ERIC (Education and Resources for Improving Childhood Continence)

Name
ERIC (Education and Resources for Improving Childhood Continence)
Category
Condition(s)
Exclude All
No
Short Description
The children's bowel and bladder charity.
Telephone Number
0808 801 0343
Website Address
https://www.eric.org.uk/
Address
BS15 8DB
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

changed description, change of address, added contact name, consent via email from Eileen, updated online 14/12/09 - EGRefresh project- email 1 sent 19.9.13, email response received on 19.9.13 from Alina Lynden, asked to changed contact name and changes to helpline hours- KC updated 28.10.13. removed email AC 2/10/23. Updated helpline number 21/11/23 AP

Last Contacted
28/10/2013
Last Updated
21/11/2023
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FairPath UK

FairPath UK
Name
FairPath UK
Category
,
Short Description
Clear, parent‑friendly explanations of SEND processes, helping families understand key steps, documents and terminology.
Website Address
https://www.fairpathuk.com
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Submitted by FairPath 6/4/26

Last Updated
07/04/2026
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Family Rights Group

Name
Family Rights Group
Category
Exclude All
Yes
Short Description
Advice for families who need or are already involved with children's services.
Telephone Number
0808 801 0366
Website Address
https://www.frg.org.uk/
Address
N1 9LG
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to helpline and description - consent via email from Mary-Ann - 8/3/10 - EGRefresh Project - Phone call made 28.3.14 (CM) All details still correct LM

Last Contacted
04/10/2014
Last Updated
29/07/2022
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FASD Awareness (Foetal Alcohol Spectrum Disorders)

Name
FASD Awareness (Foetal Alcohol Spectrum Disorders)
Category
Condition(s)
Exclude All
No
Short Description
FASD Awareness - Offering support, education, training, research and information on Foetal Alcohol Spectrum Disorders (FASD).
Telephone Number
01634 566 323‬
Website Address
https://www.fasdawareness.org.uk/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Consent: Gloria 3.10.06 change to description, changed of address - consent via email from Gloria - updated online 14/12/09 - EGRefresh Project - email 1 sent 19.9.13 (BB), email 2 sent 17.1.14 (LM), no response and phone number inactive, so updated from website. Contact name, address and phone number removed, helpline number added LMremoved phone number as for NOFAS - RC 24/8/16

Last Contacted
22/05/2014
Last Updated
05/03/2021
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Foundation for People with Learning Disabilities

Name
Foundation for People with Learning Disabilities
Category
,
Condition(s)
Exclude All
No
Short Description
Foundation for People with Learning Disabilities is part of the London South Bank University and works to improve the lives of people with learning disabilities.
Website Address
https://www.learningdisabilities.org.uk/
Town
Borough Road
Address
SE1 0AA
Age Relevance
16+
Contact History

update to email, website and description - consent via email from Jacky, updated online 2/2/10 - emilyRefresh Project - Phone call made 28.3.14 (CM). Address changed and email 2 and website 2 added LM

Last Contacted
04/11/2014
Last Updated
25/08/2022
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FRANK (National Drugs Helpline)

Name
FRANK (National Drugs Helpline)
Category
Exclude All
Yes
Short Description
FRANK (National Drugs Helpline) gives free, confidential drugs information 24 hours a day.
Telephone Number
0300 123 6600
Website Address
https://www.talktofrank.com/
Age Relevance
11+, 16+
Contact History

Refresh Project - Phone call made 28.3.14 (CM) - helpline number and website cjhanged LMAdded new phone number using info from website - RC 21/07/2016updated mistake in description - RC 16/8/17

Last Contacted
04/10/2014
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Gene People UK

Name
Gene People UK
Category
Condition(s)
Exclude All
No
Short Description
The genetic conditions support network.
Telephone Number
0800 987 8987
Website Address
https://genepeople.org.uk/
Town
Epsom
Address
KT17 1HQ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

klb EMAILED IN 2015- HAD NO REPONSE, USED WEBSITE INFO TO PUBLISH ENTRY -8.4.16added address info - RC 24/8/16. email updated AC 9/10/23

Last Contacted
04/08/2016
Last Updated
09/10/2023
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Genetic Alliance UK

Name
Genetic Alliance UK
Category
Condition(s)
Exclude All
No
Short Description
Supporting everyone affected by genetic, rare and undiagnosed conditions.
Telephone Number
0300 124 0441
Website Address
https://www.geneticalliance.org.uk/
Address
E17 6DS
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

no change - 23/3/10 - EGRefresh Project- email 1 sent 19.9.13, email response received on 19.9.13 from Julian Walker with new name Genetic Alliance UK rather than Genetic Interest Group new website and email- KC updated 28.10.13 

Last Contacted
28/10/2013
Last Updated
25/08/2022
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Gingerbread

Name
Gingerbread
Category
Exclude All
Yes
Short Description
Gingerbread is the leading national charity working with single parent families.
Telephone Number
0808 802 0925
Website Address
https://www.gingerbread.org.uk/
Town
54-74 Holmes Road
Address
NW5 3AQ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to description, change to helpline. Consent via telephone from Zayda - 29/3/10 - EGRefresh Project- email 1 sent 24.10.13, email response received 24.10.13 from Tola stating all details correct- KC updated 24.10.13. updated email AC 9/10/23

Last Contacted
24/10/2013
Last Updated
09/10/2023
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Guide Dogs

Name
Guide Dogs
Category
Condition(s)
Exclude All
No
Short Description
Information, advice and support for vision impaired families.
Telephone Number
0800 781 1444
Website Address
https://www.guidedogs.org.uk/
County
Reading
Address
RG7 3YG
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project- email 1 sent 17.9.13, email response received on 27.9.13 from Hazel Russell with changes to tel, address, fax removed- changes made by KC on 3.10.13updated address, phone number and email using info from website -RC 31/8/16Updated from website 16.12.16 AP

Last Contacted
01/10/2005
Last Updated
25/08/2022
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Headlines

Name
Headlines
Category
Condition(s)
Exclude All
No
Short Description
Supporting all those affected by craniosynostosis and rare craniofacial conditions.
Telephone Number
0330 120 0410
Website Address
https://www.headlines.org.uk/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to email and description - consent via email from Eric Ruff - updated online 1/3/10 - EGRefresh Project- email 1 sent 19.9.13, email response received on 19.9.13 from Eric Ruff with new address- KC updated 28.10.13

Last Contacted
28/10/2013
Last Updated
25/08/2022
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Headway

Name
Headway
Category
Condition(s)
Exclude All
No
Short Description
Headway is the UK-wide charity that works to improve life after brain injury by providing vital support and information services.
Telephone Number
0808 800 2244
Website Address
https://www.headway.org.uk/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to address - consent via phone and email from Rhiana - 23/3/10 - EGRefresh Project- email 1 sent 19.9.13, auto reply recieved 19.9.13 Phone call made 30.4.14 (AT) - no changes LM

Last Contacted
05/12/2014
Last Updated
25/08/2022
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Hearing Link

Name
Hearing Link
Category
Condition(s)
Exclude All
No
Short Description
Helping people with hearing loss, their families and friends to help them reconnect with life.
Telephone Number
01844 348111
Website Address
https://www.hearinglink.org/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to: company name, tel, text, sms, fax, address, website and email. Description updated - consent via email from Debra - updated online 15/01/10 - EGRefresh Project- email 1 sent 17.9.13, email response received from Rebecca Dunnell   on 18.9.13 with updated contact details (address, tel, email, web)  and name change to hearing link from hearing concern link-KC updated 31.10.13added additional email address using info from website - RC 26/8/16

Last Contacted
31/10/2013
Last Updated
25/08/2022
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Heartline Families

Name
Heartline Families
Category
Condition(s)
Exclude All
No
Short Description
A place for families of children with heart defects, whether congenital or acquired, to come to for support, information and understanding.
Telephone Number
07949 256302
Website Address
https://www.heartline.org.uk/
Address
PE7 2BT
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project 2013 - email 1 sent 20.9.13 BB, no response so email 2 sent 20.1.14Response received 20.1.14 from Kevin Ford. Name of organisation, address and telephone number changed, fax removed 5.2.14 LMRemoved number: 0330 022 4466 as website said all enquiries should be through email - RC 26/8/16. phone number added, facebook updated AC 9/10/23

Last Contacted
20/01/2014
Last Updated
09/10/2023
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Helen Sanderson Associates

Name
Helen Sanderson Associates
Category
,
Exclude All
Yes
Short Description
Helen Sanderson Associates is a social enterprise offering support within person-centred practices, health and social care services and education.
Website Address
https://www.helensandersonassociates.com/united-kingdom/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Info taken from webiste PK 19/07/2016corrected mistake in description - RC 16/8/17. Changed web address and email 17/4/26 AP

Last Contacted
19/07/2016
Last Updated
17/04/2026
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HemiHelp (part of Contact)

Name
HemiHelp (part of Contact)
Category
Condition(s)
,
Exclude All
No
Short Description
HemiHelp is part of the Contact family and provides information and support to families where there is a child with hemiplegia, which is a condition similar to cerebral palsy affecting one side of the body.
Telephone Number
0808 808 3555
Website Address
https://contact.org.uk/help-for-families/information-advice-services/health-medical-information/hemiplegia-support/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

CHANGED ADDRESS - CNSENT VIA EMAIL FROM EVE - updated online 17/12/09 - EGRefresh project - email 1 sent 20.9.13, email received on 20.9.13 no name given, removed fax number on 20.9.13 -KCupdated email address using info from website - RC 26/8/16. Entry updated from info sent in by Gail Wagstaff at Contact 16/8/22. AP

Last Contacted
25/10/2013
Last Updated
23/08/2022
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HFT

Name
HFT
Category
,
Exclude All
Yes
Short Description
HFT supports people by providing a range of services including social and leisure activities, domiciliary care and supported living, supported employment and residential care services.
Telephone Number
0117 906 1700
Website Address
https://www.hft.org.uk/
Town
Emersons Green
Address
BS16 7FL
Age Relevance
11+, 16+
Contact History

Unable to gain consent. As information in the public domain published PK 16.09.15. Added email address and address using info from the website - RC 18/07/2016. Updated address 17.7.20 AP. email removed AC 9/10/23

Last Contacted
16/09/2015
Last Updated
09/10/2023
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Holes in the Wall

Name
Holes in the Wall
Category
Exclude All
Yes
Short Description
Holes in the Wall is an online-based resource for parents, professionals or academics and offers material on parent abuse.
Website Address
https://holesinthewall.co.uk/
Age Relevance
4+, 7+, 11+, 16+
Contact History

Gained consent via email from Helen Bonnick on 25.10.13 - KC added 25.10.13

Last Contacted
25/10/2013
Last Updated
23/04/2024
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Hypermobility Syndromes Association (HMSA)

Name
Hypermobility Syndromes Association (HMSA)
Category
Condition(s)
Exclude All
No
Short Description
The Hypermobility Syndromes Association (HMSA) aims to provide support and information to those affected by one of the hypermobility syndromes.
Telephone Number
0333 011 6388
Website Address
https://hypermobility.org/
Address
W1D 4EG
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project 2013 - new entry added 14.2.14. Consent given by Donna Wicks on 13.2.14 (direct contact details: 0845 478 6631 or 07896 633168) LMupdated address using info from website - RC 26/8/16. Contacted by Karen Merryweather to change address but it was the same. Added helpline. 23/6/23 AP. instagram added AC 9/10/23

Last Contacted
22/06/2023
Last Updated
09/10/2023
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Hypermobility UK

Name
Hypermobility UK
Category
Condition(s)
Exclude All
No
Short Description
Hypermobility UK offers a national specialist advocacy and outreach service to individuals and aims to raise awareness of hypermobility amongst the caring profession, educationalists and service providers throughout the East Anglia area.
County
Essex
Address
CO13 9AD
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Call from David Rolph to change name from Hypermobility East Anglia and change email. 8.9.08. Changed category to Other Conditions/Hypermobility. changed email, web address and telephone numbers - consent via email from David - updated on line 14/12/09 - EGInformed via email from David Rolph on 14.2.13 to remove Colchester contact number and also to change the website address. Colchester contact removed and website address (www.hypermobilityuk.btck.co.uk) added by KC on 18.2.13Refresh Project- email 1 sent 19.9.13, email response received from David Rolph on 19.9.13 with new telephone and textphone number- KC updated 28.10.13. contact details removed AC 9/10/23

Last Contacted
28/10/2013
Last Updated
09/10/2023
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