Mermaids

Name
Mermaids
Category
Condition(s)
Exclude All
No
Short Description
Mermaids is a support group for gender variant children and teenagers whose aim is to offer support to children and their families as well as raise awareness in society about gender identity issues.
Telephone Number
0808 801 0400
Website Address
https://www.mermaidsuk.org.uk/
Address
WC1N 3XX
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to phone number and website - consent via telephone - researched by Sarah - 23/3/10 - EGRefresh Project 2013 - email 1 sent 20.9.13 BB, no response so email 2 sent 17.1.14Response received on 17.1.14 from Linda. Email address changed 5.2.14 LMUpdated phone numbers from website 8.2.16 AP

Last Contacted
17/01/2014
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Metabolic Support UK (formerly Climb)

Name
Metabolic Support UK (formerly Climb)
Category
Condition(s)
Exclude All
No
Short Description
The leading patient organisation for Inherited Metabolic Disorders supporting thousands of patients worldwide.
Telephone Number
0845 241 2173
Website Address
https://www.metabolicsupportuk.org/
Town
Wrexham
County
Wales
Address
LL13 7YP
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to telephone - 29/3/10 - EGrEFRESH pROJECT- EMAIL 1 SENTTO INFO@ 19.9.13- BOUNCEBACK- EMAIL 2 SENT ON 28.10.13 TO EXEC@ , phoned and spoke to Fiona who gave address Fiona@climb.org.uk forwarded to this address on  30.10.13, Fiona responded stating all details correct, new fax no.- KC updated 30.10.13Phone number changed 13.2.14 LMupdated email address using info from website - RC 31/8/16. Refresh - changed name from Climb - 27/8/21 AP. email, phone updated, twitter removed AC 16/10/23

Last Contacted
30/10/2013
Last Updated
16/10/2023
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Michael Palin Centre for Stammering Children

Name
Michael Palin Centre for Stammering Children
Category
Condition(s)
Exclude All
No
Short Description
Michael Palin Centre for Stammering Children is staffed by a team of specialist speech and language therapists and offers a free assessment service for children from all parts of the UK. Funding for treatment is arranged through the NHS.
Telephone Number
0203 316 8100
Website Address
https://michaelpalincentreforstammering.org/
Address
EC1R 0JG
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project - email 1 sent 24.9.13 (BB), email 2 sent 9.1.14 (LM) - no response.Updated from website - tel number and postcode changed. Fax removed 9.6.14 LMupdated email addresses using info from website -RC 31/8/16. email, website updated, instagram added AC 16/10/23

Last Contacted
01/10/2013
Last Updated
16/10/2023
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Mind (National Association for Mental Health)

Name
Mind (National Association for Mental Health)
Category
Condition(s)
Exclude All
No
Short Description
Mind is the leading mental health charity. In addition to providing advice and support to empower anyone experiencing a mental health problem, Mind campaigns to improve services, raise awareness and promote understanding.
Telephone Number
0208 215 2243
Website Address
https://www.mind.org.uk/
County
London
Address
E20 1JQ
Age Relevance
4+, 7+, 11+, 16+
Contact History

Refresh Project 2013 - Email 1 sent 19.9.13 BB, no response, email 2 sent 8.1.14Response received on 8.1.14 from Sam Crisp. Changed text 30.1.14 LMChecked information on website 18.6.14 - changed tel number and email LMupdated email address using info from website -RC 26/8/16. phone and address updated AC 16/10/23

Last Contacted
01/08/2014
Last Updated
16/10/2023
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Muscular Dystrophy UK

Name
Muscular Dystrophy UK
Category
Condition(s)
Exclude All
No
Short Description
Muscular Dystrophy UK is the national charity for individuals and families living with muscle wasting conditions.
Telephone Number
0800 652 6352
Website Address
https://www.musculardystrophyuk.org/
Address
SE1 0BU
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

GOOGLEWHACK - 7/4/10 - EGRefresh Project - Phone call made 30.4,14 (AT). Change of address and entry emailed to PR team as requested for checking LMupdated email address using info from website - RC 31/8/16

Last Contacted
05/12/2014
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Myotonic Dystrophy Support Group

Name
Myotonic Dystrophy Support Group
Category
Condition(s)
Exclude All
No
Short Description
Myotonic Dystrophy Support Group offers support, information and friendship to those affected by this neuromuscular genetic condition.
Telephone Number
0115 987 5869 or 0808 169 1960
Website Address
https://www.myotonicdystrophysupportgroup.org/
Address
NG4 3HQ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

changed contact name, email, web site, removed fax, and updated description. consent via email from Margaret, updated online 14/12/09 - EG Merged two entries: 2 entries in myotonic and muscular dystrophy. Have now deleted myotonic and transfered info. - 6/4/10 - EG Refresh Project- email 1 sent 20.9.13- bounceback, email 2 sent 24.9.14 email updated -KC, Email response received from  Margaret Bowler on 25.10.13 request to remove  Muscular Dystrophy, Address change and  No fax number- KC updated 25.10.13Changed web address to .org from .co.uk  AP 16.7.14. phone updated AC 16/10/23

Last Contacted
25/10/2013
Last Updated
16/10/2023
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NAPPI uk (Non-Abusive Psychological & Physical Intervention)

Name
NAPPI uk (Non-Abusive Psychological & Physical Intervention)
Category
Condition(s)
Exclude All
No
Short Description
NAPPI uk (Non-Abusive Psychological & Physical Intervention) provides a positive psychological and physical intervention programme for education and health care professionals who deal with inappropriate or violent behaviours.
Telephone Number
01723 353353
Website Address
https://www.nappiuk.com/
County
North Yorkshire
Address
YO12 5AX
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project - Email 1 sent 20.9.13 (BB), email 2 sent 17.1.14. Phone call made 30.4.14 (AT). Information checked from website - all details remain correct, 'UK' added to name of organisation LM

Last Contacted
21/05/2014
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National Aids Trust (NAT)

Name
National Aids Trust (NAT)
Category
Condition(s)
Exclude All
No
Short Description
National Aids Trust (NAT) is a leading UK charity, dedicated to transforming society's response to HIV. The NAT provides information, advice and practical resources in its campaign for change.
Telephone Number
020 7814 6767
Website Address
https://www.nat.org.uk/
Address
E2 9DA
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

CHANGED FROM HELPLINE TO TRUST. Change to tel, email, fax, web and description 31/3/10 EGRefresh Project - Phone call made 30.4.14 (AT) - no changes LMadded email address using info from website - RC 26/8/16. address updated AC 23/10/23

Last Contacted
05/12/2014
Last Updated
23/10/2023
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National Children’s Bureau (NCB)

Name
National Children’s Bureau (NCB)
Category
Exclude All
Yes
Short Description
NCB advises central and local governments, and provides consultancy and training to local authorities and other organisations working to develop services for children and young people.
Telephone Number
020 7843 6000
Website Address
https://www.ncb.org.uk/
Town
Hackney
Address
E8 3PN
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh project- phonecall made on 10.12.13 BB, details confirmed correct by Lee, KC updated 10.12.13added email address using info from website - RC 22/07/2016. address updated AC 23/10/23

Last Contacted
12/10/2013
Last Updated
23/10/2023
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National Council for Voluntary Organisations

Name
National Council for Voluntary Organisations
Category
Exclude All
Yes
Short Description
National Council for Voluntary Organisations provides information, support and specialist advice to voluntary organisations.
Telephone Number
020 7713 6161
Website Address
https://www.ncvo.org.uk/
Address
N1 9RL
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Consent given 12/5/2010 - ARRefresh Project- email 1 sent 19.9.13- bounceback, email 2 sent to 'ncvo@ncvo.org.uk' on 30.10.13 email updated Phone call 28.3.14 (CM) - Address and website amended, helpline changed LM

Last Contacted
04/08/2014
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National Kidney Federation

Name
National Kidney Federation
Category
Condition(s)
Exclude All
No
Short Description
National Kidney Federation aims to present a national voice to the Government on behalf of kidney patients.
Telephone Number
0800 169 0936
Website Address
https://www.kidney.org.uk/
County
Nottinghamshire
Address
S81 8BW
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

added contact name, changed address, added telephone number, changed description - consent via email from Stephanie, updated online 15/12/09Refresh Project 2013 - email 1 sent 20.9.13 BB, no response so email 2 sent 20.1.14Response received on 4.2.14 from Stephanie Allen, confirming all details correct LM updated email address using info from website - RC 26/8/16. facebook, instagram, youtube added AC 23/10/23

Last Contacted
02/04/2014
Last Updated
23/10/2023
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National Tremor Foundation

Name
National Tremor Foundation
Category
Condition(s)
Exclude All
No
Short Description
National Tremor Foundation (NTF) is a voluntary body established to provide support and information to patients suffering from a wide range of tremors.
Telephone Number
01708 386399
Website Address
https://tremor.org.uk/
County
Essex
Address
RM3 0FE
Age Relevance
4+, 7+, 11+, 16+
Contact History

Refresh Project - Phone call made 30.4.14 (AT) - address no longer Harold Wood Hospital. Now Long Term Conditions Centre LMcorrected postcode using info from website - RC 31/8/16

Last Contacted
05/12/2014
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NDCS (National Deaf Children’s Society)

Name
NDCS (National Deaf Children’s Society)
Category
Condition(s)
Exclude All
No
Short Description
NDCS (National Deaf Children's Society) is an organisation for families, parents and carers, providing emotional and practical support.
Telephone Number
0808 800 8880
Website Address
https://www.ndcs.org.uk/
Address
EC2A 4LS
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to contact details and description - consent gained via email, from Amy. updated online 4/01/10 - EGRefresh project- Email 1 sent 17.9.13, email response received on 8.10.13 from Jen confirming details correct- opening hours of helpline added- KC updated 10.10.13added additional email using info from website - RC 26/8/16. email updated, instagram added, pintrest removed AC 23/10/23

Last Contacted
01/10/2004
Last Updated
23/10/2023
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Newlife Foundation for Disabled Children

Name
Newlife Foundation for Disabled Children
Category
,
Exclude All
Yes
Short Description
Newlife Foundation for Disabled Children gives practical support for disabled children throughout the UK.
Telephone Number
01543 462777
Website Address
https://newlifecharity.co.uk/
County
Staffordshire
Address
WS11 7GF
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Changed name, contacts and description. Checked by phone and was sent notification of changes 27.8.08 No change - consent via email from Patrice - EG Updated It Just Can't Wait Service from magazine- 6/12/11 - EGRefresh Project- email 1 sent 18.9.13, email 2 sent 6.12.13Response received 18.12.13 from Mattew Dunning. Updated text 29.1.14 LM Phone call 28.3.14 (CM) - all details correct LMcorrected mistake in description - RC 15/8/17

Last Contacted
04/08/2014
Last Updated
27/04/2023
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NOFAS-UK (National Organisation on Foetal Alcohol Syndrome)

Name
NOFAS-UK (National Organisation on Foetal Alcohol Syndrome)
Category
Condition(s)
Exclude All
No
Short Description
NOFAS-UK is committed to helping individuals with Foetal Alcohol Spectrum Disorder (FASD) and their families and carers, by offering advice, information, meetings, conferences and training.
Telephone Number
020 8458 5951
Website Address
https://www.nofas-uk.org/
Town
Ware
County
Hertfordshire
Address
SG12 9AL
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Consent given by Maggie Stapleton by telephone 29.1.08. NO CHANGE CONSENT VIA EMAIL FROM SUZANNE - 1/3/10 - EGRefresh project- email 1 sent- bounceback, email 2 sent 24.9.13 updated email- KC, autoresponse received will reply in 5 days - 25.10.13, email received on 28.10.13 from Vandana Alimchandani with new tel, address, helpline and email- KC updated 28.10.13. email, address, twitter, facebook updated AC 23/10/23

Last Contacted
28/10/2013
Last Updated
23/10/2023
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Not Fine In School (NFIS)

Name
Not Fine In School (NFIS)
Category
,
Exclude All
No
Short Description
An organisation for parents, family and friends of children who experience difficulties attending school.
Their aim is to offer information, research and campaigns that relate to 'School Refusal' and barriers affecting school attendance.
Website Address
https://notfineinschool.co.uk/home
Age Relevance
4+, 7+, 11+, 16+
Contact History

Information taken from website. 5/2/2021 AP

Last Updated
05/02/2021
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NSPCC

Name
NSPCC
Category
Exclude All
Yes
Short Description
NSPCC has a 24 hour child protection helpline for adults who have concerns about a child.
Telephone Number
0808 800 5000
Website Address
https://www.nspcc.org.uk/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh project- details confirmed correct online by BB- KC updated 10.12.13. email updated AC 23/10/23

Last Contacted
12/10/2013
Last Updated
23/10/2023
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Nystagmus Network (NN)

Name
Nystagmus Network (NN)
Category
Condition(s)
Exclude All
No
Short Description
Nystagmus Network (NN) is a UK based self-help group providing support and information for adults and children with the eye condition nystagmus.
Telephone Number
01427 718093
Website Address
https://nystagmusnetwork.org/
Town
Kingston upon Thames
Address
KT2 5NL
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

description updated and added contact name, changed tel and email. Consent gained via email from John, updated online 5/1/10 - EGRefresh project- email 1 sent 17.9.13, email response received from John Sanders stating all details correct- KC updated 7.11.13updated website link and email - RC 31/8/16. address added AC 23/10/23

Last Contacted
11/07/2013
Last Updated
23/10/2023
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OCD-UK

Name
OCD-UK
Category
Condition(s)
Exclude All
No
Short Description
OCD-UK is a charity dedicated to improving the mental health and well-being of people in the UK whose lives are affected by Obessive Compulsive Disorder.
Telephone Number
01332 588112
Website Address
https://www.ocduk.org/
County
Derbyshire
Address
DE56 1AR
Age Relevance
11+, 16+
Contact History

Entered on directory without consent as all information from website. 30.09.15 PK. phone updated, instagram, address added AC 23/10/23

Last Contacted
30/09/2015
Last Updated
23/10/2023
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OCD Action

Name
OCD Action
Category
Condition(s)
Exclude All
No
Short Description
OCD Action is a national charity for people with Obsessive Compulsive Disorder, their carers and interested professionals.
Telephone Number
0300 636 5478
Website Address
https://www.ocdaction.org.uk/
Address
EC1V 7ET
Age Relevance
11+, 16+
Contact History

Refresh Project- email 1 sent 20.9.13, email response received from Steven Parslow on 24.9.13 with updated address- KC updated on 24.9.13updated email address using info from website - RC 1/8/16. phone updated, instagram added AC 23/10/23

Last Contacted
03/10/2019
Last Updated
23/10/2023
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