Beat Eating Disorders

Name
Beat Eating Disorders
Category
Condition(s)
Exclude All
No
Short Description
Beat is the UK's eating disorder charity.
Telephone Number
0808 801 0677
Website Address
https://www.beateatingdisorders.org.uk/
County
Norfolk
Address
NR1 1SZ
Age Relevance
4+, 7+, 11+, 16+
Contact History

change of name, address, added youthline, change of email, web and description. consent via email from Sue - updated online 15/12/09 - EGRefresh project- email 1 sent 19.9.13, email response received 20.9.13 from leanne stating opening hours are incorrect, direct to website for opening hours- Updates made 25.10.13 updated email address and phone numbers using info from website - RC 24/08/2016

Last Contacted
25/10/2013
Last Updated
23/07/2021
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bibic

Name
bibic
Category
Exclude All
No
Short Description
Supporting individuals with developmental and neurological disabilities and difficulties.
Telephone Number
01458 253344
Website Address
http://bibic.org.uk/
County
Somerset
Address
TA10 9SJ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project - Phone call 29.4.14 (AT). New telephone number and address LM. facebook updated AC 13/9/23. Updated name and description - email from Natalie Jerman 28/11/25. AP

Last Contacted
05/09/2014
Last Updated
28/11/2025
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BILD (The British Institute of Learning Disabilities)

Name
BILD (The British Institute of Learning Disabilities)
Category
Exclude All
Yes
Short Description
Bild is committed to improving the quality of life of people with learning disabilities by advancing education, research and practice and by promoting better ways of working with and for children and adults with learning disabilities.
Telephone Number
0121 415 6960
Website Address
http://www.bild.org.uk/
County
Birmingham
Address
B15 2SQ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh project- email 1 sent 18.9.13, email response received from Peter Salisbury with new adress tel and fax - KC updated 31.10.13

Last Contacted
31/10/2013
Last Updated
23/07/2021
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Bladder & Bowel Community

Name
Bladder & Bowel Community
Category
Condition(s)
Exclude All
No
Short Description
Bladder & Bowel Community provides the largest support network for people, patients, carers, healthcare professionals and families, empowering those affected by bladder or bowel conditions.
Website Address
https://www.bladderandbowel.org/
Town
Henley-in-Arden
Address
B95 5AA
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Changed from Bladder & Bowel Foundation to Bladder and Bowel Commuinty on 03/01/19 following email from Dean Ronnie [email protected] - also updated contact details and address

change from incontact. consent via website and phone - 29*/3/10 - EGRefresh Project- email 1 sent 19.9.13, email response received on 20.9.13 from Diane Jeffs stating all details are correct- Kc updated 25.10.13. Updated address 11.10.19 AP

Last Contacted
01/10/2019
Last Updated
23/07/2021
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Braille Chess Association (BCA)

Name
Braille Chess Association (BCA)
Category
,
Condition(s)
Exclude All
No
Short Description
Enabling blind and partially sighted people to enjoy the game of chess.
Telephone Number
01164 296554
Website Address
http://www.braillechess.org.uk/
Town
Aylestone
Address
LE2 8LH
Age Relevance
16+
Contact History

refresh Project- email 1 sent 17.9.13, email response received on 19.9.13 from Norman Wragg  stating he is now Chairman instead of Hon Secretary KC updated 25.10.13updated email address using info from website -RC 31/8/16. phone number updated 13/9/2023

Last Contacted
25/10/2013
Last Updated
13/09/2023
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Brain & Spine Foundation

Name
Brain & Spine Foundation
Category
Condition(s)
Exclude All
No
Short Description
The only UK wide charity providing information and support on the full range of neurological conditions.
Telephone Number
0808 808 1000
Website Address
https://www.brainandspine.org.uk/
Address
SE1 4YR
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Change to address - consent via telephone - 19/3/10 - EGRefresh Project - email 1 sent 19.9.13 (BB), email 2 sent 16.1.14 (LM). No response.Phone message left 29.4.14 (AT). Spoke to Ronnie 12.6.14 - confirmed all details still correct apart from helpline times - amended LMupdated email and address using info from website - RC 8/8/16

Last Contacted
06/12/2014
Last Updated
30/07/2021
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Brainkind

Name
Brainkind
Category
,
Exclude All
Yes
Short Description
Brainkind (formerly The Disabilities Trust & BIRT) is the UK’s leading charity helping people thrive after a brain injury.
Telephone Number
01444 239123
Website Address
https://brainkind.org
County
West Sussex
Address
RH15 9NP
Age Relevance
16+
Contact History

Changed phone no from 01444 237281. This is External Affairs no. Not a problem for hardcopy but should be main switchboard number. 12.4.07. Changed email address - 12/5/10 - EG Changed website - 18/5/10 ARRefresh project- email 1 sent 19.9.13, email response received on 19.9.13 from Jane Pakenham with no attachment for changes Phone call made - 28.3.14 (CM) - all details correct LM
Amy Hawkins contacted they have completely rebranded from The Disabilities Trust to Brainkind - updated all contact details bar address and gave new overview .

Last Contacted
16/10/2023
Last Updated
16/10/2023
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Bristol Dyslexia Centre

Name
Bristol Dyslexia Centre
Category
Condition(s)
Exclude All
No
Short Description
An independent teaching and assessment centre for all ages
Telephone Number
0117 973 9405
Website Address
http://www.dyslexiacentre.co.uk/
Address
BS8 2XH
Age Relevance
4+, 7+, 11+, 16+
Contact History

update to description - consent via email, from cate - 24/11/09 specific update to grammar - 26/11/09 EGRefresh Project- email 1 sent 10.9.13, email response received on 10.9.13 from Cate Hewitt stating address number change- KC updated 18.11.13

Last Contacted
18/11/2013
Last Updated
30/07/2021
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Brittle Bone Society

Name
Brittle Bone Society
Category
Condition(s)
Exclude All
No
Short Description
Supporting people affected by Osteogenesis Imperfecta throughout the UK and Ireland.
Telephone Number
01382 204446
Website Address
http://brittlebone.org/
Address
DD1 5BS
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

slight change to description - consent via phone from Karen - updated 9/3/10 - EGRefresh Project - Phone call 28.3.14 (CM) - helpline number removed LM. email updated AC 27/9/23

Last Contacted
04/08/2014
Last Updated
27/09/2023
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Bullying UK

Name
Bullying UK
Category
Exclude All
Yes
Short Description
Bullying UK is part of the charity Family Lives and is based online. It gives guidance, support and advice on the issue of bullying for both children and parents.
Website Address
https://www.familylives.org.uk/browse/30100/bullying-and-school
Age Relevance
4+, 7+, 11+, 16+
Contact History

Refresh Project - online service only. Checked 9.5.14 LMUpdated names and description from website 18.3.15 AP Added helpline number using info from website - RC 20/07/2016. Website updated AC 27/9/23

Last Contacted
05/09/2014
Last Updated
27/09/2023
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Cambian Group

Name
Cambian Group
Category
,
Condition(s)
Exclude All
No
Short Description
Cambian is one of the largest providers of specialist education and behavioural health services for children in the UK. Its services have a specific focus on individuals who present with high severity needs.
Telephone Number
0161 507 3723
Website Address
http://www.cambiangroup.com/
Age Relevance
7+, 11+, 16+
Contact History

Refresh Project 2013 - new entry received on 02.12.13. Consent given by Lenka Broumova. Added 06.02.14 LMupdated address using info from website - RC 4/8/16. Refresh 27/8/21 AP

Last Contacted
12/02/2013
Last Updated
27/08/2021
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Carers Trust

Name
Carers Trust
Category
,
Exclude All
Yes
Short Description
Carers Trust supports unpaid carers caring for a family member or friend who is ill, disabled or has mental health or addiction problems.
Telephone Number
0300 772 9600
Website Address
https://carers.org/
Address
SE1 0LH
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

CHANGE TO TEL, FAX AND ADDRESS. Consent via telephone, 3/3/10 - EGRefresh project- email 1 sent 18.9.13, email 2 sent 6.12.13 Response received on 19.12.13 from Gill Kirby. Entry updated 7.2.14 LMPhone call 24.3.14 (CM) - all details confirmed correct again 24.3.14 LM. Refresh 27/8/21 AP

Last Contacted
27/03/2014
Last Updated
27/08/2021
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Carers UK

Name
Carers UK
Category
Exclude All
Yes
Short Description
Carers UK provides information and guidance to unpaid carers.
Telephone Number
020 7378 4999
Website Address
https://www.carersuk.org/
Address
SE1 4LX
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project- email 1 sent 18.9.13 to info@-bounceback,email 2 sent to advice@ on 17.10.13Updated from website 2.6.14. Address, telephone number and email changed, Fax removed and entry amended (advice line) LM . Refresh 27/8/21 AP. Updated phone number AC 27/9/23

Last Contacted
31/10/2013
Last Updated
27/09/2023
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Cerebra

Name
Cerebra
Category
Condition(s)
, ,
Exclude All
No
Short Description
Cerebra is a national charity dedicated to helping families with children with brain conditions discover a better life together.
Telephone Number
01267 244200
Website Address
http://www.cerebra.org.uk/
Town
Carmarthen
County
Wales
Address
SA31 3LW
Age Relevance
0+, 4+, 7+, 11+
Contact History

Refresh Project 2013 - email 1 sent 19.9.13 BB, no response so email 2 sent 16.1.14Response received on 16.1.14 from Sandi Llewellyn. All details confirmed correct LMFurther response from Kayleigh Wilson on 16.1.14 informing of change of address LMKLB updated entry to included info on the helpline, holiday home, sensory, lending library, info taken from the website. Equipment and financial support and holiday tags added.- 3.9.15added additional email address - RC 8/8/16. Refresh 27/8/21 AP

Last Contacted
09/03/2015
Last Updated
27/08/2021
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CHADD (Children & Adults with ADD)

Name
CHADD (Children & Adults with ADD)
Category
Condition(s)
Exclude All
No
Short Description
CHADD (Children & Adults with ADD) is a US based national non-profit organisation providing information on all aspects of ADHD.
Website Address
http://www.chadd.org/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh project- online based organisation (no email available) updated description using info from website -25.11.13. Refresh 27/8/21 AP

Last Contacted
25/11/2013
Last Updated
27/08/2021
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Challenging Behaviour Foundation

Name
Challenging Behaviour Foundation
Category
Condition(s)
,
Exclude All
No
Short Description
The charity for people with severe learning disabilities and behaviour described as challenging.
Telephone Number
0300 666 0126
Website Address
http://www.challengingbehaviour.org.uk/
County
Kent
Address
ME4 6BE
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Changed address from Challenge newsletter 20.11.07 Added helpline number and mentioned in newsletter 40. 7.11.08 changed description and web site - consent via email from Carina - updated online 15/12/09 - EGRefresh Project- Email 1 sent on 19.9.13, email response from Jo Reed on 23.9.13 to say all info correct - KC updated spreadsheet on 23.9.13Removed Family Support Adviser tel no. Added family support line and email. AP 23/2/16. Refresh 27/8/21 AP

Last Contacted
23/02/2016
Last Updated
27/08/2021
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Changing Faces

Name
Changing Faces
Category
Condition(s)
Exclude All
No
Short Description
Changing Faces helps children and adults face disfigurement with confidence.
Telephone Number
0300 012 0275
Website Address
https://www.changingfaces.org.uk/
Address
S14FW
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project 2013 - email 1 sent 19.9.13 BB, no response so email 2 sent 16.1.14Response received from Michelle Cole on 16.1.14. All details confirmed correct LM (Website changed from .co.uk to .org.uk LM)added additional phone number and email using info from website - RC 17/8/16. Refresh 27/8/21 AP. Address updated AC 27/9/23

Last Contacted
16/01/2014
Last Updated
27/09/2023
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Child Brain Injury Trust

Name
Child Brain Injury Trust
Category
Exclude All
No
Short Description
A national charity providing information, support and training to anyone affected by childhood acquired brain injury.
Telephone Number
01869 341075
Website Address
https://childbraininjurytrust.org.uk/
Address
OX27 7SR
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Stephanie Flower updated description by email to include professional training. 14.1.08 changed description - consent via email from Caroline Molloy, updated online 4/01/10 - EGRefresh Project- email 1 sent 19.9.13, email response received on 19.9.13 from  Gordon Waller requesting name change as prefer not to be known as CBIT and tel change- KC updated 28.10.13Email from Gordon Waller to change helpline number and admin number.  Also changed email to helpline@  2.12.14 AP. Refresh 27/8/21 AP

Last Contacted
12/03/2014
Last Updated
27/08/2021
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Childhood Eye Cancer Trust (CHECT)

Name
Childhood Eye Cancer Trust (CHECT)
Category
Condition(s)
Exclude All
No
Short Description
A UK charity dedicated to helping people affected by retinoblastoma.
Telephone Number
020 7377 5578
Website Address
https://chect.org.uk/
Address
E1 1FR
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

GOOGLEWHACK - consent via telephone from Emily King - 27/5/10 - EGRefresh project- email 1 sent 19.9.13, email response received from Ruth on 19.9.13 confirming details correct- KC updated 28.10.13

Last Contacted
28/10/2013
Last Updated
27/08/2021
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Childline

Name
Childline
Category
Exclude All
Yes
Short Description
Childline is the UK's free 24 hour helpline for children and young people up to the age of 19 years.
Telephone Number
0800 1111
Website Address
https://www.childline.org.uk/
Town
42 Curtain Road
Address
EC2A 3NH
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project - email 1 sent 18.9.13 (BB), email 2 sent 7.1.14 (LM). No response. Phone call made 26.3.14 (CM). Updated from website - address changed, tel, fax and email removed. Slight amendments to text LM

Last Contacted
03/10/2009
Last Updated
27/08/2021
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