958 5950
Website Address
http://www.dyslexic.org.uk/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

changed fax number, updated address and description, added contact name: consent via phone from Clarice - updated online 20/1/10 - EGRefresh project- email 1 sent 10.9.13, email response received on 10.9.13 from Clarice Davies confirming all details correct - kc updated 18.11.13 updated contact name as different contact used on website - RC 17/8/16. facebook added Ac 2/10/23

Last Contacted
18/11/2013
Last Updated
02/10/2023
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Dyslexia Scotland

Name
Dyslexia Scotland
Category
Condition(s)
Exclude All
No
Short Description
Dyslexia Scotland aims to inspire and enable dyslexic people, regardless of age and abilities, to reach their potential in education, employment and life.
Telephone Number
0344 800 84 84
Website Address
http://www.dyslexiascotland.org.uk/
Address
FK8 1QZ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

updated from weblink to directory entry -RC 8/9/16

Last Updated
10/12/2021
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Early Years Alliance

Name
Early Years Alliance
Category
,
Exclude All
Yes
Short Description
The Early Years Alliance is a national educational charity that promotes quality care and education for all pre-school children through its member groups.
Telephone Number
0207 697 2500
Website Address
https://www.eyalliance.org.uk/
County
London
Address
EC1Y 8RT
Age Relevance
0+, 4+
Contact History

updated address and tel and fax - consent via email from Jan Webber - 26/11/09Refresh Project - Details checked on website 28.4.14. All information correct LMChanges made -as LB contacted and found out that Funding has now been withdrawn in Essex, updated details to include the most local east divsion - KC  18.2.15. Changed name from Pre-school Learning Alliance and contacts 1/12/20 AP. Linkedin added AC 2/10/23

Last Contacted
18/02/2015
Last Updated
02/10/2023
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Easy Health

Name
Easy Health
Category
, ,
Condition(s)
Exclude All
No
Short Description
Easy Health is a website for people with learning disabilities where you can find health information with easy-to-understand words, pictures and films.
Website Address
http://www.easyhealth.org.uk/
Town
Tooting
Address
SW17 0BQ
Age Relevance
16+
Contact History

updated from weblink to directory entry - RC 7/9/16. phone removed AC 2/10/23

Last Updated
02/10/2023
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Ehlers-Danlos Support UK

Name
Ehlers-Danlos Support UK
Category
Condition(s)
Exclude All
No
Short Description
EDS UK is the only UK charity to offer support to people touched by all types of Ehlers-Danlos syndrome.
Telephone Number
0800 907 8518
Website Address
https://www.ehlers-danlos.org/
Address
WD6 1QQ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Consent via email from Libby - nothing to change - 14/4/10 - EGRefresh Project - email 1 sent 19.9.13 (BB), email 2 sent 17.1.14 (LM). No response.Phone call 30.4.14 (AT) - left message.Updated information from website 17.6.14. Changed address, telephone number. Removed contact name and email, and added helpline. Changed 'Group' to 'UK' in title LMadded email address using info from website - RC 24/08/2016

Last Contacted
04/10/2014
Last Updated
10/12/2021
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Epilepsy Action

Name
Epilepsy Action
Category
Condition(s)
Exclude All
No
Short Description
The UK's leading member-led epilepsy charity. Providing information and support for anyone affected by epilepsy
Telephone Number
0808 800 5050
Website Address
https://www.epilepsy.org.uk/
Address
LS19 7XY
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Barbara Hoare deleted as contact as requested by email 17.3.09 Sue Furley 18.3.09Refresh Project - Email 1 sent 19.9.13 (BB), email 2 sent 17.1.14. Response received 23.4.14 from Louise Cousins. East Herts & West Essex brand details removed and Tendring branch contact name and telephone number changed LM. phone, email updated, address added AC 2/10/23. Barbara Hoare contacted us to add helpline number and added local information. 6/2/26 AP

Last Contacted
23/04/2014
Last Updated
06/02/2026
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Epilepsy Society

Name
Epilepsy Society
Category
Condition(s)
Exclude All
No
Short Description
The UK’s only charity transforming the lives of people with epilepsy through world-leading research, advocacy and care.
Telephone Number
01494 601400
Website Address
https://www.epilepsysociety.org.uk/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to website - consent via phone - researched by Sarah - 23/3/10 - EGRefresh Project - Phone call made 30.4.14 (AT) - name changed from NSE to Epilepsy Society and helpline times changed LM. Changed from website AP 24/6/22

Last Contacted
05/12/2014
Last Updated
24/06/2022
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Equality Advisory Support Service – EASS (formerly Equality and Human Rights Commission)

Name
Equality Advisory Support Service – EASS (formerly Equality and Human Rights Commission)
Category
Exclude All
Yes
Short Description
Helpline advising and assisting individuals on issues relating to equality and human rights, across England, Scotland and Wales.
Telephone Number
0808 800 0082
Website Address
http://www.equalityadvisoryservice.com/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to description - updated online again 15/2/10 - EGRefresh project- BB phoned 10.12.13, Web address changed  and number and name of service from Equality and human rights commission (formerley the DRC) to The Equality Advisory Support Service (EASS) and description changed to be updated, tel also updated - KC updated 10.12.13 Updated website using info from internet & updated phone number and address using info from website - RC 21/07/2016

Last Contacted
12/10/2013
Last Updated
26/07/2022
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Erb’s Palsy Group

Name
Erb’s Palsy Group
Category
Condition(s)
Exclude All
No
Short Description
Offering advice and information to parents, professionals and children in the UK, affected by the injury Erb's palsy.
Telephone Number
02476 413293
Website Address
http://www.erbspalsygroup.co.uk/
Address
CV3 6JJ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Consent given 12/5/2010 - AR spoke to Karen HillyerRefresh Project- email 1 sent 19.9,13, email response received on 19.9.13 from Karen Hillyer stating all details correct- KC updated 30.9.13. email updated AC 2/10/23

Last Contacted
30/10/2013
Last Updated
02/10/2023
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ERIC (Education and Resources for Improving Childhood Continence)

Name
ERIC (Education and Resources for Improving Childhood Continence)
Category
Condition(s)
Exclude All
No
Short Description
The children's bowel and bladder charity.
Telephone Number
0808 801 0343
Website Address
https://www.eric.org.uk/
Address
BS15 8DB
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

changed description, change of address, added contact name, consent via email from Eileen, updated online 14/12/09 - EGRefresh project- email 1 sent 19.9.13, email response received on 19.9.13 from Alina Lynden, asked to changed contact name and changes to helpline hours- KC updated 28.10.13. removed email AC 2/10/23. Updated helpline number 21/11/23 AP

Last Contacted
28/10/2013
Last Updated
21/11/2023
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