Children’s Heart Federation

Name
Children’s Heart Federation
Category
Condition(s)
Exclude All
No
Short Description
Children's Heart Federation offers support and information to families affected by heart conditions.
Telephone Number
0300 561 0065
Website Address
http://www.chfed.org.uk/
Town
Braintree
County
Essex
Address
CM7 3RU
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to email and web, and description - updated online 31/3/10 - EGRefresh Project - Email 1 sent 19.9.13 (BB), email 2 sent 16.1.14. Phone call made 29.4.14 (AT) - notified that contact name will change from July and new address LMadded new address using info from website - RC 26/8/16. updated instagram AC 27/9/23

Last Contacted
22/05/2014
Last Updated
27/09/2023
Flag Listing

Children’s Liver Disease Foundation (CLDF)

Name
Children’s Liver Disease Foundation (CLDF)
Category
Condition(s)
Exclude All
No
Short Description
The only UK charity dedicated to fighting all childhood liver diseases.
Telephone Number
0121 212 3839
Website Address
https://childliverdisease.org/
Address
B3 3JY
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Consent given 12/05/2010 - AR Updated email and description via email from Lisa at CLDF on 21/9/12 - APRefresh Project- email 1 sent 19.9.13, email response recived on 19.9.13 from Sarah Harrold confirming all details correct- KC updated 28.10.13. Refresh 27/8/21 AP. Email and phone number updated AC 27/9/23

Last Contacted
28/10/2013
Last Updated
27/09/2023
Flag Listing

Choice Forum (incorporating The PMLD Network)

Name
Choice Forum (incorporating The PMLD Network)
Category
Condition(s)
,
Exclude All
No
Short Description
To discuss issues affecting the lives of people with learning disabilities in the UK.
Telephone Number
01865 600034
Website Address
https://www.choiceforum.org/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Info taken from website PH 20/7/16 . Refresh 27/8/21 AP

Last Contacted
20/07/2016
Last Updated
27/08/2021
Flag Listing

Choice Support

Name
Choice Support
Category
,
Condition(s)
,
Exclude All
No
Short Description
Choice Support is a social care charity working across much of England to provide the best possible support to people with learning disabilities, autism and mental health needs.
Telephone Number
01622 722400
Website Address
https://www.choicesupport.org.uk/
County
Kent
Address
ME14 1UT
Age Relevance
16+
Contact History

Created from website to replace original entry of Autism London. 7/11/17 AP. Changed name from Partnership Support Group to Choice Support 18.9.20. AP. Refresh 27/8/21 AP. instagram, linkedin added 27/9/23

Last Updated
27/09/2023
Flag Listing

CLAPA (Cleft Lip & Palate Association)

Name
CLAPA (Cleft Lip & Palate Association)
Category
Condition(s)
Exclude All
No
Short Description
Working to support, connect and empower everyone affected by cleft in the United Kingdom
Telephone Number
020 7833 4883
Website Address
https://www.clapa.com/
Address
E2 9DA
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project - Phone call made 29.4.14 (AT) - advised to use the statement on their homepage for entry description (under What does CLAPA do?) LM. Refresh 27/8/21 AP

Last Contacted
05/12/2014
Last Updated
27/08/2021
Flag Listing

Coeliac UK

Name
Coeliac UK
Category
Condition(s)
Exclude All
No
Short Description
Coeliac UK is an independent registered charity for people who need to live without gluten.
Telephone Number
0333 332 2033
Website Address
https://www.coeliac.org.uk/home/
County
Bucks
Address
HP11 2QW
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to helpline number - consent via post - from Jean, 5/3/10 - EGRefresh Project - no email addresses. Checked information on website - address changed but all other info correct 12.6.14 LMupdated email and phone number using info from website - RC 17/8/16

Last Contacted
06/12/2014
Last Updated
03/09/2021
Flag Listing

Communication Matters

Name
Communication Matters
Category
Condition(s)
Exclude All
No
Short Description
A UK-wide organisation that supports people of all ages who find it hard to communicate because they have little or no clear speech.
Telephone Number
0113 343 1533
Website Address
https://www.communicationmatters.org.uk/
Address
LS2 9JT
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

no change - confirmed and consent via phone from Jerry - 22/3/10 - EGRefresh Project 2013 - Email 1 sent 24.9.13 (BB), email 2 sent 9.1.14. Phone call made 1.4.14 - address changed and 'AAC' added to description LMupdated address using info from website -RC 31/8/16

Last Contacted
04/03/2014
Last Updated
24/09/2021
Flag Listing

Confident Children

Name
Confident Children
Category
,
Condition(s)
Exclude All
Yes
Short Description
Working to help children worldwide to overcome selective mutism, free themselves of anxiety, find their voice and to shine.
Website Address
https://www.confidentchildren.co.uk/
Age Relevance
0+, 4+, 7+
Contact History

Recommended by a Brentwood SNAP family. Added from website 6/11/2020 AP

Last Updated
06/11/2020
Flag Listing

Contact

Name
Contact
Category
Exclude All
Yes
Short Description
A national charity that provides support and information to families who care for children with any disability or specific health condition.
Telephone Number
0808 808 3555
Website Address
https://contact.org.uk/
Address
N1 7EU
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

changed contact numbers - consent via email - updated 14/12/09 - EGRefresh project- email 1 sent 10.9.13, email response received from Debbie on 11.9.13 confirming all details correct- KC updated 14.11.13Changed name from Contact a Family to Contact - BB updated 12.09.17Changed website and email addresses - AP 3/10/17. address updated, instagram added AC 2/10/23

Last Contacted
14/11/2013
Last Updated
02/10/2023
Flag Listing

Coram Family and Childcare

Name
Coram Family and Childcare
Category
,
Exclude All
Yes
Short Description
Working in partnership with local authorities and other organisations to ensure parents know about their entitlement to free childcare.
Telephone Number
020 7239 7535
Website Address
https://www.familyandchildcaretrust.org/
Address
WC1N 1AZ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project 2013 - entry added 6.3.14. Consent given by Angela Miller LMcorrected mistake in description - RC 15/8/17. Changes made 10/11/20 AP

Last Contacted
03/06/2014
Last Updated
26/07/2022
Flag Listing

CRESTED (Council for the Registration of Schools Teaching Dyslexic Pupils)

Name
CRESTED (Council for the Registration of Schools Teaching Dyslexic Pupils)
Category
Condition(s)
Exclude All
No
Short Description
A register to help parents and those who advise them, to choose schools for dyslexic (SpLD) pupils.
Website Address
http://www.crested.org.uk/
County
Surrey
Address
GU9 7DR
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

slightly amended description - consent via email, 27/11/09 Updated contact details, telephone, fax and address - consent via email from Lesley - updated 8/12/11 - EGRefresh Project-email 1 sent 10.9.13, email response received on 10.9.13 from lesley Farrar stating all details correct- KC updated 18.11.13. address added AC 2/10/23

Last Contacted
18/11/2013
Last Updated
02/10/2023
Flag Listing

Crohn’s and Colitis UK (formerly NACC)

Name
Crohn’s and Colitis UK (formerly NACC)
Category
Condition(s)
Exclude All
No
Short Description
The UK's leading charity for Crohn's and Colitis helps to inform anyone affected, including friends, family, medical professionals and even employers.
Telephone Number
0300 222 5700
Website Address
https://www.crohnsandcolitis.org.uk/
Address
AL1 3AW
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

changed description - consent via email from Andrea John. updated online 15/12/09 - EGRefresh Project 2013 - email 1 sent 20.9.13 BB, no response so email 2 sent 17.1.14Response received on 3.2.14 from Lesley Eames. Name of organisation changed and changes to text, email and web address 10.2.14 LMupdated phone numbers and address using info from website - RC 24/8/16. email updated AC 2/10/23

Last Contacted
02/03/2014
Last Updated
02/10/2023
Flag Listing

Cystic Fibrosis Trust

Name
Cystic Fibrosis Trust
Category
Condition(s)
Exclude All
No
Short Description
Supporting people with Cystic Fibrosis and their families and also funds cutting-edge research.
Telephone Number
0300 373 1000
Website Address
https://www.cysticfibrosis.org.uk/
Town
Second Floor
Address
EC3N 1RE
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Consent given 12/5/2010 - ARRefresh Project - Phone call 30.4.14 (AT). Website and email address changed LMupdated address and phone numbers - RC 17/8/16

Last Contacted
05/12/2014
Last Updated
24/09/2021
Flag Listing

Deafblind UK

Name
Deafblind UK
Category
Condition(s)
, ,
Exclude All
No
Short Description
Deafblind UK is a national charity supporting people with sight and hearing loss to live the lives they want.
Telephone Number
0800 132320
Website Address
https://deafblind.org.uk/
County
Cambridgeshire
Address
PE4 7UP
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project- email 1 sent 17.9.13, Email 2 sent 6.12.13Phone call made 24.3.14 (CM) - all details correct LM. Email from Jayne Higgins updating entry 3/6/2021. phone number, instagram updated AC 2/10/23

Last Contacted
27/03/2014
Last Updated
02/10/2023
Flag Listing

DeafPLUS

Name
DeafPLUS
Category
Condition(s)
,
Exclude All
No
Short Description
Improving awareness of deaf and visually impaired people's needs.
Telephone Number
020 7790 8478
Website Address
http://www.deafplus.org/
Address
E1 4HG
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to text phone, fax and email. consent via telephone - updated online 1/3/10 - EGRefresh Project- email 1 sent 17.9.13 to london.operations-bounceback, email 2 sent 7.11.13 to [email protected] updated email Phone call 25.4.14 (AT), no response, but all information correct from website LM

Last Contacted
14/05/2014
Last Updated
24/09/2021
Flag Listing

DELTA (Deaf Education through Listening and Talking)

Name
DELTA (Deaf Education through Listening and Talking)
Category
Condition(s)
Exclude All
No
Short Description
A charity that supports families with deaf babies, children, young people and the practitioners in Health and Education that work with them.
Telephone Number
0300 365 7200
Website Address
https://deafeducation.org.uk/
Town
Merstham
Address
RH1 3EB
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to address, removed fax 1/4/10 - EGRefresh Project- email 1 sent 17.9.13, email response received on 17.9.13 from Frances Piggott with updated address details - KC updated 7.11.13updated address using info from website - RC 26/8/16. address added AC 2/10/23

Last Contacted
11/07/2013
Last Updated
02/10/2023
Flag Listing

Diabetes UK

Name
Diabetes UK
Category
Condition(s)
Exclude All
No
Short Description
The leading charity working for people with diabetes, funding research, campaigning and helping people live with the condition.
Telephone Number
0345 123 2399
Website Address
https://www.diabetes.org.uk/
Address
E1 1FH
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

CHANGE TO TELEPHONE NUMBER - CONSENT VIA PHONE FROM LORNA - 5/3/10 - EGRefresh Project - Phone call made 30.4.14 (AT). Telephone, email and careline time changed LMupdated email address and phone number - RC 17/8/16

Last Contacted
03/10/2005
Last Updated
24/09/2021
Flag Listing

Different Strokes

Name
Different Strokes
Category
Condition(s)
Exclude All
No
Short Description
A stroke charity run by younger stroke survivors for younger stroke survivors.
Telephone Number
0345 130 7172
Website Address
https://differentstrokes.co.uk/
County
Milton Keynes
Address
MK12 5NF
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project- email 1 sent 19.9.13, telephone reponse received from Andy on 25.9.13- details confirmed correct- KC updated spreadsheet - 25.9.13updated address, phone number and email using info from website -RC 31/8/16

Last Contacted
03/10/2030
Last Updated
24/09/2021
Flag Listing

Dimensions

Name
Dimensions
Category
,
Condition(s)
,
Exclude All
No
Short Description
Dimensions provides services for people with learning disabilities and people with autism.
Telephone Number
0300 303 9001
Website Address
https://dimensions-uk.org/
Town
Reading
Address
RG7 4SA
Age Relevance
16+
Contact History

gained consent via email from Sarah Walters ([email protected]) on 18.9.13 - KC added on 6.11.13Changed Autismfilms telephone and added as website 2. 2/6/15 AP

Last Contacted
11/06/2013
Last Updated
24/09/2021
Flag Listing

Disability, Pregnancy & Parenthood

Name
Disability, Pregnancy & Parenthood
Category
Exclude All
Yes
Short Description
Practical information and peer support for disabled parents.
Website Address
https://www.disabledparent.org.uk/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to description - consent via email from Gill. 3/3/10 - EGRefresh Project- email 1 sent 19.9.13, email response received 19.9.13 from Gill with updated description and name and address- KC updated 30.10.13 Updated website and address using info from website - RC 21/07/2016. twitter removed AC 2/10/23

Last Contacted
30/10/2013
Last Updated
02/10/2023
Flag Listing
← Previous Next →