Brain & Spine Foundation

Name
Brain & Spine Foundation
Category
Condition(s)
Exclude All
No
Short Description
The only UK wide charity providing information and support on the full range of neurological conditions.
Telephone Number
0808 808 1000
Website Address
https://www.brainandspine.org.uk/
Address
SE1 4YR
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Change to address - consent via telephone - 19/3/10 - EGRefresh Project - email 1 sent 19.9.13 (BB), email 2 sent 16.1.14 (LM). No response.Phone message left 29.4.14 (AT). Spoke to Ronnie 12.6.14 - confirmed all details still correct apart from helpline times - amended LMupdated email and address using info from website - RC 8/8/16

Last Contacted
06/12/2014
Last Updated
30/07/2021
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Colchester United – Football in the Community Disability Sport

Disability Sport
Name
Colchester United – Football in the Community Disability Sport
Category
Condition(s)
, , , , , , , , , , , , ,
Exclude All
Yes
Short Description
Colchester United Football in the Community have launched two disability programmes to support children with additional needs.
Telephone Number
07791313232
Website Address
https://www.cu-fc.com/cucf/our-programmes/health-wellbeing/disability/
County
Essex
Address
CO2 9BG
Age Relevance
7+, 11+
Contact History

website, email updated AC 2/10/23

Last Updated
02/10/2023
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Scoliosis Association UK (SAUK)

Name
Scoliosis Association UK (SAUK)
Category
Condition(s)
Exclude All
No
Short Description
Scoliosis Association UK (SAUK) is a registered charity that offers support to people with scoliosis (twisting and curving of the spine) and their families.
Telephone Number
020 8964 1166
Website Address
https://www.sauk.org.uk/
Address
W10 6RA
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change of email, postal address and description - consent via email from Elaine - updated online 15/12/09 - EGRefresh Project- all details confirmed correct by Anna Glendenning on 20.9.13 by email - KC updated spreadsheetRefresh Project- email 1 sent 24.9.13, email response received from Anna Glendenning on 24.9.13 - title altered to SCOLIOSIS ASSOCIATION UK (SAUK)- KC updated 24.9.13. instagram added AC 30/10/23

Last Contacted
25/10/2013
Last Updated
30/10/2023
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Strive Mobility

Name
Strive Mobility
Category
Condition(s)
, , , , , ,
Exclude All
Yes
Short Description
Strive Mobility - A simple way to rent mobility equipment online.
Website Address
https://www.strivemobility.com
Age Relevance
4+, 7+, 11+, 16+
Contact History

email updated AC 30/10/23

Last Contacted
01/08/2019
Last Updated
30/10/2023
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Strongbones Children’s Charitable Trust

Name
Strongbones Children’s Charitable Trust
Category
Condition(s)
, ,
Exclude All
No
Short Description
Helping families and disabled children with complex needs alongside scoliosis, spina bifida, brittle bone disease or any other bone condition.
Telephone Number
01708 750599
Website Address
https://www.strongbones.org.uk/
County
Essex
Address
RM7 0AZ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

added to directory using info from trike event and website - RC 20/7/17. Updated description and SM 17/11/20 AP. twitter, instagram removed AC 30/10/23

Last Updated
30/10/2023
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The Spinal Injuries Association (SIA)

Name
The Spinal Injuries Association (SIA)
Category
Condition(s)
Exclude All
No
Short Description
The Spinal Injuries Association (SIA) is a national user-led charity for spinal cord injured people.
Telephone Number
01908 604191 or 0800 980 0501
Website Address
https://www.spinal.co.uk/
Address
MK6 2HH
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

added text number, added contact name, changed fax number, and updated description. consent via email from Debbie - updated online 15/12/09 - EGRefresh project- email 1 sent 20.9.13, email response received from Helen on 25.9.13 with updated description on list of services- and removal of contact name -KC updated 10.10.13updated phone numbers using info from website -RC 31/8/16. instagram added AC 6/11/23

Last Contacted
12/09/2003
Last Updated
06/11/2023
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