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Short Description
The UK charity for Paediatric Feeding Disorders (PFD) and developmental feeding differences.
Telephone Number
0121 289 3204
Town
Alvechurch
County
Worcestershire
Address
B48 7LA
Age Relevance
0+, 4+, 7+, 11+
Last Updated
15/07/2025
Condition(s)
Exclude All
No
Short Description
The Fragile X Society offers support and information for the families and professionals affected by this most common form of inherited learning disability.
Telephone Number
01371 875100
County
Essex
Address
CM6 1DA
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

changed contact name for society - consent via email from Susan - updated online 14/12/09 - EGRefresh project- email 1 20.9.13, email response received 20.9.13 from Susan Layton stating all detais correct- KC updated 23.10.13. address updated AC 6/11/23

Last Contacted
23/10/2013
Last Updated
06/11/2023
Exclude All
Yes
Short Description
The Frontline Partnership enables and supports people with a learning disability and high support needs to live full and productive lives.
Telephone Number
01277 218902 or 07511 824170
County
Essex
Address
CM14 4WB
Age Relevance
16+
Contact History

Update to description, 2nd contact, added 1st contact name and email- consent via phone and email from Jackie. Updated online 15/2/10 - EG Moved to transition - 10/5/10 - EGRefresh Project- email 1 sent 12.9.13 bounceback, email 2 sent to jackie@frontlinepartnership.org on 8.11.13 - no response 21.11.13. Sent again to jackie 21.5.14 LM. Response from Jackie 23.5.14 - asked to remove 'People First Havering', an advocacy service.Rest remains correct LMEntry updated following What's Next? 26/05/2016 PK. email, phone updated AC 6/11/23. Amended details 16/4/26 AP

Last Contacted
21/11/2013
Last Updated
17/04/2026
Condition(s)
Exclude All
No
Short Description
The Gates (Gardening Project) is an inclusion project supporting the growth of community inclusion for adults with learning disabilities.
Telephone Number
07887 742622 or 01277 226144
Address
CM14 4QW
Age Relevance
16+
Contact History

Consent: Julie Morrissey 22.6.06 Changed - email, contact name, website, consent gained via telephone from Mary - updated online 4/2/10 - EG Moved to transition - 10/5/10 - EGRefresh Project- email 1 sent to enquiries@- bounceback email sent via online enquiry form on 3.12.13Response received 6.12.13 from Jackie. Slight change to text (29.1.14) LMadded additional phone number and email address using info online - RC 26/07/2016. email, website, phone updated, address added AC 6/11/23

Last Contacted
12/06/2013
Last Updated
06/11/2023
Exclude All
Yes
Short Description
This is an independent, family run Children's Occupational Therapy practice based in North Essex for children aged 2 to 19.
Telephone Number
07369239342
Town
Great Totham
County
Essex
Address
CM9 8QB
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Email from Aaron Preston 16.4.19. Aaron sent email with change of address and telephone number. 26/9/23 AP.

Last Contacted
26/09/2023
Last Updated
26/09/2023
Exclude All
Yes
Short Description
The Habbit Factory is an inclusive theatre company in Havering.
Telephone Number
07985 377781
Age Relevance
4+, 7+, 11+, 16+
Contact History

PK spoke to Lee Giles via phone. All information taken from the website. Lee advised age range has changed. email and description updated, instagram added AC 6/11/23

Last Contacted
03/08/2016
Last Updated
06/11/2023
Condition(s)
Exclude All
No
Short Description
The Haemophilia Society was established in 1950 and is the national charity in the UK that is working to secure the best possible care, treatment and support for individuals and families affected by a bleeding disorder.
Telephone Number
020 7939 0780
Address
SE1 1XN
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

slight change to helpline times in description - const via telephone - research by Sarah - 23/3/10 - EGRefresh Project - Phone call made 30.4.14 (AT) - helpline removed (no longer exists) and entry amended to reflect this. Also removed all conditions and replaced with 'a bleeding disorder' LMupdated address using info from website - RC 25/8/16. address updated AC 6/11/23

Last Contacted
13/05/2014
Last Updated
06/11/2023
Exclude All
No
Short Description
The Hanen Centre is a Canadian charitable organisation that developed the More Than Words program.
Town
Toronto
County
Canada
Address
M5S 2B1
Age Relevance
0+, 4+, 7+
Contact History

added postal address, added tel and fax numbers, added address. consent via email from Naomi. Updated online 14/01/10 - EG EMAIL ADDED - 9/2/10 - EGRefresh Project - Email 1 sent 9.9.13 (BB), email 2 sent 9.1.14 (LM). No response. Telephone number does not accept incoming calls, so removed. Email 1 sent again to info@hanen.org LM All correct 30.5.14 LM

Last Contacted
02/10/2009
Exclude All
No
Short Description
SEND youth club in Tilbury for young people aged 15+.
Telephone Number
01375 413735
Town
Grays
Address
RM17 5EB
Age Relevance
11+, 16+
Contact History

address updated, phone added AC 6/11/23

Last Updated
06/11/2023
Short Description
An online non-profit school built for neurodivergent learners aged 12-17.
Age Relevance
11+, 16+
Contact History

School opening September 2025. Added from website 7/8/25 AP

Last Updated
07/08/2025
Condition(s)
Exclude All
No
Short Description
The Helen Arkell Dyslexia Centre provides support services for people of all ages with dyslexia and other specific learning difficulties.
Telephone Number
01252 792400
County
Surrey
Address
GU9 7DR
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project- email 1 sent 10.9.13, email response received from Margaret Simpson on 10.9.13 stating summer course updated web and address- KC updated 15.11.13. email updated, social media added AC 6/11/23

Last Contacted
15/11/2013
Last Updated
06/11/2023
Exclude All
Yes
Short Description
The Hideout is a website created by Women's Aid to help children and young people to understand domestic abuse, and how to take positive Action if it's happening to you.
Age Relevance
4+, 7+, 11+, 16+
Category
Exclude All
Yes
Short Description
The Hospital Saturday Fund provides one off grants towards medical equipment, dietary needs, disability aids and furniture, help in the home and hospital travel.
Telephone Number
020 7202 1365
Address
SE1 9PD
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

KLB EMAILED FOR CONSENT IN 2015- NO REPLY- PUBLISHED ENTRY USING WEB INFO- 13.4.16

Last Contacted
13/04/2016
Last Updated
17/11/2020
Condition(s)
Exclude All
No
Short Description
The Huntington's Disease Association supports people affected by the disease and provides information and advice to professionals who support affected families.
Telephone Number
0151 331 5444
Website Address
Address
L3 5TF
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

changed address - consent via email from Karen - updated online 14/12/09 - EG Slight change to description, tel and fax changed - consent via email from Mark - 3/3/10 - EGRefresh Project - email 1 sent 20.9.13 (BB), email 2 sent 20.1.14 (LM) - no responsePhone call 30.4.14 (AT) - number incorrectChecked information on website 18.6.14 - address and telephone number changed and fax removed LM. instagram added AC 6/11/23

Last Contacted
18/06/2014
Last Updated
06/11/2023
Exclude All
Yes
Short Description
The Informed Parent aims to promote awareness and understanding about immunisation and vaccination in order to preserve the freedom of an informed choice.
Telephone Number
01903 212969
County
West Sussex
Address
BN11 2WH
Age Relevance
0+, 4+, 7+, 11+
Contact History

nochange - consent via email from Magda - EGRefresh Project - Phone call made 30.4.14 (AT) - no changes LM

Last Contacted
05/12/2014
Exclude All
No
Short Description
The International Autistic Research Organisation offers information and awareness-raising of scientific research into autism, including lectures on new research findings for people with autism.
County
Surrey
Address
CR0 7NE
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

added contact name - consent via email - Gerda - 30/11/09Refresh Project- email 1 sent 9.9.13, emai 2 sent on 27.11.13Phone call made 28.3.14 (CM) - all details confirmed correct LM. contact details removed - charity no longer exists AC 6/11/23

Last Contacted
04/01/2014
Last Updated
06/11/2023
Category
Condition(s)
Exclude All
No
Short Description
The Joseph Patrick Trust is the welfare trust of Muscular Dystrophy UK and provides part-funding towards the cost of equipment for children and adults with muscle disease.
Telephone Number
020 7803 4811
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

GOOGLEWHACK - consent via telephone - 10/5/11 - EGRefresh project- email 1 sent 18.9.13, email 2 sent 6.12.13Response received 9.12.13 via email. All details confirmed correct. LMupdated website as previous link not working - RC 26/07/2016. phone updated AC 6/11/23. Updated webpage link 14/8/26 AP

Last Contacted
12/09/2013
Last Updated
14/08/2026
Short Description
Provides social events for young adults in Essex with life limiting and life-threatening conditions.
Town
Chelmsford
County
Essex
Age Relevance
16+
Contact History

Updated by Jane Gibney via email 20.3.26 AP

Last Updated
20/03/2026
Exclude All
Yes
Short Description
Working for young people across the UK to develop their skills and confidence to find a job or start a business.
Telephone Number
0800 842 842
Age Relevance
16+
Contact History

Changed name from Princes Trust to The King's Trust. 24/10/24.

Last Updated
24/10/2024
Category
Exclude All
Yes
Short Description
The Law Society holds a list of solicitors offering legal advice on a variety of issues, including those affecting children.
Telephone Number
020 7242 1222
Address
WC2A 1PL
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh project - Email sent 18.9.13 (BB). No response, phone call made 28.3.14 (CM). Helpline number amended LMadded additional phone number using info from website - RC 26/07/2016

Last Contacted
04/11/2014
Last Updated
26/01/2021

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Email: familyteam@snapcharity.org

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