Hypermobility UK

Name
Hypermobility UK
Category
Condition(s)
Exclude All
No
Short Description
Hypermobility UK offers a national specialist advocacy and outreach service to individuals and aims to raise awareness of hypermobility amongst the caring profession, educationalists and service providers throughout the East Anglia area.
County
Essex
Address
CO13 9AD
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Call from David Rolph to change name from Hypermobility East Anglia and change email. 8.9.08. Changed category to Other Conditions/Hypermobility. changed email, web address and telephone numbers - consent via email from David - updated on line 14/12/09 - EGInformed via email from David Rolph on 14.2.13 to remove Colchester contact number and also to change the website address. Colchester contact removed and website address (www.hypermobilityuk.btck.co.uk) added by KC on 18.2.13Refresh Project- email 1 sent 19.9.13, email response received from David Rolph on 19.9.13 with new telephone and textphone number- KC updated 28.10.13. contact details removed AC 9/10/23

Last Contacted
28/10/2013
Last Updated
09/10/2023
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Inset: Dyslexia/Study Skills

Name
Inset: Dyslexia/Study Skills
Category
Condition(s)
Exclude All
No
Short Description
Inset: Dyslexia/Study Skills are offered by Lee Pascal for teachers in primary, secondary, tertiary and teacher education. Half-day sessions (two hour minimum) are offered as well as morning, afternoon, evening, one day or weekends.
Telephone Number
020 8531 4182
Website Address
https://jmcinset.com/supporting-learners-dyslexia
County
Middlesex
Address
WC1N 3AX
Age Relevance
4+, 7+, 11+, 16+
Contact History

Change of address notified by email 1.9.08Refresh Project - email 1 sent 10.9.13, email response received from Lee Pascal stating all details correct- KC updated 18.11.13. updated email, phone, address, website added AC 9/10/23

Last Contacted
18/11/2013
Last Updated
09/10/2023
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Juvenile Diabetes Research Foundation (JDRF)

Name
Juvenile Diabetes Research Foundation (JDRF)
Category
Condition(s)
Exclude All
No
Short Description
Juvenile Diabetes Research Foundation (JDRF) exists to find a cure for Type 1 diabetes and its complications and provides information for young people with this condition.
Telephone Number
020 7713 2030
Website Address
https://jdrf.org.uk/
Address
EC1V 2PT
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project - Phone call made 30.4.14 (AT) - added 'Type 1' to description LM

Last Contacted
05/12/2014
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Karen Gaffney Foundation

Name
Karen Gaffney Foundation
Category
Condition(s)
,
Exclude All
No
Short Description
The Karen Gaffney Foundation is dedicated to championing the journey to full inclusion for people with Down syndrome or other developmental disabilities.
Website Address
http://www.karengaffneyfoundation.com/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

updated from weblink to directory entry -RC 7/9/16. facebook, twitter added AC 16/10/23

Last Updated
16/10/2023
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Kids Cancer Charity (formerly Christian Lewis Trust Children’s Cancer Charity)

Name
Kids Cancer Charity (formerly Christian Lewis Trust Children’s Cancer Charity)
Category
,
Condition(s)
Exclude All
No
Short Description
Kids Cancer Charity aims to improve the quality of life for children affected by a cancer-related illness by offering emotional and practical support and a holiday programme.
Telephone Number
01792 480500
Website Address
http://www.kidscancercharity.org/
Town
Cockett
Address
SA2 0GB
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

added contact name, added to organisation name, changed email, changed web site, changed description - consent via email from Barbara - updated 14/12/09 - EGRefresh Project - Name of organisation changed, and email, website updated LM. address updated, facebook, instagram added AC 16/10/23

Last Contacted
21/05/2014
Last Updated
16/10/2023
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Kidscape

Name
Kidscape
Category
Exclude All
Yes
Short Description
Kidscape is the registered charity committed to keeping children safe from harm or abuse.
Website Address
https://www.kidscape.org.uk/
Town
Epsom
County
Surrey
Address
KT18 7PF
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

added to description, cosnent via email from Andrew - updated online 14/12/09 - EGRefresh Project 2013 - email 1 sent 19.9.13 BB. No response, email 2 sent 7.1.14 LMResponse received 8.1.14 from Catherine McKenna, comfirming all details correct LM. removed phone AC 16/10/23

Last Contacted
01/08/2014
Last Updated
16/10/2023
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Kids Health

Name
Kids Health
Category
,
Exclude All
Yes
Short Description
Kids Health is an American website providing information about kids and teens that is easy to understand.
Website Address
https://kidshealth.org/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

updated from weblink to directory entry -RC 8/9/16corrected mistake in the description - RC 15/8/17

Last Updated
12/01/2021
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Kith and Kids

Name
Kith and Kids
Category
Exclude All
Yes
Short Description
Kith and Kids is an organisation providing advocacy, training and information to support families living with a disability.
Telephone Number
0208 801 7432
Website Address
http://www.kithandkids.org.uk/
Address
N17 8DX
Age Relevance
4+, 7+, 11+, 16+
Contact History

no change - consent via telephone - 3/3/10 - EGRefresh Project- Email 1 sent 19.9.13, email received from Becky on 20.9.13 all details correct- KC updated spreadsheet

Last Contacted
03/10/2003
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Learning Disability England

Name
Learning Disability England
Category
,
Condition(s)
Exclude All
No
Short Description
Learning Disability England exists to make life better with people with Learning Disabilities and their families.
Telephone Number
0300 111 0444
Website Address
http://www.learningdisabilityengland.org.uk/
Address
B3 2ES
Age Relevance
16+
Contact History

Published 25/01/2017 due to name change. Previous organisation Housing and support alliance unpublished. PK Changed contact details from website 17.7.20 AP

Last Contacted
25/01/2017
Last Updated
17/07/2020
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Lennox Children’s Cancer Fund

Name
Lennox Children’s Cancer Fund
Category
,
Condition(s)
Exclude All
Yes
Short Description
Lennox Children's Cancer Fund aims to make a positive difference to the lives of children diagnosed with cancer by offering practical, financial and emotional support to the whole family through a range of projects.
Telephone Number
01708 734366
Website Address
http://www.lennoxccf.org.uk/
Town
Basildon
Address
SS15 6ED
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

instagram added AC 16/10/23

Last Updated
16/10/2023
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Let’s Face It

Name
Let’s Face It
Category
Condition(s)
Exclude All
No
Short Description
Let's Face It is a support network linking people with facial disfigurement, their families, friends and professionals with resources for recovery.
Telephone Number
01843 491291
Website Address
http://www.lets-face-it.org.uk/
County
Kent
Address
CT8 8NG
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

NO CHANGE - CONSENT FROM CHRISTINA PIFF - 5/3/10 - EGRefresh Project - email 1 sent 19.9.13 (BB), email 2 sent 17.1.14 (LM) - no responsePhone call made 30.4.14 (AT) - left messageInformation checked on website 17.6.14 - all correct LMadded additional email address using info from website - RC 17/8/16. email updated AC 16/10/23

Last Contacted
17/06/2014
Last Updated
16/10/2023
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Leukaemia Care

Name
Leukaemia Care
Category
Condition(s)
Exclude All
No
Short Description
Leukaemia Care provides practical support and information to anyone whose life is affected by leukaemia, via a 24 hour helpline.
Telephone Number
08088 010 444
Website Address
http://www.leukaemiacare.org.uk/
Address
WR3 8SG
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to email address - consent via fax - EG Change to telephone number and removed 'Society' from title - 9/8/11 - EGRefresh project- email 1 sent 19.9.13, email response received 26.9.13 with consent all details correct- no name given - KC updated 4/10/13

Last Contacted
08/11/2009
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Lisa Christie – Coach

Name
Lisa Christie – Coach
Category
Condition(s)
,
Short Description
Coaching for parents of neurodiverse children.
Telephone Number
07976 094495
Website Address
www.lisachristie.co.uk
Age Relevance
4+, 7+, 11+, 16+
Contact History

Submitted by Lisa Christie. instagram, linkedin added AC 16/10/23

Last Contacted
10/03/2023
Last Updated
16/10/2023
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Living with ADHD

Name
Living with ADHD
Category
Condition(s)
Exclude All
No
Short Description
Living with ADHD provides helpful information whether you are a teenager who has been diagnosed with Attention Deficit Hyperactivity Disorder (ADHD), or you are the parent/carer or teacher of someone who has the condition. 
County
Buckinghamshire
Address
HP12 4EG
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

updated from weblink to directory entry - RC 12/9/16. website removed - doesn't exist AC 16/10/23

Last Updated
16/10/2023
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LOOK (The National Federation of Families with Visually Impaired Children)

Name
LOOK (The National Federation of Families with Visually Impaired Children)
Category
Condition(s)
Exclude All
No
Short Description
LOOK (The National Federation of Families with Visually Impaired Children)
Telephone Number
07464 351 958
Website Address
http://www.look-uk.org/
Address
HR4 9HP
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project- email 1 sent 17.9.13, email 2 sent 6.12.13Phone call 6.5.14 (AT) - all details correct LMupdated address, email and phone number using info from website - RC 31/8/16. email, phone, address updated AC 16/10/23

Last Contacted
05/09/2014
Last Updated
16/10/2023
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LUPUS UK

Name
LUPUS UK
Category
Condition(s)
Exclude All
No
Short Description
LUPUS UK is a national charity supporting people with incurable systemic lupus and discoid lupus.
Telephone Number
01708 731251
Website Address
https://www.lupusuk.org.uk/
County
Essex
Address
RM1 3NH
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project- Email 1 sent 19.9.13, email received on 20.9.13Geraldine Leonard to confirm all details correct - KC updated spreadsheet on 20.9.13 

Last Contacted
23/10/2013
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Macmillan Cancer Support

Name
Macmillan Cancer Support
Category
Condition(s)
Exclude All
No
Short Description
Macmillan Cancer Support is a UK wide charity that provides practical, medical, emotional and financial support to improve the lives of people affected by cancer.
Telephone Number
0808 808 00 00
Website Address
https://www.macmillan.org.uk/
Address
SE1 7UQ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh project- email 1 sent 19.9.13- bounceback, email 2 sent via online form on 28.10.13updated phone number RC 10/8/16. email removed AC 16/10/23

Last Contacted
28/10/2013
Last Updated
16/10/2023
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ME Association

Name
ME Association
Category
Condition(s)
Exclude All
No
Short Description
ME Association provides support, information and a quarterly magazine for people affected by ME, also known as Chronic Fatigue Syndrome, their families and carers.
Telephone Number
0344 576 5326
Website Address
http://www.meassociation.org.uk/
County
Buckinghamshire
Address
MK18 4DF
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

updated description, changed address, helpline, removed fax, changed tel. Consent gained via email from Tony. Updated online 15/12/09 - EGRefresh Project- email 1 sent 19.9.13, email response received from Tony Britton on 19.9.13 stating all details correct- Kc updated 28.10.13  updated email address and phone numbers using info from website -RC 31/8/16. phone updated, email removed AC 16/10/23

Last Contacted
28/10/2013
Last Updated
16/10/2023
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Mencap

Name
Mencap
Category
,
Condition(s)
Exclude All
No
Short Description
Mencap offers a variety of services including advocacy, employment, housing, residential and supported living services, family support services, advice and information on learning disability issues.
Telephone Number
020 7454 0454
Website Address
https://www.mencap.org.uk/
Address
EC1Y 0RT
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project- email 1 sent 19.9.13 , email response received on 8/10/13 from Kat with updated description with added list of services provided - KC updated 10.10.13. email updated, linkedin, instagram, youtube added AC 16/10/23

Last Contacted
04/10/2008
Last Updated
16/10/2023
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Meningitis Now

Name
Meningitis Now
Category
Condition(s)
Exclude All
No
Short Description
Meningitis Now offers a range of services to health professionals, the general public and to those affected by meningitis, including a 24-hour nurse-led helpline, professional counselling, home visiting, one-to-one contacts and financial grants.
Telephone Number
0808 80 10 388
Website Address
https://www.meningitisnow.org/
County
Gloucestershire
Address
GL5 3TJ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project 2013 - email 1 sent 20.9.13 BB, no response so email 2 sent 20.1.14Response received on 20.1.14 from Jo Campbell. Changed name to Meningitis Now, and updated email and web details 5.2.14 LM. phone updated AC 16/10/23

Last Contacted
20/01/2014
Last Updated
16/10/2023
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