ACT (Aid for Children with Tracheostomies)

Name
ACT (Aid for Children with Tracheostomies)
Category
Condition(s)
Exclude All
No
Short Description
ACT (Aid for Children with Tracheostomies) is the leading national organisation for children with tracheostomies. ACT is run by parents of children with a tracheostomy and by people who sympathise with the needs of such families.
Telephone Number
07712 104786
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project - Phone call 29.4.14 (AT). No change, all details correct LM.

Last Contacted
05/09/2014
Last Updated
26/01/2021
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Brentwood Eels Wheelchair Rugby League

Name
Brentwood Eels Wheelchair Rugby League
Category
,
Condition(s)
Short Description
Wheelchair rugby league in Brentwood.
Website Address
https://www.brentwoodrlfc.co.uk/teams/269778
Town
Brentwood
County
Essex
Address
CM15 9SE
Age Relevance
11+, 16+
Contact History

AT changed email address from [email protected] to [email protected] according to the contact page on their website 30/4/26

Last Updated
13/08/2024
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British Red Cross

Name
British Red Cross
Category
Condition(s)
Exclude All
No
Short Description
British Red Cross provides short-term loans of wheelchairs and other equipment. Book through their website.
Telephone Number
0300 456 1914
Website Address
https://www.redcross.org.uk/get-help/borrow-a-wheelchair
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

KLB ASKED FOR CONSENT IN 2015, NO REPLY USED WEB INFO AND PUBLISHED ON 31.3.16corrected address and added additional phone number - 31/8/16. Removed local entries and replaced with central contacts. 13/10/20

Last Contacted
31/03/2016
Last Updated
13/10/2020
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Calibre Audio

Name
Calibre Audio
Category
Condition(s)
, , , ,
Exclude All
Yes
Short Description
Calibre Audio library is a national charity providing a subscription-free postal service of unabridged audio books for people with sight problems, dyslexia or other disabilities, who cannot read print.
Telephone Number
01296 432 339
Website Address
https://www.calibreaudio.org.uk/
County
Bucks
Address
HP22 5XQ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Changed description and website by email from Maureen Reeves 22.12.08. change to description - consent via phone, updated online 20/01/10 - EGRefresh Project- email 1 sent 10.9.13, email 2 sent 28.11.13Phone call 1.4.14 (AT) - address added and email address amended LMAdded web 2 18.7.14 LM Updated email address from [email protected] to current using info from website - RC 20/07/2016adjusted spelling mistake in description - RC 11/8/17. Updated whole entry 13/10/20 AP. Linkedin added AC 27/8/23

Last Contacted
04/08/2014
Last Updated
27/09/2023
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Camp Jojo

Name
Camp Jojo
Category
Condition(s)
, ,
Short Description
An opportunity for a full camping experience in East Mersea for children with complex needs and their families.
Telephone Number
07494 193207
Website Address
https://www.campjojo.org/
Town
East Mersea
County
Essex
Address
CO5 8US
Age Relevance
4+, 7+, 11+, 16+
Contact History

Added from website 7/8/25 AP

Last Updated
07/08/2025
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Changing Places

Name
Changing Places
Category
Condition(s)
Exclude All
No
Short Description
Changing Places are facilities for people who cannot use standard accessible toilets.
Telephone Number
01382 755389
Website Address
http://www.changing-places.org/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Information taken from website - no consent sought PK 17/05/2016. Updated 20/10/20 AP. phone number, twitter updated. instagram, linkedin added AC 27/9/23. Changed email and phone 7.4.26 AP

Last Contacted
17/05/2016
Last Updated
07/04/2026
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Chatty Boxx

Name
Chatty Boxx
Category
,
Condition(s)
, ,
Short Description
Social group in Essex for children who use Augmentative and Alternative Communication (AAC) devices.
Telephone Number
07775 868 672
Website Address
https://www.chattyboxx.com/
Age Relevance
4+, 7+, 11+, 16+
Contact History

AT changed telephone number from 07775 988879 to 07775 868 672 30/4/26
AT changed email address from [email protected] to [email protected] 30/4/26

Last Updated
27/03/2025
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Choice Forum (incorporating The PMLD Network)

Name
Choice Forum (incorporating The PMLD Network)
Category
Condition(s)
,
Exclude All
No
Short Description
To discuss issues affecting the lives of people with learning disabilities in the UK.
Telephone Number
01865 600034
Website Address
https://www.choiceforum.org/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Info taken from website PH 20/7/16 . Refresh 27/8/21 AP

Last Contacted
20/07/2016
Last Updated
27/08/2021
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Colchester United – Football in the Community Disability Sport

Disability Sport
Name
Colchester United – Football in the Community Disability Sport
Category
Condition(s)
, , , , , , , , , , , , ,
Exclude All
Yes
Short Description
Colchester United Football in the Community have launched two disability programmes to support children with additional needs.
Telephone Number
07791313232
Website Address
https://www.cu-fc.com/cucf/our-programmes/health-wellbeing/disability/
County
Essex
Address
CO2 9BG
Age Relevance
7+, 11+
Contact History

website, email updated AC 2/10/23

Last Updated
02/10/2023
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Cool Crutches

Name
Cool Crutches
Category
Condition(s)
Short Description
Cool Crutches offers a range of safe, comfortable, stylish, practical and silent crutches and walking sticks for adults and children.
Telephone Number
01423 418 016
Website Address
https://www.coolcrutches.com/
Town
Harrogate
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Suggested by Liza as great products. April 2024.

Last Updated
23/04/2024
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CPotential

Name
CPotential
Category
,
Condition(s)
,
Exclude All
No
Short Description
Expert-led rehabilitation for children and young people with movement disorders.
Telephone Number
020 8444 7242
Website Address
http://cpotential.org.uk/
Address
N10 1JP
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

changed description, added contact name, added fax number, changed email and web address. - consent via email from Kath - updated online 17/12/09 - EGRefresh Project 2013 - email 1 sent 20.9.13 BB, no response so email 2 sent 9.1.14 LMResponse received on 9.1.14 from Catherine. Fax number changed 3.2.14 LMupdated email address - RC 10/8/16Address, email and description changed in line with website and SNAP Directory New Entry form PH 15/7/16
Received contact form from Nicola Baker 31.10.18 with updated description. AP. Email from Nicola Baker updated description - removed Woodstar School reference and SALT reference. Removed (formerly London Centre for Children with Cerebral Palsy) 12/6/19 AP. Email from CPotential to update 19/3/2021. instagram, youtube, linkedin added AC 2/10/23

Last Contacted
01/09/2014
Last Updated
02/10/2023
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Disability Advice and Welfare Network (DAWN)

Disability Advice and Welfare Network (DAWN)
Name
Disability Advice and Welfare Network (DAWN)
Category
, ,
Condition(s)
, , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , ,
Short Description
Specialising in benefits claims and appeals for clients who are of Neurodiverse development, and will support anyone with any condition.
Website Address
https://dawnsupport.co.uk/
Town
Colchester
County
Essex
Address
CO7 7UG
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Submitted by DAWN. 19/8/24

Last Updated
20/08/2024
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Dogs for Good

Name
Dogs for Good
Category
Condition(s)
, ,
Exclude All
No
Short Description
Dogs for Good runs local workshops for families who want to buy a pet dog to help their child with autism.
Telephone Number
01295 252600
Website Address
https://www.dogsforgood.org/
Town
Banbury
County
Oxfordshire
Address
OX17 2BS
Age Relevance
4+, 7+, 11+, 16+
Contact History

email updated AC 2/10/23

Last Updated
02/10/2023
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Eco Wings and Eco Nights

Name
Eco Wings and Eco Nights
Category
Condition(s)
, , ,
Short Description
Providing life and social skills for young people with learning and/or physical disabilities.
Telephone Number
01702 334080
Website Address
https://ecowings.co.uk/
Town
Westcliff-on-Sea
County
Essex
Address
SS0 7JE
Age Relevance
11+, 16+
Last Updated
19/02/2026
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Firefly Friends

Name
Firefly Friends
Category
Condition(s)
Exclude All
No
Short Description
Firefly Friends acts as a leading light in the research, design and development of postural care solutions for children with special needs.
Telephone Number
0289 267 8879
Website Address
https://www.fireflyfriends.com/uk/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

updated from weblink to directory entry - RC 12/9/16

Last Updated
12/01/2021
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Get Kids Going!

Name
Get Kids Going!
Category
,
Condition(s)
Exclude All
No
Short Description
Get Kids Going! aims to give disabled children and young adults up to the age of 26 years the opportunity of participating in sports by providing them with specially built sports wheelchairs.
Telephone Number
020 7481 8110
Website Address
http://www.getkidsgoing.com/
Age Relevance
7+, 11+, 16+
Contact History

details fine to be included - 12/2/10 EGRefresh Project- email  1 sent , Phone call made 21.3.14 (CM) - all details correct LMupdated address using info from website - RC 21/07/2016. instagram updated AC 9/10/23

Last Contacted
24/03/2014
Last Updated
09/10/2023
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Go Access Ltd

Name
Go Access Ltd
Category
Condition(s)
Exclude All
No
Short Description
Go Access provides modular disabled ramp and half step installations throughout the UK.
Telephone Number
0800 954 9705
Website Address
http://www.goaccess.co.uk/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Added to database using info emailed in and website - 17/7/17

Last Updated
13/10/2020
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Go Kids Go (Association of Wheelchair Children)

Name
Go Kids Go (Association of Wheelchair Children)
Category
Condition(s)
Exclude All
No
Short Description
Go Kids Go (Association of Wheelchair Children) provides a free service for families of wheelchair-using children and offers advice, advocacy and wheelchair skills training.
Telephone Number
01482 887163
Website Address
http://www.go-kids-go.org.uk/
Address
HU17 0AL
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

CHANGE TO TEL AND FAX - 8/3/10 - EG changes: contact name, mobile, tel, helpline, organisation name. Consent via post from Colin - EGRefresh Project- email 1 bounceback, email updated using website,email response received 27.9.13 from Emily with tel, mob, helpline, website updates Kc updated 3/10/13 updated address using info from website - RC 21/07/2016 

Last Contacted
11/07/2013
Last Updated
13/10/2020
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Hannah Morris

Name
Hannah Morris
Category
Condition(s)
, , , , , , , , , , , , , ,
Short Description
Educational Psychologist - Independent Practitioner
Telephone Number
07540 529661
Website Address
https://www.edpsych4kids.com
County
Based in Herts, also covering parts of Essex, Beds and NW London
Age Relevance
4+, 7+, 11+
Contact History

Removed Facebook. Not currently taking on new clients but website active. 1/12/2020 AP

Last Updated
01/12/2020
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HemiHelp (part of Contact)

Name
HemiHelp (part of Contact)
Category
Condition(s)
,
Exclude All
No
Short Description
HemiHelp is part of the Contact family and provides information and support to families where there is a child with hemiplegia, which is a condition similar to cerebral palsy affecting one side of the body.
Telephone Number
0808 808 3555
Website Address
https://contact.org.uk/help-for-families/information-advice-services/health-medical-information/hemiplegia-support/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

CHANGED ADDRESS - CNSENT VIA EMAIL FROM EVE - updated online 17/12/09 - EGRefresh project - email 1 sent 20.9.13, email received on 20.9.13 no name given, removed fax number on 20.9.13 -KCupdated email address using info from website - RC 26/8/16. Entry updated from info sent in by Gail Wagstaff at Contact 16/8/22. AP

Last Contacted
25/10/2013
Last Updated
23/08/2022
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