Carers Unite
Short Description
Support groups at Southend Mencap for parent carers of children and young people, or young adults with additional needs.
Telephone Number
07581 388667
Town
Southend-on-Sea
County
Essex
Address
SS1 1PG
Age Relevance
0+, 4+, 7+, 11+, 16+
Last Updated
26/10/2023
Condition(s)
Exclude All
No
Short Description
The UK's leading member-led epilepsy charity. Providing information and support for anyone affected by epilepsy
Telephone Number
0113 210 8800
Address
LS19 7XY
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Barbara Hoare deleted as contact as requested by email 17.3.09 Sue Furley 18.3.09Refresh Project - Email 1 sent 19.9.13 (BB), email 2 sent 17.1.14. Response received 23.4.14 from Louise Cousins. East Herts & West Essex brand details removed and Tendring branch contact name and telephone number changed LM. phone, email updated, address added AC 2/10/23

Last Contacted
23/04/2014
Last Updated
02/10/2023
Condition(s)
Exclude All
No
Short Description
The UK’s only charity transforming the lives of people with epilepsy through world-leading research, advocacy and care.
Telephone Number
01494 601400
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to website - consent via phone - researched by Sarah - 23/3/10 - EGRefresh Project - Phone call made 30.4.14 (AT) - name changed from NSE to Epilepsy Society and helpline times changed LM. Changed from website AP 24/6/22

Last Contacted
05/12/2014
Last Updated
24/06/2022
Exclude All
No
Short Description
Home From Home Care is a family-led company which provides specialist residential service for adults (17+) with complex needs.
Telephone Number
0800 587 0372
Age Relevance
16+
Contact History

PK 20/05/2016 information taken from website therefore no consent sought Updated description, contact deatils name/number/email, consent given by Amelia Mochan on 31.5.16- KLB updated 22.6.16Phone no. amended in line with website PH 15/7/16 . email updated, instagram added AC 9/10/23

Last Contacted
22/06/2016
Last Updated
09/10/2023
Condition(s)
Exclude All
No
Short Description
Organisation for Anti-Convulsant Syndrome (OACS) aims to provide help and support to children and their families affected by anti-epilepsy medications taken by mothers during pregnancy.
Telephone Number
07904 200364
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Update to description - consent gained via post from Janet. Updated online 5/2/10 -EGRefresh Project 2013 - email 1 sent 20.9.13 BB, no response so email 2 sent 20.1.14Response received on 21.1.14 from Steve Pollard. New contact name, address and telephone numbers. Updated 5.2.14 LM

Last Contacted
21/01/2014
Last Updated
01/06/2023
Condition(s)
Exclude All
No
Short Description
Young Epilepsy is a charity based in Surrey, providing specialised services including a specialist school and college, medical assessment, therapy, outreach support and research.
Telephone Number
01342 832243
County
Surrey
Address
RH7 6PW
Age Relevance
11+, 16+
Contact History

change to tel - consent via phone - researched by sarah - 23/3/10 - EG Updated entry - new name - from Epilepsy Action newsletter. 23/3/12 - APRefresh Project- Email 1 sent 20.9.13, email response received on 24.9.13 from Elin Gustafsson confirming all details correct- KC updated 14.10.13added details of  the connect project as informed by  Jeanenne Corderoy on 10.12.15, added counselling category and Essex location tag. Updated contact details 6.10.2020. email, phone updated AC 13/11/23

Last Contacted
15/12/2015
Last Updated
13/11/2023