RNC

Name
RNC
Category
Condition(s)
Exclude All
No
Short Description
A specialist residential college for young people with visual impairment
Telephone Number
01432 265 725 or 01432 376621
Website Address
https://www.rnc.ac.uk/
Address
HR1 1DT
Age Relevance
16+
Contact History

rEFRESH PROJECT- EMAIL 1 SENT 17.9.13, EMAIL 2 SENT 6.12.13. instagram, linkedin added AC 24/10/23

Last Contacted
12/06/2013
Last Updated
24/10/2023
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RNIB (The Royal National Institute of the Blind)

Name
RNIB (The Royal National Institute of the Blind)
Category
Condition(s)
Exclude All
No
Short Description
RNIB is committed to helping blind and partially sighted people
Telephone Number
0303 123 9999
Website Address
https://www.rnib.org.uk/
Age Relevance
4+, 7+, 11+, 16+
Contact History

Refresh Project- email 1 sent 17.9.13- will repsond soon- email 2 sent 21.11.13, email 2 re-sent 6.12.12Phone call made 24.3.14 (CM) - all details correct LMAdded link to page for young people, as unpublished Young RNIB. Also updated helpline number 21.5.14 LM

Last Contacted
27/03/2014
Last Updated
02/06/2023
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RNID

Name
RNID
Category
Condition(s)
Exclude All
No
Short Description
RNID is the only charity in the UK dedicated to helping deaf and hearing impaired people through medical research. It offers information and advice based upon the latest research.
Telephone Number
0808 808 0123
Website Address
https://rnid.org.uk/
Town
Slough
County
Berkshire
Address
SL1 4PY
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

changed email and web site - consent via email, updated online 7/01/10 - EGRefresh Project- email 1 17.9.13, email 2 sent 6.12.13Phone call made 28.3.14 (CM) - name of organisation changed. Address, telephone, website and email amended LMadded textphone line and updated formerly RNID - RC 25/8/16. Changed name back to RNID (after 10 years as Action on Hearing Loss 26/1/21. address added AC 24/10/23

Last Contacted
14/04/2014
Last Updated
24/10/2023
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Royal Society for Blind Children (RSBC)

Name
Royal Society for Blind Children (RSBC)
Category
Condition(s)
Exclude All
No
Short Description
Royal Society for Blind Children wants every blind child and their family to have skills and confidence to live life without limits
Telephone Number
0203 198 0225
Website Address
https://www.rsbc.org.uk/
Address
EC3R 6EN
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to email - consent via phone from Kerry - 29/3/10 -EGRefresh Project- email 1 sent 17.9.13, email 2 sent 6.12.13Phone call made 28.3.14 (CM) - address, phone number and email amended. Consider amending entry LMEntry amended from website, fax removed and name changed from 'society for the blind' 30.5.14 LMupdated address and phone number using info from website -RC 31/8/16

Last Contacted
14/04/2014
Last Updated
02/06/2023
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RTS Support Group

Name
RTS Support Group
Category
Condition(s)
Exclude All
No
Short Description
Rubinstein-Taybi Syndrome Support Group provides information and support to people affected by the syndrome and their families.
Telephone Number
01277 633915
Website Address
https://www.rtsuk.org.uk/
Town
Rickmansworth
Address
WD3 3ED
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

no change - consent via telephone - 3/3/10 - EGRefresh Project - email 1 sent 20.9.13 (BB) - no responsePhone message left 30.4.14 (AT)Information checked on website 18.6.14 - removed contact name and address LMadded address using info from website -RC 31/8/16

Last Contacted
18/06/2014
Last Updated
02/06/2023
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SANEline

Name
SANEline
Category
Condition(s)
Exclude All
No
Short Description
SANEline is a national mental health helpline (6pm to 11pm every day).
Telephone Number
0300 304 7000
Website Address
https://www.sane.org.uk/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Updated hours and added email by email 1.5.08Refresh project - Email 1 sent 20.9.13 (BB), email 2 sent 20.1.14 (LM) - no responsePhone call - 30.4.14 (AT) - no answer (out of hours?)Updated from website 18.6.14 - info correct but removed email as does not seem to offer email helpline anymore LMupdated phone number, website using info online - RC 26/8/16. facebook, instagram added AC 24/10/23

Last Contacted
18/06/2014
Last Updated
24/10/2023
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Scoliosis Support & Research

Name
Scoliosis Support & Research
Category
Condition(s)
Short Description
The UK's leading scoliosis charity for support and information.
Telephone Number
020 8964 1166
Website Address
https://ssr.org.uk/
Address
W10 6RA
Age Relevance
0+, 4+, 7+, 11+, 16+
Last Updated
16/10/2025
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Scope

Name
Scope
Category
Condition(s)
,
Exclude All
No
Short Description
Scope is the disability equality charity in England and Wales.
Telephone Number
0808 800 3333
Website Address
https://www.scope.org.uk/
Address
E15 2GW
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to description, added conatct name and change to address. Consent via post from Jayne. Updated 9/3/10 - EGRefresh Project 2013 - email 1 sent 20.9.13 BB, no response so email 2 sent 9.1.14 LMResponse received on 9.1.14 from Alison Davies. Jayne Wylde's name removed as contact 3.2.14 LM updated email and address using info from website - RC 10/8/16Updated 27/01/2017 to include befriending service PK. Address added AC 30/10/23

Last Contacted
01/09/2014
Last Updated
30/10/2023
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SEND Gateway

Name
SEND Gateway
Category
,
Exclude All
Yes
Short Description
SEND Gateway is an online portal offering education professionals free, easy access to high quality information, resources and training for meeting the needs of children with special educational needs and disabilities.
Telephone Number
01827 311500
Website Address
https://www.sendgateway.org.uk/
County
Amington
Address
B77 4RP
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

updated from weblink to directory entry - RC 14/9/16. Checked 8/12/20 AP. email, facebook updated, linkedin added AC 30/10/23

Last Updated
30/10/2023
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SENDirect

Name
SENDirect
Category
Exclude All
Yes
Short Description
SENDirect is a support and information directory that helps families find activities and support that suit their interests, preferences, lifestyle and budgets.
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Moved from useful links to own entry - 30.10.17 BB. removed website AC 30/10/23

Last Contacted
30/10/2017
Last Updated
30/10/2023
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SEND Parents Help

Name
SEND Parents Help
Category
Condition(s)
, , , , , , , ,
Short Description
A parent-created AI assistant in ChatGPT that helps families in England navigate EHCPs, disability benefits, school support and other SEND processes.
Website Address
https://sendparentshelp.com/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Submitted by owner - Nov 2026. AP

Last Updated
03/11/2026
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Sensory Help Now

Name
Sensory Help Now
Category
,
Condition(s)
,
Short Description
Sensory Help Now is a supportive UK online community of parents and carers with sensory integration qualified therapists on hand to answer your queries and concerns.
Website Address
https://helpnow.sensoryintegrationeducation.com/
Age Relevance
0+, 4+, 7+, 11+, 16+
Last Updated
04/04/2024
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Sensory Processing Disorder Resource Centre

Name
Sensory Processing Disorder Resource Centre
Category
Condition(s)
Exclude All
No
Short Description
The Sensory Processing Disorder (SPD) Resource Centre provides information for those seeking further information about SPD.
Website Address
https://www.sensory-processing-disorder.com/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

updated from weblink to directory entry -RC 12/9/16

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Shelter

Name
Shelter
Category
Exclude All
Yes
Short Description
Shelter is a national freephone helpline for people with any sort of housing related problems. The Helpline is open from 8.00am to 8.00pm Monday to Friday and 8.00am to 5.00pm Saturday and Sunday.
Telephone Number
0300 330 1234
Website Address
https://www.shelter.org.uk/
Address
EC1V 9HU
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

changed tel, fax and msn - phoned consent - 2/12/09 Adress added - consent via email - updated online 14/12/09 - EGRefresh project- email 1 sent 19.9.13, email response received 19.9.13 from Matt Knight with new helpine openings times- KC updated 28.10.13. instagram added AC 30/10/23

Last Contacted
28/10/2013
Last Updated
30/10/2023
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SHINE – (Spina Bifida Hydrocephalus Information Networking Equality)

Name
SHINE – (Spina Bifida Hydrocephalus Information Networking Equality)
Category
Condition(s)
Exclude All
No
Short Description
Shine provides specialist support from before birth and throughout the life of anyone living with spina bifida and/or hydrocephalus, as well as to parents, families, carers and professional health and social care staff.
Telephone Number
01733 555988
Website Address
https://www.shinecharity.org.uk/
Address
PE2 6FT
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Gained consent from Tom Scott via Louise Tyler in email on 14.5.13 added by KC on 5.6.13Refresh Project email 1 sent 20.9.13, email response received from Shirley on 20.9.13 stating details correct- KC updated 25.10.13. email, phone updated AC 30/10/23

Last Contacted
25/10/2013
Last Updated
30/10/2023
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ShopMobility UK

Name
ShopMobility UK
Category
,
Exclude All
Yes
Short Description
Shopmobility UK exists to support and promote its affiliated schemes to existing and potential customers. Search for local schemes via the website.
Website Address
https://www.shopmobilityuk.org/
Town
Moresk Road
Address
TR1 1DG
Age Relevance
16+
Contact History

Refresh Project - new entry added 1.7.14 following research online by JH LM. Contacted by Laura Bryant 3/8/21 with updates. KBa. address updated, email removed AC 30/10/23

Last Contacted
04/08/2021
Last Updated
04/08/2021
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Sibs

Name
Sibs
Category
,
Exclude All
Yes
Short Description
Sibs is a charity representing the needs of siblings of disabled people. Sibs provides support for siblings of all ages who are growing up with or who have grown up with a brother or sister with any disability.
Telephone Number
01535 645453
Website Address
https://www.sibs.org.uk/
Town
Oxenhope
Address
BD22 9JZ
Age Relevance
4+, 7+, 11+, 16+
Contact History

KLB EMAILED FOR CONSENT IN 2015- NO RESPONSE SO USED WEB FOR INFO AND PUBLISHED 12.4.16
Lyndsey Judge (Database and Admin Support Officer) emailed info@ to change the address - 09.05.23 (CN)

Last Contacted
04/12/2016
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Sickle Cell Society

Name
Sickle Cell Society
Category
Condition(s)
Exclude All
No
Short Description
Sickle Cell Society is a national organisation whose principle aim is to advocate for the provision of services for those affected by sickle cell.
Telephone Number
020 8961 7795
Website Address
https://www.sicklecellsociety.org/
Address
NW10 4UA
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project - Phone call made 30.4.14 (AT) - no changes LMadded fax number using info from website -RC 31/8/16

Last Contacted
05/12/2014
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Sift  (formerly Self injury Support) 

Name
Sift  (formerly Self injury Support) 
Category
Exclude All
Yes
Short Description
The UK's leading self-harm support charity.
Telephone Number
 0808 800 8088 or Text support: 07537 432 444
Website Address
https://sift.org.uk/
Address
BS2 8DJ
Age Relevance
7+, 11+, 16+
Contact History

Moved from useful links to own entry - 30.10.17 BB. facebook, instagram, linkedin, address added AC 30/10/23. Amendments suggested by Aimee Blakemore at Sift. 8/6/26. Amended by AP 9/6/26

Last Contacted
30/10/2017
Last Updated
09/06/2026
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Signalong

Name
Signalong
Category
,
Condition(s)
, ,
Exclude All
No
Short Description
Signalong is a sign-supporting system based on British Sign Language intended to promote communication in learning disabilities and autism.
Telephone Number
0330 1200770
Website Address
https://www.signalong.org.uk/
Address
NR10 4FE
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

added contact name, changed tel, added fax, changed description. Consent via email from Mike, updated online 13/1/10 - EGRefresh Project 2013 - Email 1 sent 24.9.13 (BB), email 2 sent 9.1.14, no response.Phone call made 1.4.14 - Contact name changed (Mike Kennard retiring) LMEmail from Sharon Rose 30.7.14 informing new contact details. Updated 31.7.14 LMupdated email address using info from website - RC 4/8/16

Last Contacted
04/03/2014
Last Updated
19/01/2021
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