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Keywords: Advanced Search Directory View All Listings Add Listing The Child Growth Foundation Name The Child Growth Foundation Category National Advice & Support Condition(s) Growth Disorders Exclude All No Short Description The Child Growth Foundation provides information, advice and support to families of children with growth disorders. Telephone Number 020 8995 0257 or 020 8798 2139 Website Address https://www.childgrowthfoundation.org/ Town Redburn Road Address NE5 1NB Age Relevance 0+, 4+, 7+, 11+, 16+ Contact History added contact name, added helpline, added to address (Chiswick) consent via email from Jenny - update online 17/12/09 - EGRefresh Project 2013 - email 1 sent 20.9.13 BB, no response so email 2 sent 9.1.14Response received on 9.1.14 from Jenny. Slight change to email address LMupdated phone numbers and address using info from website - RC 25/8/16. email, phone, address, facebook, twitter, instagram updated AC 6/11/23 Last Contacted 09/10/2013 Last Updated 06/11/2023 Flag Listing The Children’s Hope Foundation Name The Children’s Hope Foundation Category Money Matters Exclude All Yes Short Description The Children's Hope Foundation aims to improve the lives of children and young people affected by illness, disability or poverty. Telephone Number 0207 700 6855 Website Address https://www.childrenshopefoundation.org.uk/ Town London Address N7 8DH Age Relevance 0+, 4+, 7+, 11+, 16+ Contact History added to directory using info from trike event and website - RC 20/7/17 Last Updated 17/11/2020 Flag Listing The Children’s Society Name The Children’s Society Category National Advice & Support Exclude All Yes Short Description The Children's Society is a national charity that runs local projects, helping children and young people when they are at their most vulnerable or at risk. Parenting groups are available in Essex. Telephone Number 0300 303 7000 Website Address https://www.childrenssociety.org.uk/ Age Relevance 0+, 4+, 7+, 11+, 16+ Contact History Information from literature and website PK 16.12.15. email, phone updated AC 6/11/23 Last Contacted 16/12/2015 Last Updated 06/11/2023 Flag Listing The Children’s Trust Name The Children’s Trust Category National Advice & Support Exclude All Yes Short Description The Children's Trust Tadworth is a national charity providing care, education and therapy for children with multiple disabilities and complex health needs, and also rehabilitation services to children with acquired brain injuries. Telephone Number 01737 365000 Website Address https://www.thechildrenstrust.org.uk/ County Surrey Address KT20 5RU Age Relevance 0+, 4+, 7+, 11+, 16+ Contact History change to description - consent from Lizzie D'Angelo - 25/3/10 - EGRefresh Project - Phone call made 28.3.14 (CM) - all details confirmed correct LM. instagram added AC 6/11/23 Last Contacted 04/08/2014 Last Updated 06/11/2023 Flag Listing The Childrens Chronic Arthritis Association (CCAA) Name The Childrens Chronic Arthritis Association (CCAA) Category National Advice & Support Condition(s) Arthritis Exclude All No Short Description The Childrens Chronic Arthritis Association (CCAA) provides support, help and information for children with arthritis, their families and professionals involved in their care Telephone Number 01242 511250 Website Address https://www.ccaa.org.uk/ Address CV11 9LR Age Relevance 0+, 4+, 7+, 11+, 16+ Contact History Consent: Caroline Cox 13.6.06 Consent via phone from Caroline - 22/3/10 - EGRefresh project- email 1 sent 20.9.13, email response received on 25.9.13 from Caroline Cox with updated service information- KC updated 10.10.13updated phone number using info from website - RC 1/8/16. phone, address updated, facebook, instagram added AC 6/11/23 Last Contacted 05/10/2020 Last Updated 06/11/2023 Flag Listing The Cirdan Sailing Trust Name The Cirdan Sailing Trust Category Respite & Breaks Away Exclude All Yes Short Description The Cirdan Sailing Trust provides an opportunity for groups of young people with their youth leaders to experience life aboard a large sailing vessel. Telephone Number 01621 776684 Website Address https://cirdantrust.org/ County Essex Address CM0 7RB Age Relevance 11+, 16+ Contact History description changed - consent via telephone and email from victoria - 14/7/11 EGRefresh Project 2013 - Email 1 sent 18.9.13 (BB), email 2 sent 7.1.14 (LM), Phone call made 28.3.14 (LM) - address, email and website changed LMupdated phone number using info from website - RC 26/07/2016. instagram added AC 6/11/23 Last Contacted 31/03/2014 Last Updated 06/11/2023 Flag Listing The Compassionate Friends (TCF) Name The Compassionate Friends (TCF) Category Health & Well-being Exclude All Yes Short Description The Compassionate Friends (TCF) is an organisation of bereaved parents and their families offering understanding, support and encouragement to others after the death of a child, at any age, from any cause. Telephone Number 0345 123 2304 Website Address https://www.tcf.org.uk/ Address NW6 7UJ Age Relevance 0+, 4+, 7+, 11+, 16+ Contact History CHANGED NUMBERS, TEL AND FAX - 16/12/09 - EGRefresh project- email 1 sent 9.9.13, email 2 sent 28.11.13Response received 19.3.14 from Carolyn. Address updated and small addition to text. LM. instagram added, twitter updated AC 6/11/23 Last Contacted 20/03/2014 Last Updated 06/11/2023 Flag Listing The Council for Disabled Children (CDC) Name The Council for Disabled Children (CDC) Category National Advice & Support Exclude All Yes Short Description The Council for Disabled Children (CDC) is the umbrella body for the disabled children's sector in England, with links to other UK nations. Telephone Number 020 7843 1900 Website Address https://councilfordisabledchildren.org.uk/ Town Hackney Address E8 3PN Age Relevance 0+, 4+, 7+, 11+, 16+ Contact History change to website - EGRefresh Project- email 1 sent 18.9.13 email response received on 18.9.13 from Joanna Carr with updated decription and tel and adress - KC updated 31.10.13Â. address updated AC 6/11/23 Last Contacted 31/10/2013 Last Updated 06/11/2023 Flag Listing The Counselling Room Upminster Name The Counselling Room Upminster Category Health & Well-being Exclude All Yes Short Description The Counselling Room Upminster offers one to one counselling to individuals around issues such as bereavement, loss, anxiety, lack of confidence, domestic violence, anger management, and relationship difficulties including family issues. Telephone Number 07428 911002 Town Cranham County Essex Address RM14 1SR Age Relevance 0+, 4+, 7+, 11+, 16+ Contact History Gained consent via email on 13.9.13 from Karen Tottman - added by KC on 16.9.13 Last Contacted 13/09/2013 Flag Listing The Disability Equipment Register Name The Disability Equipment Register Category Toys, Clothing & Equipment Exclude All Yes Short Description The Disability Equipment Register is a website dedicated to the buying and selling of disability equipment. Telephone Number 07845 041678 Website Address https://disabilityequipmentservice.co.uk/ Town Yate Address BS37 4BJ Age Relevance 0+, 4+, 7+, 11+, 16+ Contact History Removed fax number - 8/3/10 - EGRefresh Project- email 1 sent 16.9.13, email response received from John Selby stating the monthly magazine has been discontinued -KC updated 7.11.13 updated phone number and website to working link - RC 26/07/2016updated mistake in the description - RC 11/8/17. Updated 27/10/20 AP. email updated AC 6/11/23 Last Contacted 11/07/2013 Last Updated 06/11/2023 Flag Listing The Disability Law Service Name The Disability Law Service Category Legal Help Exclude All Yes Short Description The Disability Law Service offers a free legal and representation service to disabled people and their families, enablers and carers throughout Britain. Telephone Number 020 7791 9800 Website Address https://dls.org.uk/ Address SE11 5RR Age Relevance 0+, 4+, 7+, 11+, 16+ Contact History Refresh Project - email 1 sent 18.9.13 (BB), email 2 sent 7.1.14 (LM). Phone call made 28.3.14 (CM)Info checked on website 6.6.14 - address changed and times of helpline removed from entry LMupdated address using info from website - RC 26/07/2016 Last Contacted 06/06/2014 Last Updated 26/01/2021 Flag Listing The Down’s Heart Group Name The Down’s Heart Group Category National Advice & Support Condition(s) Down Syndrome Exclude All No Short Description The Down's Heart Group is a UK charity which offers support, information and contact with other families who have a member with Down syndrome and related heart defects. Website Address https://dhg.org.uk/ Address W1A 6US Age Relevance 0+, 4+, 7+, 11+, 16+ Contact History updated tel, fax, helpline, and description - consent via email - 24/11/09Refresh Project- email 1 sent 10.9.13, email response received on 10.9.13 from Sarah Smith stating all details correct- KC updated 18.11.13 Changed telephone number as per email from Penny Green. All other details remain unchanged. 2/6/15 AP. Email from Penny Green to update address 13/8/20 AP. phone removed AC 6/11/23 Last Contacted 13/08/2020 Last Updated 06/11/2023 Flag Listing The Dream Factory Name The Dream Factory Category Money Matters Condition(s) Life Threatening Conditions Exclude All No Short Description The Dream Factory has been set up to brighten the lives and encourage hope for children and young adults aged 3 to 25 years who have life-limiting conditions or severe disabilities. Telephone Number 020 8501 1234 Website Address https://www.yourdreamfactory.org/ Town Ilford County Essex Address IG6 3UT Age Relevance 0+, 4+, 7+, 11+, 16+ Contact History Consent given by Linda Clark 17/6/10 - ARRefresh Project 2013 - email 1 sent 26.9.13 BB, no response so email 2 sent 15.1.14Response received 15.1.14 from Avril Mills. Confirmed all details correct LM. instagram, linkedin, youtube added AC 6/11/23 Last Contacted 15/01/2014 Last Updated 06/11/2023 Flag Listing The Dyslexia Teaching Centre Name The Dyslexia Teaching Centre Category National Advice & Support Condition(s) Dyslexia Exclude All No Short Description The Dyslexia Teaching Centre offers assessments, individually planned programmes of tuition, liaison with and support for schools, workshops, intensive holiday courses and educational advice. Telephone Number 075 9221 2375 Website Address https://www.dyslexiateachingcentre.co.uk/ Address W8 5HN Age Relevance 7+, 11+, 16+ Contact History consent via phone - no change - 20/4/10 - EGRefresh Project- email 1 sent 10.9.13, email 2 sent 2.12.13Phone call made 28.3.14 (CM) - all details correct LMupdated email address using info from website - RC 17/8/16. phone updated AC 6/11/23 Last Contacted 04/08/2014 Last Updated 06/11/2023 Flag Listing The Ear Foundation (Cochlear Implants) Name The Ear Foundation (Cochlear Implants) Category National Advice & Support Condition(s) Hearing Impairment Exclude All No Short Description The Ear Foundation (Cochlear Implants) provides advice and support for the UK's young deaf children with cochlear implants and their families. Age Relevance 0+, 4+, 7+, 11+, 16+ Contact History Refresh Project- email 1 SENT 17.9.13, EMAIL 2 SENT 6.12.13Phone call made 24.3.14 (CM) - email changed (consent from Rachel Lightfoot) LM. contact details removed - permanently closed AC 6/11/23 Last Contacted 27/03/2014 Last Updated 06/11/2023 Flag Listing The Education Network (NEN) Name The Education Network (NEN) Category Education & Learning Exclude All Yes Short Description The Education Network (NEN) is a learning and teaching resource providing schools with a secure network designed and maintained by experts within the educational community. Website Address https://www.nen.gov.uk/ Age Relevance 4+, 7+, 11+, 16+ Contact History updated from weblink to directory entry -RC 16/9/16. facebook removed AC 6/11/23 Last Updated 06/11/2023 Flag Listing The Exam House Name The Exam House Category Education & Learning Short Description The Exam House is a GCSE and A Level exam centre with a speciality in working with the full range of access arrangements, for pupils who are outside of school or private candidates. Telephone Number 01494911338 or 07979958162 Website Address https://www.theexamhouse.co.uk Address SL6 1LX Age Relevance 11+, 16+ Contact History Entry submitted by organisation on 16/1/21. phone, address updated AC 6/11/23 Last Contacted 16/01/2021 Last Updated 06/11/2023 Flag Listing The Family and Relationship Centre (formerly Relate) Name The Family and Relationship Centre (formerly Relate) Category Health & Well-being Exclude All Yes Short Description Relationship support for couples, families and individuals across North East and South East London, Essex and Kent. Telephone Number 01708 441722 Website Address https://www.familyandrelationshipcentre.org.uk/ County Essex Address RM7 7HL Age Relevance 0+, 4+, 7+, 11+, 16+ Contact History no change - 8/3/10Refresh Project- email 1 sent 10.9.13, email 2 sent 28.11.13All details confirmed correct 28.11.13 by Maria LMAdded website 17.7.14 LMupdated website link - RC 25/07/2016. email updated, facebook, twitter added AC 23/10/23. Updated name, description and contact details 26/3/26 AP Last Contacted 28/11/2013 Last Updated 26/03/2026 Flag Listing The Family Carer Support Service Name The Family Carer Support Service Category Into Adulthood, Legal Help, National Advice & Support Condition(s) Learning Disability Exclude All No Short Description The Family Carer Support Service (FCSS) closed in February 2024. Website Address https://www.hft.org.uk/our-services/family-carer-support-service/ Age Relevance 16+ Contact History KLB researched from website and discussed at IM meeting - no consent needed - published 13.7.15 by KLB. address updated AC 6/11/23. FCSS now closed February 2024. AP Last Contacted 13/07/2015 Last Updated 22/02/2024 Flag Listing The FASD Trust Name The FASD Trust Category National Advice & Support Condition(s) Rare Disorders / Syndromes Exclude All No Short Description The FASD Trust exists to raise awareness of Foetal Alcohol Spectrum Disorders and provides support, information and training for families, carers and anyone affected by FASD. Address OX4 1LF Age Relevance 0+, 4+, 7+, 11+, 16+ Contact History Consent given by Julia Brown by phone and email 18.3.08. May be new branch group soon in Herts to add to entry. no change - consent from Sarah Lindon - 6/3/10 - EGRefresh Project - email 1 sent 20.9.13 (BB), email 2 sent 20.1.14 (LM) - no responsePhone call 30.4.14 (AT) - number incorrectChecked information on website 18.6.14 - new address, telephone number and removed email (now via online form) LMadded additional phone number and email address - RC 24/8/16. contact details removed - no longer exists/has joined up with National FASD Last Contacted 18/06/2014 Last Updated 06/11/2023 Flag Listing ← Previous Next →