Angelman UK

Name
Angelman UK
Category
Condition(s)
Exclude All
No
Short Description
Angelman UK supports families and carers with children, young people and adults with Angelman syndrome.
Telephone Number
0300 999 0102
Website Address
https://www.angelmanuk.org/
Address
CV11 9FD
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Tel and address updated 8.7.09 Sue FRefresh Project 2013 - email 1 sent 19.9.13 BB, no response so email 2 sent 16.1.14Response received on 16.1.14 from Lisa Court confirming all details correct LM Updated email address from [email protected] to [email protected] using information from the website - RC 19/07/2016

Last Contacted
16/01/2014
Last Updated
18/06/2021
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Anna Kennedy Online

Name
Anna Kennedy Online
Category
Condition(s)
Exclude All
No
Short Description
Anna Kennedy Online is dedicated to promoting the inclusion and equality of children and adults with an autism spectrum condition throughout society.
Telephone Number
01895 540187
Website Address
https://annakennedyonline.com/
Address
UB8 2FX
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

 Gained consent via Anna Kennedy OBE on 28 October 2015 via Nicki Rodriguez' email to KB- KLB published on 30.10.15updated phone numbers using info online - RC 1/8/16. updated email, phone number, address AC 13/9/2023

Last Contacted
30/10/2015
Last Updated
13/09/2023
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Anti-Bullying Alliance

Name
Anti-Bullying Alliance
Category
Exclude All
Yes
Short Description
Anti-Bullying Alliance is hosted by the National Children's Bureau and provides advice and resources for many different types of bullying via their website.
Website Address
http://www.anti-bullyingalliance.org.uk/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Information taken from website so no consent sought. PK 18/05/2016.

Last Contacted
18/05/2016
Last Updated
05/03/2021
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Anxiety UK

Name
Anxiety UK
Category
Condition(s)
Exclude All
No
Short Description
Anxiety UK is a national organisation run by and for those with anxiety, to offer support and find ways to control anxiety.
Telephone Number
03444 775 774
Website Address
https://www.anxietyuk.org.uk/
Address
M16 9HA
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to organisation name, tel, fax and description - consent via phone - 19/3/10 - EGRefresh project- email 1 sent 19.9.13, email response received from Leanne Traynor on 25.9.13 with new address- KC updated 4/10/13updated email address and phone number using info from website - RC 1/8/16. updated email AC 13/9/23

Last Contacted
03/10/2019
Last Updated
13/09/2023
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ARC (Antenatal Results & Choices)

Name
ARC (Antenatal Results & Choices)
Category
Exclude All
Yes
Short Description
ARC offers a national helpline providing parents with access to confidential information and offers continued support to the parents whatever decision they make about the future of the pregnancy.
Telephone Number
0207 713 7486
Website Address
http://www.arc-uk.org/
Address
W1H 1LX
Age Relevance
0+
Contact History

Refresh Project 2013 - Email 1 sent 18.9.13 BB, no response so email 2 sent 7.1.14 LMResponse received 7.1.14 from Louise Pye. Changes made to text, address, telephone numbers and fax removed 30.1.14 LM

Last Contacted
01/07/2014
Last Updated
05/03/2021
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ARCOS (The Association for Rehabilitation of Communication & Oral Skills)

Name
ARCOS (The Association for Rehabilitation of Communication & Oral Skills)
Category
Condition(s)
Exclude All
No
Short Description
ARCOS exists to improve life for children and adults who have a disrupted sensation and movement, difficulties in communication and/or swallowing.
Telephone Number
01684 576795
Website Address
http://www.arcos.org.uk/
County
Worcestershire
Address
WR14 3AG
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project- email 1 sent on 23.9.13- bounceback, email 2 sent to new email on webiste on 23.9.13 - updated email address-KCPhone call made 1.4.14 - Address changed and helpline removed LMentry updated 2/12/14 as KB spoke to a parent at sensorise who had funding for a wheelchair from ARCOS, info now updateD - KC

Last Contacted
04/03/2014
Last Updated
05/03/2021
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ARFID Awareness UK

Name
ARFID Awareness UK
Category
Condition(s)
Short Description
Information and resources relating to Avoidant Restrictive Food Intake Disorder.
Website Address
https://www.arfidawarenessuk.org/
Age Relevance
0+, 4+, 7+, 11+, 16+
Last Updated
15/05/2025
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Arthritis Action

Name
Arthritis Action
Category
Condition(s)
Exclude All
No
Short Description
Arthritis Action is the only UK charity giving hands-on, practical help to combat the pain of arthritis through self-management and lifestyle advice.
Telephone Number
02037 817120
Website Address
https://www.arthritisaction.org.uk/
Address
SW1E 6AE
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Original submission from Richard Congdon 29/11/2015 wording changed to be more in line with website wording. PK 06/01/2016Added an address, added extra phone number and  changed email from [email protected] to [email protected] - using information from the website - RC 18/07/16

Last Contacted
01/06/2016
Last Updated
05/03/2021
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ASD Therapy – The Therapy Room Cambridge

Name
ASD Therapy – The Therapy Room Cambridge
Category
,
Condition(s)
Exclude All
No
Short Description
David Moat is an experienced practitioner in autism and Asperger syndrome and delivers training, advice, psychotherapy and hypnotherapy services for individuals with autistic spectrum disorders and their families and carers.
Telephone Number
01223 315 400
Website Address
https://thetherapyroomcambridge.co.uk/autism/
Address
CB4 3PH
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Updated with new address by email 21.10.08 from David. Telephone and address updated. consent by email from David - 18/11/09Refresh Project- email 1 sent 9.9.13, email response received on 9.9.13 from David Moat with updated description to include publications, tel, web and address- KC updated 19.11.13 updated email address using info from website - RC 1/8/16

Last Contacted
19/11/2013
Last Updated
18/06/2021
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Asperger East Anglia

Name
Asperger East Anglia
Category
Condition(s)
Exclude All
No
Short Description
Asperger East Anglia is a registered charity that provides services to people with Asperger Syndrome and High Functioning Autism of all ages.
Telephone Number
01603 620500
Website Address
http://www.asperger.org.uk/
County
Norfolk
Address
NR2 1DN
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to address, change to description - consent via phone, updated online 18/01/10 - EGRefresh Project- email 1 sent 9.9.13 no response-  email 2 sent 25.11.13Phone call made 14.3.14 (CM) - slight amendments to text LM

Last Contacted
14/04/2014
Last Updated
18/06/2021
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Asthma + Lung UK (formerly The British Lung Foundation)

Name
Asthma + Lung UK (formerly The British Lung Foundation)
Category
Condition(s)
Exclude All
No
Short Description
The UK's lung health charity, fighting for your right to breathe.
Telephone Number
0300 222 5800
Website Address
https://www.asthmaandlung.org.uk/
Address
E1 8QS
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

update to description - consent via email from Mark - updated online 17/12/09 - EGRefresh Project 2013 - email 1 sent 20.9.13 BB, no response so email 2 sent 20.1.14Response received 20.1.14 from Mark Pilling. Changed address, email and telephone number 5.2.14 LMupdated address using info from website -RC 26/8/16. phone, email, address, facebook, twitter, instagram, name updated AC 6/11/23. Changed name and updated 20.2.24 AP

Last Contacted
20/01/2014
Last Updated
20/02/2024
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Aukids Magazine

Name
Aukids Magazine
Category
Condition(s)
Exclude All
No
Short Description
Aukids Magazine provides information, encouragement and support for parents of children with autism spectrum conditions.
Website Address
https://www.aukids.co.uk/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

updated from weblink to directory entry - 6/9/16

Last Updated
18/06/2021
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Autism Independent UK

Name
Autism Independent UK
Category
Condition(s)
Exclude All
No
Short Description
Autism Independent UK helps to increase awareness of autism to the notice of all, together with well established and newly developed approaches in the diagnosis, assessment, education and treatment.
Telephone Number
01536 523274
Website Address
https://www.autismuk.com/
Town
Kettering
Address
NN16 9AT
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project- email 1 sent 9.9.13- bounceback incorrect email, email 2 sent on 14.11.13 to [email protected], email updated 14.11.13 email response received on 20.11.13 from Keith Lovett stating all details correct- KC updated 21.11,13. Updated details 16/7/2021 AP

Last Contacted
21/11/2013
Last Updated
16/07/2021
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Autism Initiatives UK

Name
Autism Initiatives UK
Category
Condition(s)
Exclude All
No
Short Description
Autism Initiatives UK aims to meet the needs of people with autism, their families and carers. Autism Initiatives UK also provides supported living, residential accommodation, day opportunities, respite care and community support.
Telephone Number
0151 330 9500
Website Address
http://www.autisminitiatives.org/
Town
Bootle
County
Merseyside
Address
L30 4XR
Age Relevance
4+, 7+, 11+, 16+
Contact History

change to: email, address, tel, fax and description. Consent via email from Keith, updated online 18/01/10 - EG Refresh Project- email 1 sent 9.9.13, email response received on 23.9.13 from Susan Murphy with updated description - KC made changes on 24.9.13updated email address using info from website - RC 1/8/16

Last Contacted
01/10/2018
Last Updated
16/07/2021
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Autism Research Centre (ARC)

Name
Autism Research Centre (ARC)
Category
,
Condition(s)
Exclude All
No
Short Description
Autism Research Centre provides scientific research into the causes of autism and developing new and validating current methods for assessment and intervention.
Telephone Number
01223 603146
Website Address
https://www.autismresearchcentre.com/
Address
CB2 8AH
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Changed phone number 15/12/2020 AP

Last Updated
16/07/2021
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Autism Understood

Name
Autism Understood
Category
Condition(s)
Short Description
A website about autism for autistic young people.
Website Address
https://autismunderstood.co.uk/
Age Relevance
7+, 11+, 16+
Last Updated
03/04/2025
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Barnardo’s

Name
Barnardo’s
Category
, ,
Exclude All
Yes
Short Description
Barnardo's helps almost 120,000 children, young people and their families who face issues such as disability, abuse, homelessness and family bereavement.
Website Address
http://www.barnardos.org.uk/
Town
Crawley
County
West Sussex
Address
RH10 9NE
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project- email 1 sent 18.9.13- bounceback, email 2 sent via web form on 31.10.13No answer on phone, info checked on website - all correct, except contact name removed and email changed LMUpdated by PK 05/08/2016 following research from APUpdated website as link not working - RC 14/7/17. removed phone number AC 13/9/23

Last Contacted
31/10/2013
Last Updated
13/09/2023
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BASIS (formerly known as The Pavis Foundation)

Name
BASIS (formerly known as The Pavis Foundation)
Category
Condition(s)
Exclude All
No
Short Description
BASIS (Blind and Sight Impaired Society) works to assist people with sight loss to be as independent as possible. Confidence is built up through various activities that take place in and out of their resource centre.
Telephone Number
01268 522817
Website Address
http://www.basissouthessex.org.uk/
County
Essex
Address
SS16 5BP
Age Relevance
16+
Contact History

changed description, updated contact name - consent via email from Jane. Updated online 4/01/10 - EG.Refresh project- email 1 sent 17.9.13, email 2 sent 6.12.13Response received 8.12.13 via email. Name of organisation changed, plus change of text. LM (27.1.14) added website link -RC 31/8/16. Email updated AC 13/9/23

Last Contacted
12/08/2013
Last Updated
13/09/2023
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Beat Eating Disorders

Name
Beat Eating Disorders
Category
Condition(s)
Exclude All
No
Short Description
Beat is the UK's eating disorder charity.
Telephone Number
0808 801 0677
Website Address
https://www.beateatingdisorders.org.uk/
County
Norfolk
Address
NR1 1SZ
Age Relevance
4+, 7+, 11+, 16+
Contact History

change of name, address, added youthline, change of email, web and description. consent via email from Sue - updated online 15/12/09 - EGRefresh project- email 1 sent 19.9.13, email response received 20.9.13 from leanne stating opening hours are incorrect, direct to website for opening hours- Updates made 25.10.13 updated email address and phone numbers using info from website - RC 24/08/2016

Last Contacted
25/10/2013
Last Updated
23/07/2021
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BIBIC (The British Institute for Brain Injured Children)

Name
BIBIC (The British Institute for Brain Injured Children)
Category
Exclude All
No
Short Description
Bibic provides life-changing therapies and services for children, young people and their families living with disabilities and developmental conditions.
Telephone Number
01458 253344
Website Address
http://bibic.org.uk/
County
Somerset
Address
TA10 9SJ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project - Phone call 29.4.14 (AT). New telephone number and address LM. facebook updated AC 13/9/23

Last Contacted
05/09/2014
Last Updated
13/09/2023
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