1 Voice – Communicating Together

Name
1 Voice – Communicating Together
Category
Condition(s)
Exclude All
No
Short Description
1 Voice - Communicating Together is a registered charity offering a network of support and information for children, young people and families using communication aids.
Telephone Number
07943 618525
Website Address
www.1voice.info
Town
Lymm
County
Cheshire
Address
WA13 0QW
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

update to description - consent via email from Tamsin - updated online 14/01/10 - EGRefresh Project- Email 1 sent 23.9.13, email response from Julie Bello on 23.9.13 with updated description to include areas covered and also address and telephone update- KC updated on 23.9.13, update to address - AC 13.9.23

Last Contacted
01/10/2014
Last Updated
13/09/2023
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2Sleep

Name
2Sleep
Category
Exclude All
Yes
Short Description
2SLEEP aims to provide practical help to families and those working with children to help solve sleep problems.
Telephone Number
07914 308227
Website Address
http://www.2sleep.org
Age Relevance
0+, 4+, 7+, 11+
Contact History

Gained consent via email from Carol ([email protected])  by KC on 14.2.13Refresh Project- email 1 sent 18.9.13, email response received from Vanessa Moore on 9/10/13 confirming all details correct- KC updated 10.10.13 Updated email address from [email protected] to [email protected] using info from website and added address - RC 19/07/2016updated mistake in the description - RC 16/8/17, remove twitter AC 13/9/23. Rang the number to check they are still running as the website is down and Facebook inactive, and they confirmed that they are still in operation and the website will be up and running again soon. They have a problem with the website provider. 6/8/24 AP

Last Contacted
14/02/2013
Last Updated
06/08/2024
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Able Magazine

Name
Able Magazine
Category
Exclude All
Yes
Short Description
Able Magazine is a bi-monthly magazine covering local and national issues, which has inspired its own website for easy access to useful information on disability in the UK today.
Telephone Number
0141 285 4000
Website Address
http://ablemagazine.co.uk/
Address
G3 8AZ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Consent given 12/5/2010 - AR Name changed.Refresh Project - email 1 sent 18.9.13 (BB), email 2 sent 7.1.14 (LM). No response. Phone call made 28.3.14 (CM) - email and address added LMUpdated information from Primas Media Ltd, 15-39 Durham Street, Kinning Park, Glasgow, G1 1BS  0141 419 0044 [email protected] to Pentagon Centre, 36-38 Washington Street, Glasgow, G3 8AZ 0141 285 4000 [email protected] using information from the website - RC 19/07/2016

Last Contacted
04/11/2014
Last Updated
26/01/2021
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Aching Arms

Name
Aching Arms
Category
,
Short Description
Bringing comfort after pregnancy and baby loss.
Telephone Number
07464 508994 - support, 07826 067801 - enquiries
Website Address
https://www.achingarms.co.uk/
Town
Brentwood
County
Essex
Address
CM14 5DR
Age Relevance
0+
Last Updated
14/11/2024
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ACT (Aid for Children with Tracheostomies)

Name
ACT (Aid for Children with Tracheostomies)
Category
Condition(s)
Exclude All
No
Short Description
ACT (Aid for Children with Tracheostomies) is the leading national organisation for children with tracheostomies. ACT is run by parents of children with a tracheostomy and by people who sympathise with the needs of such families.
Telephone Number
07712 104786
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project - Phone call 29.4.14 (AT). No change, all details correct LM.

Last Contacted
05/09/2014
Last Updated
26/01/2021
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Action for Children

Name
Action for Children
Category
,
Exclude All
Yes
Short Description
Working to improve life for children in the UK.
Telephone Number
0300 123 2112
Website Address
https://www.actionforchildren.org.uk/
County
HERTS
Address
WD18 8AG
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Information taken from website and Essex Local Offer 12.9.16  AP

Last Updated
27/03/2020
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Action for ME

Name
Action for ME
Category
Condition(s)
Exclude All
No
Short Description
Action for ME is a national charity that provides support and advice to people affected by ME and their families and also campaigns to improve the lives of people with ME in the UK.
Telephone Number
0117 927 9551
Website Address
https://www.actionforme.org.uk/
Town
Keynsham
Address
BS31 1EH
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project- email 1 sent 19.9,13, email response received on 19.9.13 from John McCready with slight decription change to remove wording about enquiry pack and added welfare rights line- KC updated 28.10.13

Last Contacted
28/10/2013
Last Updated
26/01/2021
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Action for Sick Children

Name
Action for Sick Children
Category
Exclude All
Yes
Short Description
Action for Sick Children aims to join parents and professionals in promoting high quality care for children in hospital and at home.
Telephone Number
0161 486 6788
Website Address
http://www.actionforsickchildren.org/
Address
SK8 7DL
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

changed contact details for Betty Perry and added second contact - consent via email from betty - updated online 4/1/10 - EGrEFRESH PROJECT-BB phoned on 10.12.13, additional contact Sue Sava removed all other details confirmed correct by Gillian Broadman - KC updated 10.12.13 Updated address from 32b Buxton Road, High Lane, Stockport, SK6 8BH to Action for Sick Children: 10 Ravenoak Road, Cheadle Hulme, Stockport SK8 7DL and added email address [email protected] using info from website - RC 19/07/2016

Last Contacted
12/10/2013
Last Updated
26/01/2021
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Active SEN

Name
Active SEN
Category
Short Description
Agency providing support staff to families who have children with additional needs and disabilities.
Telephone Number
0208 004 3232
Website Address
https://activesen.co.uk/
Town
Loughton
County
Essex
Address
IG10 4PE
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Submitted by Charlea Davidian, SEN Consultant. 18.4.24 AP

Last Contacted
18/04/2024
Last Updated
23/04/2024
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ADDISS (The National Attention Deficit Disorder Information and Support Service)

Name
ADDISS (The National Attention Deficit Disorder Information and Support Service)
Category
Condition(s)
Exclude All
No
Short Description
ADDISS (The National Attention Deficit Disorder Information and Support Service) provides information, training and support for parents, individuals and professionals in the fields of ADHD and related learning and behavioural difficulties.
Telephone Number
020 8952 2800
Website Address
http://www.addiss.co.uk/
County
Middlesex
Address
HA8 9HL
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Change of address/phone 24.5.07Refresh project- email 1 sent 5.9.13- no response, email 2 sent 25.11.13 Phone call made 14.3.14 (CM) - address changed LMUpdated address from Premier House, Edgware, London, HA8 7BJ  to ADDISS PO Box 340, Edgware, Middlesex, HA8 9HL using information from the website - RC 19/07/2016

Last Contacted
19/03/2014
Last Updated
26/01/2021
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ADHD & You

Name
ADHD & You
Category
Condition(s)
Exclude All
No
Short Description
ADHD & You is a source of information for anyone who might be affected by ADHD or who cares for someone who is.
Website Address
http://www.adhdandyou.co.uk/
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

updated from weblink to directory entry - RC 8/9/16

Last Updated
26/01/2021
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ADHD UK

ADHD UK
Name
ADHD UK
Category
Condition(s)
Short Description
ADHD UK was founded in 2020 with a mission to help those affected by ADHD – either those that have the condition or people close to them: family, friends, employers, and co-workers.
Website Address
https://adhduk.co.uk/
Town
Richmond
Address
TW9 1DL
Age Relevance
16+
Contact History

address updated AC 13/9/23

Last Updated
13/09/2023
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Adoption UK

Name
Adoption UK
Category
Exclude All
Yes
Short Description
Adoption UK is the leading charity providing support, community and advocacy for all those parenting or supporting children who cannot live with their birth parents.
Telephone Number
0300 666 0006
Website Address
https://www.adoptionuk.org/
County
Oxfordshire
Address
OX15 4FF
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

/Consent: Steve Erdal by email 13.12.06 Slight change to address - consent via telephone from Alison Millen - 31/3/10 - EGRefresh Project 2013 - telephone number and entry changed (consent from Alison Scott) LM Updated address from Adoption UK, Linden House, 55 The Green, South Bar Street, Oxfordshire, OX16 9AB  to Adoption UK, Units 11 and 12, Vantage Business Park, Bloxham Road, Banbury, OX16 9UX - using info from website RC 19/07/2016. Address updated 13/9/23

Last Contacted
24/03/2014
Last Updated
13/09/2023
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Afasic

Name
Afasic
Category
,
Condition(s)
,
Exclude All
No
Short Description
Afasic is the UK charity representing children and young adults with communication difficulties, working for their inclusion in society and supporting their parents and carers.
Telephone Number
0300 666 9410
Website Address
https://www.afasic.org.uk/
Address
E2 9PJ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to address - cosnent via phone - 22/3/10 - EGRefresh Project- email 1 sent 10.9.13, email response received from Mark Thompson with added details for descripion and contact details- KC updated 18.11.13 Updated via email by Tony Curtis 20.3.15. AP. Instagram and youtube added AC 13/9/2023

Last Contacted
20/03/2015
Last Updated
13/09/2023
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Albinism Fellowship

Name
Albinism Fellowship
Category
Condition(s)
Exclude All
No
Short Description
Albinism Fellowship is a voluntary organisation that provides advice and support to people with albinism, their families and professionals who help them.
Telephone Number
07946 457979
Website Address
http://www.albinism.org.uk/
Town
Ilford
Address
IG1 8NY
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project - email 1 sent 19.9.13 (BB), email 2 sent 9.1.14 (LM) - no responsePhone call 29.4.14 (AT). Information confirmed correct from website 12.6.14 LM Updated email address using information from website [email protected] to [email protected] - RC 19/07/2016. added email AC 13/9/23

Last Contacted
06/12/2014
Last Updated
13/09/2023
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Alex TLC

Name
Alex TLC
Category
Condition(s)
Exclude All
Yes
Short Description
Alex - The Leukodystrophy Charity is a patient support group for patients and families affected by a genetic leukodystrophy. They provide emotional and financial support to patients and families including a grants programme that helps families cover vital support costs.
Telephone Number
020 7701 4388
Website Address
http://www.alextlc.org
Address
SE15 5EB
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project - new entry published 1.7.14 (consent from Minesh Gokal) LMupdated phone number using info from website - RC 24/8/16. Martina Wilson updated entry via email 31.5.19. AP.

Last Contacted
31/05/2019
Last Updated
29/01/2021
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AllergyUk

Name
AllergyUk
Category
Condition(s)
Exclude All
No
Short Description
Allergy UK is the leading national charity providing support, advice and information for those living with allergic disease.
Telephone Number
01322 619898
Website Address
https://www.allergyuk.org/
Town
Thames Road
County
Kent
Address
DA1 4SL
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project 2013 - email 1 sent 19.9.13 BB, no response so email 2 sent 16.1.14Response received on 16.1.14 from Paula Smallridge. Change of address, fax number and information 4.2.14 LM. address updated, instagram added AC 13/9/23

Last Contacted
12/09/2015
Last Updated
13/09/2023
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All Together Now

Name
All Together Now
Category
Exclude All
Yes
Short Description
All Together Now newspaper is aimed at everyone, especially health care professionals or anyone whose lives are affected by disabilities, long term health conditions or age.
Telephone Number
0151 230 0307
Website Address
http://www.alltogethernow.org.uk/
Address
L14 2EP
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

updated from weblink to directory entry -RC 13/9/16. added address AC 13/9/23

Last Updated
13/09/2023
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Ambitious About Autism

Name
Ambitious About Autism
Category
Condition(s)
Exclude All
No
Short Description
Ambitious About Autism is the national charity for children and young people with autism. They provide services, raise awareness and understanding, and campaign for change.
Telephone Number
020 8815 5444
Website Address
https://www.ambitiousaboutautism.org.uk/
Address
N10 3JA
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Updated from weblink - RC 1/8/16

Last Updated
05/03/2021
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AMRC (Association of Medical Research Charities)

Name
AMRC (Association of Medical Research Charities)
Category
Exclude All
Yes
Short Description
AMRC is a national membership organisation of leading medical and health research charities, which help its members to meet their charitable objects by connecting members to encourage collaboration and share learning.
Telephone Number
020 8078 6042
Website Address
https://www.amrc.org.uk/
Address
WC1R 4SG
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Updated from weblink to directory entry - RC 5/9/16. address updated AC 13/9/23

Last Updated
13/09/2023
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