SNAP Care (Special Needs Agency Partnership)

Name
SNAP Care (Special Needs Agency Partnership)
Category
,
Exclude All
Yes
Short Description
SNAP Care is a nationwide specialist recruitment agency that places special needs nannies, enablers, buddies and carers to support families with children, young people and adults who have special needs and disabilities.
Telephone Number
020 7729 2200
Website Address
https://www.snapcare.co.uk/
Town
Shoreditch
Address
EC2A 3HZ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

SNAP 16+ details added - consent via post from Sally Britton. Updated 23/3/10 - EGRefresh Project 2013 - phone call made (BB) all details correct  28.2.14 LMUpdated from email/newsletter 31.10.16. Changed name from SNAP Childcare. Change of website & email, description.  AP 8.11.16. facebook, instagram, linkedin added, twitter updated AC 30/10/23

Last Contacted
11/08/2016
Last Updated
30/10/2023
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SOFT UK (Support Organisation for Trisomy 13/18 & Related Disorders)

Name
SOFT UK (Support Organisation for Trisomy 13/18 & Related Disorders)
Category
Condition(s)
Exclude All
No
Short Description
SOFT UK (Support Organisation for Trisomy 13/18 & Related Disorders) welcomes families affected by related disorders and rare conditions for whom no other organisation exists.
Telephone Number
0300 102 7638
Website Address
https://www.soft.org.uk/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project - Phone call made 30.4.14 (AT) all info up to date LM. phone, instagram added AC 30/10/23

Last Contacted
05/12/2014
Last Updated
30/10/2023
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Special Kids in the UK

Name
Special Kids in the UK
Category
Exclude All
Yes
Short Description
Special Kids in the UK is a charity and online support group for families who have children and young people with special needs, who often deal with similar challenges and concerns.
Telephone Number
07876 796453
Website Address
https://specialkidsintheuk.org/
Address
EN1 9TH
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Googlewhack - added 26th April, consent via email from Sandy Braithwaite, Trustee - EGRefresh project- details checked correct online on 10.12.13 - KC updated updated email address and phone number using info from website - RC 25/07/2016. facebook, twitter removed AC 30/10/23

Last Contacted
12/10/2013
Last Updated
30/10/2023
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Special Needs Jungle

Name
Special Needs Jungle
Category
Exclude All
Yes
Short Description
Special Needs Jungle is a blog and resource aimed at parents and those who work with children affected by SEN, special needs, disabilities or who have a physical or mental health condition of any type, especially rare diseases.
Website Address
https://specialneedsjungle.com/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

updated from weblink to directory entry - RC 8/9/16

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Speech and Language UK (formerly I CAN)

Name
Speech and Language UK (formerly I CAN)
Category
Condition(s)
Exclude All
No
Short Description
Giving families the confidence and skills to help a child​ facing challenges with talking and understanding words.
Telephone Number
020 7843 2544
Website Address
https://speechandlanguage.org.uk/
Address
EC1V 2PT
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Email from Eve Wagg to change address 16.4.07 Removed contact name - consent via phone gfrom Patrick - 22/3/10 - EGRefresh Project 2013 - Email 1 sent 24.9.13 (BB), email 2 sent 9.1.14. Phone call made 1.4.14 - all details remain correct LMupdated address and email address using info from website -RC 31/8/16. Changed name from I CAN 21/10/22 Jane Harris AP

Last Contacted
04/03/2014
Last Updated
21/10/2022
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SSAFA The Armed Forces Charity (Essex Branch)

Name
SSAFA The Armed Forces Charity (Essex Branch)
Category
,
Exclude All
Yes
Short Description
SSAFA provides lifelong support to anyone who is currently serving or has ever served in the Royal Navy, British Army or Royal Air Force.
Telephone Number
0204 566 9129
Website Address
https://www.ssafa.org.uk/essex
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project- phonecall 1 made 10.12.13 BB gained consent from Jane Barns for name change from FORCES SPECIAL NEEDS DISABILITY SUPPORT GROUp to ADDITIONAL NEEDS AND DISABILITY ADVISER, address updated, web updated - KC 10.12.13 Removed website as link didn't work and cannot find replacement - RC 20/07/2016Rewrote entry. Renamed back to SSAFA. Gave Essex branch contacts. Taken from website. 23/6/17 AP. phone, facebook, instagram updated AC 30/10/23

Last Contacted
23/06/2017
Last Updated
30/10/2023
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STAMMA

Name
STAMMA
Category
Condition(s)
Exclude All
No
Short Description
The UK charity for people who stammer and those who support them.
Telephone Number
0808 802 0002
Website Address
https://stamma.org/
Address
WC2E 9HA
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project 2013 - Email 1 sent 23.9.13 (BB), email 2 sent 9.1.14. Phone call made - all details still correct LM . Complete refresh from Website. 20/8/21 AP. address, facebook updated AC 30/10/23

Last Contacted
04/03/2014
Last Updated
30/10/2023
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Stem4

Name
Stem4
Category
,
Condition(s)
,
Exclude All
No
Short Description
Stem4 offers support through the website and is for young people with eating disorders, depression and anxiety, self-harm and addiction.
Website Address
https://stem4.org.uk/
County
London
Address
S19 7JY
Age Relevance
11+, 16+
Contact History

28/5/26 changed address from 51 St George’s Rd, Wimbledon, London
SW19 4EA AT

onsent sought but not returned. Published as all information in the public domain PK 15.09.15. Added address using info from website - RC 18/07/2016. address updated AC 30/10/23

Last Contacted
15/09/2015
Last Updated
30/10/2023
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Steps Charity Worldwide

Name
Steps Charity Worldwide
Category
Condition(s)
Exclude All
No
Short Description
Steps Charity Worldwide is a charity dedicated to anyone affected by clubfoot, hip dysplasia and other lower limb conditions. Steps provides information and support and campaign for improved standards of care.
Telephone Number
01925 750271
Website Address
https://www.steps-charity.org.uk/
County
Warrington
Address
WA4 6hl
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

discription changed, helpline changed, contact naem added. consent via post from Anna. updated online 7/01/10 - EGRefresh Project - Phone call made 28.3.14 (CM) - address amended LMupdated address using info from website - RC 26/8/16. phone added AC 30/10/23

Last Contacted
04/08/2014
Last Updated
30/10/2023
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SWAN (Syndromes Without A Name) UK

Name
SWAN (Syndromes Without A Name) UK
Category
Condition(s)
Exclude All
No
Short Description
SWAN offers support and information to families of children with undiagnosed genetic disorders.
Telephone Number
0300 124 0441
Website Address
https://geneticalliance.org.uk/support-and-information/swan-uk-syndromes-without-a-name/
Town
436 Essex Road
Address
N1 3QP
Age Relevance
0+, 4+, 7+, 11+
Contact History

Gained consent via email from Lauren Roberts on 20.5.13 added on 3.6.13 by KCRefresh project  - Phone call 30.4.14 (AT) - no change LMUpdated email address using info from website - RC 17/08/2016. Changed web address 8/9/26 AP

Last Contacted
05/12/2014
Last Updated
08/09/2026
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Talk About Autism

Name
Talk About Autism
Category
Condition(s)
Exclude All
No
Short Description
Talk About Autism is the UK's largest online autism community. The online forum is monitored and the community is very supportive with discussions about anything related to autism.
Telephone Number
0208 815 5444
Website Address
https://www.ambitiousaboutautism.org.uk/talk-about-autism
County
N10 3JA
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

updated from weblink to directory entry -RC 8/9/16. email updated AC 6/11/23

Last Updated
06/11/2023
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Teenage Cancer Trust

Name
Teenage Cancer Trust
Category
Condition(s)
Exclude All
No
Short Description
Teenage Cancer Trust is a charity devoted to improving the lives of young people with cancer, which believes that teenagers should not stop being teenagers because they have cancer.
Telephone Number
020 7612 0370
Website Address
https://www.teenagecancertrust.org/
Address
WC1V 7AA
Age Relevance
11+, 16+
Contact History

information changed: tel, fax, address and description. consent via email from Sarah Henderson - 23/3/10 - EGRefresh Project 2013 - email 1 sent 20.9.13 BB, no response so email 2 sent 20.1.14Response received on 20.1.14 from Carol Maughan. Email address changed and content of text 5.2.14 LM. address updated AC 6/11/23

Last Contacted
20/01/2014
Last Updated
06/11/2023
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Telephone Directory Enquiry Service

Name
Telephone Directory Enquiry Service
Category
Exclude All
Yes
Short Description
Telephone Directory Enquiry Service offers a free directory enquiry service for people who are registered blind or partially sighted.
Telephone Number
0800 587 0195
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

rEFRESH PROJECT- BB made phonecall 1 on 9.12.13 need to add more details of process to application and add phone/email/web- KC updated 9.9.13. email removed AC 6/11/23

Last Contacted
12/09/2013
Last Updated
06/11/2023
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The Birthmark Support Group

Name
The Birthmark Support Group
Category
Condition(s)
Exclude All
No
Short Description
The Birthmark Support Group provides a UK based support group for anyone with a birthmark. The Birthmark Support Group has a comprehensive website of medical help, information and links.
Telephone Number
07825 855 888
Website Address
https://www.birthmarksupportgroup.org.uk/
Address
WC1N 3XX
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to address and removed fax number - consent via email from Alana - 14/4/10 - EGRefresh Project- email 1 sent 19.9.13, email received on 20.9.13 from Jo to ask for telephone number update - KC updated 20.9.13

Last Contacted
04/10/2014
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The Birth Trauma Association

Name
The Birth Trauma Association
Category
Exclude All
Yes
Short Description
The Birth Trauma Association supports all women who have had a traumatic birth experience. They offer emotional and practical support to women and their families. Email via the website
Telephone Number
01264 86038
Website Address
https://www.birthtraumaassociation.org.uk/
County
Derbyshire
Address
DE5 9AQ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Published PK 25/01/2017 information taken from website. email added AC 6/11/23

Last Contacted
25/01/2017
Last Updated
06/11/2023
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The Brain Tumour Charity

Name
The Brain Tumour Charity
Category
Condition(s)
Exclude All
No
Short Description
The Brain Tumour Charity is the UK's largest dedicated brain tumour charity, committed to fighting brain tumours on all fronts.
Telephone Number
01252 749990 or 0808 800 0004 (helpline)
Website Address
https://www.thebraintumourcharity.org/
County
Hampshire
Address
GU14 7PA
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Consent given 7/6/10 by Moira Dennison (Head of support services). ARRefresh Project- email 1 sent 19.9.13- bounceback, email 2 sent via web form 30.10.13, email response received on 30.10.13 from Cameron Miller stating that Brain Tumour UK is now The Brain Tumour Charity with new address contact details and description- KC updated 31.10.13. phone updated AC 6/11/23

Last Contacted
30/10/2013
Last Updated
06/11/2023
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The British Deaf Association

Name
The British Deaf Association
Category
Condition(s)
Exclude All
No
Short Description
The British Deaf Association advances the rights and interests of deaf people in the UK.
Telephone Number
0207 697 4140
Website Address
https://bda.org.uk/
Address
N4 2HE
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project- Email 1 sent 17.9.13, email response received on 27.9.13 from  Sallyann Nason with updated details (phone, address, website and also fax removed) - KC updated 3/10/13updated phone number and email address using info from website - RC 26/8/16. address updated AC 6/11/23

Last Contacted
03/10/2029
Last Updated
06/11/2023
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The British Dyslexia Association

Name
The British Dyslexia Association
Category
Condition(s)
Exclude All
No
Short Description
The British Dyslexia Association is an open membership organisation, offering advice, information and support to dyslexic people, their families and the professionals who support them.
Telephone Number
0333 405 4555 or 0333 405 4567 (helpline)
Website Address
https://www.bdadyslexia.org.uk/
Address
RG12 8FB
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to all contact details - awaiting final consent - 8/3/10 - EGRefresh Project- email 1 sent 10.9.13, email response received on 10.9.13 from Helpline stating all details correct- KC updated 18.9.13updated phone number - RC 17/8/16. phone, address updated, instagram, linkedin added AC 6/11/23

Last Contacted
18/11/2013
Last Updated
06/11/2023
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The Child Growth Foundation

Name
The Child Growth Foundation
Category
Condition(s)
Exclude All
No
Short Description
The Child Growth Foundation provides information, advice and support to families of children with growth disorders.
Telephone Number
020 8995 0257 or 020 8798 2139
Website Address
https://www.childgrowthfoundation.org/
Town
Redburn Road
Address
NE5 1NB
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

added contact name, added helpline, added to address (Chiswick) consent via email from Jenny - update online 17/12/09 - EGRefresh Project 2013 - email 1 sent 20.9.13 BB, no response so email 2 sent 9.1.14Response received on 9.1.14 from Jenny. Slight change to email address LMupdated phone numbers and address using info from website - RC 25/8/16. email, phone, address, facebook, twitter, instagram updated AC 6/11/23

Last Contacted
09/10/2013
Last Updated
06/11/2023
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The Children’s Society

Name
The Children’s Society
Category
Exclude All
Yes
Short Description
The Children's Society is a national charity that runs local projects, helping children and young people when they are at their most vulnerable or at risk. Parenting groups are available in Essex.
Telephone Number
0300 303 7000
Website Address
https://www.childrenssociety.org.uk/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Information from literature and website PK 16.12.15. email, phone updated AC 6/11/23

Last Contacted
16/12/2015
Last Updated
06/11/2023
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