The Mix

Name
The Mix
Category
,
Exclude All
Yes
Short Description
The Mix is a UK based charity that provides free, confidential support for young people under 25 via online and social.
Website Address
https://www.themix.org.uk/
Age Relevance
16+
Contact History

updated from weblink to directory entry - 5/9/16. Updated the whole entry 6.10.20 AP. address updated AC 6/11/23. Removed address 15.5.26 AP. Removed helpline 30/6/26 AP

Last Updated
30/06/2026
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The MS Society

Name
The MS Society
Category
Condition(s)
Exclude All
No
Short Description
The MS Society is the UK's largest charity for people affected by multiple sclerosis. The Society funds MS research and provides education and training on MS.
Telephone Number
020 8438 0700
Website Address
https://www.mssociety.org.uk/
Address
N4 3FU
Age Relevance
7+, 11+, 16+
Contact History

GOOGLEWHACK - 5/3/10Refresh Project: Phone call made 30.4.14 (AT) - helpline added and 'respite care centres' removed form entry LMadded email address using info from website - RC 3/8/16. address updated AC 6/11/23

Last Contacted
05/12/2014
Last Updated
06/11/2023
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The National Autistic Society (NAS)

Name
The National Autistic Society (NAS)
Category
Condition(s)
Exclude All
No
Short Description
The National Autistic Society (NAS) is the UK's foremost charitable organisation for people with autistic spectrum disorders including Asperger syndrome.
Telephone Number
0207 833 2299
Website Address
https://www.autism.org.uk/
Address
EC1V 1NG
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Telephone numbers updated - given from AP, consent from NASRefresh Project- email 1 sent 9.9.13, email response received from NAS on 9.9.13 stating all details correct- KC updated 21.11.13. phone added AC 6/11/23

Last Contacted
21/11/2013
Last Updated
06/11/2023
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The National Organisation of Rare Disorders (NORD)

Name
The National Organisation of Rare Disorders (NORD)
Category
Condition(s)
Exclude All
No
Short Description
The National Organisation of Rare Disorders (NORD) is a federation of individuals and patient organisations providing advocacy, research support, educational services, and patient assistance programs on behalf of the rare disease community.
Website Address
https://rarediseases.org/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

updated from weblink to directory entry - RC 13/9/16

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The Prader-Willi Syndrome Association UK (PWSA UK)

Name
The Prader-Willi Syndrome Association UK (PWSA UK)
Category
Condition(s)
Exclude All
No
Short Description
The Prader-Willi Syndrome Association UK provides support and information for parents and carers, promotes knowledge and awareness of the syndrome amongst professionals and aims to improve the quality of care given to people with PWS.
Telephone Number
01332 365676
Website Address
https://www.pwsa.co.uk/
Town
Moulton Park
Address
NN3 6RX
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

changed email - consent gained via post - updated online 7/01/10 - EGRefresh Project 2013 - email 1 sent 20.9.13 BB, no response so email 2 sent 20.1.14Response received from Maggie Rowley on 20.1.14. Address changed and brackets removed from UK 5.2.14 LM. address updated, instagram added AC 6/11/23

Last Contacted
20/01/2014
Last Updated
06/11/2023
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The Restricted Growth Association (RGA)

Name
The Restricted Growth Association (RGA)
Category
Condition(s)
Exclude All
No
Short Description
The Restricted Growth Association (RGA) aims to help reduce the distress and disadvantages of persons of restricted growth.
Telephone Number
0300 111 1970
Website Address
https://rgauk.org/
Address
LD1 9BL
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

updated tel, address and added contact name - consent gained via email from stephanie - updated online 4/01/10 - EG Updated address and tel - request from Dawn Shaw - 13/9/10 - EGRefresh Project- email 1 sent 20.9.13, email received from Adelina Donaldson on 20.9.13 with new contact name and address- KC updated 20.9.13updated address using info from website - RC 25/8/16. youtube removed AC 6/11/23

Last Contacted
09/10/2013
Last Updated
06/11/2023
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The Spinal Injuries Association (SIA)

Name
The Spinal Injuries Association (SIA)
Category
Condition(s)
Exclude All
No
Short Description
The Spinal Injuries Association (SIA) is a national user-led charity for spinal cord injured people.
Telephone Number
01908 604191 or 0800 980 0501
Website Address
https://www.spinal.co.uk/
Address
MK6 2HH
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

added text number, added contact name, changed fax number, and updated description. consent via email from Debbie - updated online 15/12/09 - EGRefresh project- email 1 sent 20.9.13, email response received from Helen on 25.9.13 with updated description on list of services- and removal of contact name -KC updated 10.10.13updated phone numbers using info from website -RC 31/8/16. instagram added AC 6/11/23

Last Contacted
12/09/2003
Last Updated
06/11/2023
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The Starfish Project

Name
The Starfish Project
Category
Condition(s)
Exclude All
No
Short Description
The Starfish Project is a non-profit making project for training young people aged 12 to 18 years and adults who stammer or stutter to both control and gain confidence over something that has controlled them.
Telephone Number
01825 767268
Website Address
https://www.starfishproject.co.uk/index.htm
Address
TN22 5SE
Age Relevance
11+, 16+
Contact History

GOOGLEWHACK - 17/5/10 - Consent given via email from Anne Blight - EGRefresh Project 2013 - email 1 sent 24.9.13 BB, no response so email 2 sent 9.1.14Response received on 9.1.14 from David Blight confirming all details are correct LM

Last Contacted
01/09/2014
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The Stroke Association

Name
The Stroke Association
Category
Condition(s)
Exclude All
No
Short Description
The Stroke Association funds research into the prevention, treatment and better methods of rehabilitation to help stroke patients and their families directly through its Life After Stroke Services.
Telephone Number
0207 566 0300 or 0303 3033 100 (helpline)
Website Address
https://www.stroke.org.uk/
Town
London
Address
EC1V 2PR
Age Relevance
4+, 7+, 11+, 16+
Contact History

GOOGLEWHACK - added 6/9/10 - consent via email from KimRefresh Project 2013 - email 1 sent 20.9.13 BB, no response so email 2 sent 20.1.14Response received on 22.1.14 via email. Contact name removed, address and email changed 5.2.14 LMupdated address and phone number susing info from website - RC 31/8/16

Last Contacted
22/01/2014
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The UK ADHD Partnership (UKAP)

Name
The UK ADHD Partnership (UKAP)
Category
Condition(s)
Exclude All
No
Short Description
The UK ADHD Partnership (UKAP) aims to raise the profile of ADHD on the healthcare and political agenda to build better futures for children and young people with the condition and their families.
Website Address
https://www.ukadhd.com/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Gained consent via email from UKAP on 26.11.13 from Sue Curtis - KC published on 27.11.13

Last Contacted
27/11/2013
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The Williams Syndrome Foundation

Name
The Williams Syndrome Foundation
Category
Condition(s)
Exclude All
No
Short Description
The Williams Syndrome Foundation is a national charity that offers information and support to children and adults, puts families in contact with each other and funds research.
Telephone Number
020 8567 1374
Website Address
https://www.williams-syndrome.org.uk/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project 2013 - email 1 sent 20.9.13 BB, no response so email 2 sent 20.1.14Response received on 20.1.14 from Lizzie Hurst. Email changed 5.2.14 LMupdated address using info from website - RC 31/8/16

Last Contacted
20/01/2014
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The Young ME Sufferers Trust

Name
The Young ME Sufferers Trust
Category
Condition(s)
Exclude All
No
Short Description
The Young ME Sufferers Trust (TYMES Trust) provides support and information for young people with ME and their families, and for medical and educational professionals.
Telephone Number
0845 003 9002
Website Address
https://www.tymestrust.org/
County
Essex
Address
CM4 9TE
Age Relevance
7+, 11+, 16+
Contact History

change to email - 29/3/10 - EG Change to tel, email name and description - EG - consent via phone from Jane - 20/4/10Refresh Project - Phone call 30.4.14 (AT) - left messageInformation checked on website - all correct 18.6.14. Added email details LM. facebook added AC 13/11/23

Last Contacted
18/06/2014
Last Updated
13/11/2023
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Tinnitus UK

Name
Tinnitus UK
Category
Condition(s)
Exclude All
No
Short Description
The only registered charity in the UK solely dedicated to supporting those with tinnitus.
Telephone Number
0800 018 0527
Website Address
https://www.tinnitus.org.uk/
Town
Sheffield
Address
S8 0TB
Age Relevance
4+, 7+, 11+, 16+
Contact History

added helpline, consent via email from Sue. updated online 7/01/10 - EGRefresh Project- email 1 sent 17.9.13, email 2 sent 6.12.13Refresh Project 2013 - email 1 sent 17.9.13 BB, no response. Email 2 sent 6.12.13Response received 20.12.13 from Nic Wray. All details confirmed correct (29.1.14) LMupdated phone numbers using info from website - RC 25/8/16. Email received to update 25.10.19 AP. Email received to update name from British Tinnitus Association to Tinnitus UK 3/12/24 AP

Last Contacted
25/10/2019
Last Updated
03/12/2024
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Together for Short Lives

Name
Together for Short Lives
Category
,
Condition(s)
Exclude All
No
Short Description
Together for Short Lives is the leading UK charity that speaks for all children with life-threatening and life-limiting conditions and all who love and care for them.  
Telephone Number
0808 8088 100
Website Address
https://www.togetherforshortlives.org.uk/
Address
BS2 9AG
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change of address, , telephone number, helpline, and contact name - consent via email from Katerina - updated online 14/12/09 - EGRefresh Project - Phone call 29.4.14 (AT) - ACT and Child Hospices have merged, so new telephone number, address and email address LMPhone update 15.7.14 AP - Guy, changed name, description and helpline. Updated address using info from website -RC 26/8/16. email updated AC 13/11/23

Last Contacted
15/07/2014
Last Updated
13/11/2023
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Top UK (Triumph over Phobia)

Name
Top UK (Triumph over Phobia)
Category
Condition(s)
Exclude All
No
Short Description
TOP UK (Triumph over Phobia) runs self help groups for people who suffer from phobias and OCD.
Telephone Number
01225 571740
Website Address
https://www.topuk.org/
Address
BA2 3WY
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

changed description, added tel number, cahnged email and web address - consent via email from Trilby Breckman - updated online 14/12/09 - EGRefresh Project - email 1 sent 20.9.13, email response received from Trilby Breckman on 1/10/13 confirming all details correct- KC updated spreadsheet 2/10/13updated phone numbers using info from website - RC 1/8/16

Last Contacted
12/09/2003
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Tourettes Action

Name
Tourettes Action
Category
Condition(s)
Exclude All
No
Short Description
Tourettes Action is a nationwide charity that provides help and support to families and individuals affected by Tourettes syndrome.
Website Address
https://www.tourettes-action.org.uk/
County
Surrey
Address
GU15 3RN
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

changed description, website, email, consent via email from Linnea, updated online 15/12/09 - EGAdded more detail to entry, changed address, email, website, telphone contacts gained consent via Peter Carter by email (ta.groupessex@gmail.com) K.CRefresh project- email 1 sent 20.9.13 auto reply out of office from laura.Phone call made 30.4.14 (AT) - no change LM. email updated, phone removed, instagram added AC 13/11/23 

Last Contacted
05/12/2014
Last Updated
13/11/2023
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Transition Information Network (TIN)

Name
Transition Information Network (TIN)
Category
,
Exclude All
Yes
Short Description
Transition Information Network (TIN) is an alliance of organisations and individuals who aim to improve the experience of disabled young people's transition to adulthood.
Telephone Number
020 7843 6006
Website Address
https://councilfordisabledchildren.org.uk/transition-information-network
Town
23 Mentmore Terrace
Address
E8 3PN
Age Relevance
16+
Contact History

Refresh Project 2013 - New entry received on 29.11.13. Consent given by Lettice Wigby (lwigby@ncb.org.uk or 020 7843 6006) Added 6.2.14 LM. address updated AC 13/11/23

Last Contacted
29/11/2013
Last Updated
13/11/2023
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TreeHouse

Name
TreeHouse
Category
Condition(s)
Exclude All
No
Short Description
TreeHouse runs a special school for children and young people with autism. TreeHouse also provides information and training for parents and professionals.
Telephone Number
0208 815 5424
Website Address
https://www.treehouseschool.org.uk/
Address
N10 3JA
Age Relevance
4+, 7+, 11+, 16+
Contact History

Consent given June 10Refresh Project- email 1 sent 9.9.13 to info@treehouse.org.uk- bounceback, email 2 sent on 21.11.13 to 'enquiries@treehouseschool.org.uk' , email response received on 22.11.13 from Deborah McQuade with new website and updated description - KC updated on 22.11.13 updated email, website and phone number using info from website - RC 8/8/16. twitter, youtube added AC 13/11/23

Last Contacted
22/11/2013
Last Updated
13/11/2023
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Tuberous Sclerosis Association

Name
Tuberous Sclerosis Association
Category
Condition(s)
Exclude All
No
Short Description
Tuberous Sclerosis Association supports individuals, promotes awareness and seeks the causes and best possible management of Tuberous Sclerosis.
Telephone Number
0808 801 0700
Website Address
https://www.tuberous-sclerosis.org/
Town
Epsom
County
Surrey
Address
KT17 1HQ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to email - consent via fax - received 2/3/10 - updted 3/3/10 - EG change to el, email and address - consent via email from Chris Johnson - 14/6/11 - EGRefresh project- email 1 sent 20.9.13, email response received from Christian Johnson stating that Christian no longer works there- email forwarded to Andreas.Woreth on 23.10.13No response, and phone number does not connect. Checked website, no address, but site still active, so removed all details other than website and description 20.6.14 LMupdated email address and address using info from website -RC 31/8/16. address updated, phone added AC 13/11/23

Last Contacted
20/06/2014
Last Updated
13/11/2023
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Twins Club UK

Name
Twins Club UK
Category
Condition(s)
Exclude All
No
Short Description
Twins Club is a UK based website for parents of twins and multiples including a forum, advice and real life stories.
Website Address
https://www.twinsclub.co.uk/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

updated from weblink to directory entry - RC 7/9/16

Last Contacted
30/11/-0001
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