Exclude All
No
Short Description
ACT (Aid for Children with Tracheostomies) is the leading national organisation for children with tracheostomies. ACT is run by parents of children with a tracheostomy and by people who sympathise with the needs of such families.
Telephone Number
07712 104786
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project - Phone call 29.4.14 (AT). No change, all details correct LM.

Last Contacted
05/09/2014
Last Updated
26/01/2021
Exclude All
No
Short Description
A specialist treatment and training centre, and a charity dedicated to supporting children and families living with cerebral palsy and similar neurological conditions.
Telephone Number
020 8444 3355
Address
WD24 4YE
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to description, change to web site, added fax number. CHANGED LOCATION - FROM T+A TO PHYS DIFFICULTIES INC CP. consent given via email from Kevin. Updated online 13/1/10 - EGRefresh Project - Phone call 28.3.14 (CM) - email address changed LMKLB updated info to include helping hand scheme info as found on their website- 1.9.15updated email address using info from facebook page - RC 26/8/16. email updated AC 13/9/23

Last Contacted
04/08/2014
Last Updated
13/09/2023
Short Description
Wheelchair rugby league in Brentwood.
Town
Brentwood
County
Essex
Address
CM15 9SE
Age Relevance
11+, 16+
Last Updated
13/08/2024
Exclude All
No
Short Description
British Red Cross provides short-term loans of wheelchairs and other equipment. Book through their website.
Telephone Number
0300 456 1914
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

KLB ASKED FOR CONSENT IN 2015, NO REPLY USED WEB INFO AND PUBLISHED ON 31.3.16corrected address and added additional phone number - 31/8/16. Removed local entries and replaced with central contacts. 13/10/20

Last Contacted
31/03/2016
Last Updated
13/10/2020
Exclude All
No
Short Description
Changing Places are facilities for people who cannot use standard accessible toilets.
Telephone Number
020 7803 4814
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Information taken from website - no consent sought PK 17/05/2016. Updated 20/10/20 AP. phone number, twitter updated. instagram, linkedin added AC 27/9/23

Last Contacted
17/05/2016
Last Updated
27/09/2023
Short Description
Social group in Essex for children who use Augmentative and Alternative Communication (AAC) devices.
Telephone Number
07775 988879
Age Relevance
4+, 7+, 11+, 16+
Last Updated
27/03/2025
Exclude All
No
Short Description
To discuss issues affecting the lives of people with learning disabilities in the UK.
Telephone Number
01865 600034
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Info taken from website PH 20/7/16 . Refresh 27/8/21 AP

Last Contacted
20/07/2016
Last Updated
27/08/2021
Disability Sport
Exclude All
Yes
Short Description
Colchester United Football in the Community have launched two disability programmes to support children with additional needs.
Telephone Number
07791313232
County
Essex
Address
CO2 9BG
Age Relevance
7+, 11+
Contact History

website, email updated AC 2/10/23

Last Updated
02/10/2023
Short Description
Cool Crutches offers a range of safe, comfortable, stylish, practical and silent crutches and walking sticks for adults and children.
Telephone Number
01423 418 016
Town
Harrogate
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Suggested by Liza as great products. April 2024.

Last Updated
23/04/2024
Exclude All
No
Short Description
Expert-led rehabilitation for children and young people with movement disorders.
Telephone Number
020 8444 7242
Address
N10 1JP
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

changed description, added contact name, added fax number, changed email and web address. - consent via email from Kath - updated online 17/12/09 - EGRefresh Project 2013 - email 1 sent 20.9.13 BB, no response so email 2 sent 9.1.14 LMResponse received on 9.1.14 from Catherine. Fax number changed 3.2.14 LMupdated email address - RC 10/8/16Address, email and description changed in line with website and SNAP Directory New Entry form PH 15/7/16
Received contact form from Nicola Baker 31.10.18 with updated description. AP. Email from Nicola Baker updated description - removed Woodstar School reference and SALT reference. Removed (formerly London Centre for Children with Cerebral Palsy) 12/6/19 AP. Email from CPotential to update 19/3/2021. instagram, youtube, linkedin added AC 2/10/23

Last Contacted
01/09/2014
Last Updated
02/10/2023
Exclude All
No
Short Description
Dogs for Good runs local workshops for families who want to buy a pet dog to help their child with autism.
Telephone Number
01295 252600
Town
Banbury
County
Oxfordshire
Address
OX17 2BS
Age Relevance
4+, 7+, 11+, 16+
Contact History

email updated AC 2/10/23

Last Updated
02/10/2023
Exclude All
No
Short Description
Firefly Friends acts as a leading light in the research, design and development of postural care solutions for children with special needs.
Telephone Number
0289 267 8879
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

updated from weblink to directory entry - RC 12/9/16

Last Updated
12/01/2021
Exclude All
No
Short Description
Get Kids Going! aims to give disabled children and young adults up to the age of 26 years the opportunity of participating in sports by providing them with specially built sports wheelchairs.
Telephone Number
020 7481 8110
Age Relevance
7+, 11+, 16+
Contact History

details fine to be included - 12/2/10 EGRefresh Project- email  1 sent , Phone call made 21.3.14 (CM) - all details correct LMupdated address using info from website - RC 21/07/2016. instagram updated AC 9/10/23

Last Contacted
24/03/2014
Last Updated
09/10/2023
Exclude All
No
Short Description
Go Access provides modular disabled ramp and half step installations throughout the UK.
Telephone Number
0800 954 9705
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Added to database using info emailed in and website - 17/7/17

Last Updated
13/10/2020
Exclude All
No
Short Description
Go Kids Go (Association of Wheelchair Children) provides a free service for families of wheelchair-using children and offers advice, advocacy and wheelchair skills training.
Telephone Number
01482 887163
Address
HU17 0AL
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

CHANGE TO TEL AND FAX - 8/3/10 - EG changes: contact name, mobile, tel, helpline, organisation name. Consent via post from Colin - EGRefresh Project- email 1 bounceback, email updated using website,email response received 27.9.13 from Emily with tel, mob, helpline, website updates Kc updated 3/10/13 updated address using info from website - RC 21/07/2016 

Last Contacted
11/07/2013
Last Updated
13/10/2020
Short Description
Educational Psychologist - Independent Practitioner
Telephone Number
07540 529661
County
Based in Herts, also covering parts of Essex, Beds and NW London
Age Relevance
4+, 7+, 11+
Contact History

Removed Facebook. Not currently taking on new clients but website active. 1/12/2020 AP

Last Updated
01/12/2020
Exclude All
No
Short Description
HemiHelp is part of the Contact family and provides information and support to families where there is a child with hemiplegia, which is a condition similar to cerebral palsy affecting one side of the body.
Telephone Number
0808 808 3555
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

CHANGED ADDRESS - CNSENT VIA EMAIL FROM EVE - updated online 17/12/09 - EGRefresh project - email 1 sent 20.9.13, email received on 20.9.13 no name given, removed fax number on 20.9.13 -KCupdated email address using info from website - RC 26/8/16. Entry updated from info sent in by Gail Wagstaff at Contact 16/8/22. AP

Last Contacted
25/10/2013
Last Updated
23/08/2022
Exclude All
No
Short Description
The Hypermobility Syndromes Association (HMSA) aims to provide support and information to those affected by one of the hypermobility syndromes.
Telephone Number
0333 011 6388
Address
W1D 4EG
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project 2013 - new entry added 14.2.14. Consent given by Donna Wicks on 13.2.14 (direct contact details: 0845 478 6631 or 07896 633168) LMupdated address using info from website - RC 26/8/16. Contacted by Karen Merryweather to change address but it was the same. Added helpline. 23/6/23 AP. instagram added AC 9/10/23

Last Contacted
22/06/2023
Last Updated
09/10/2023
Exclude All
No
Short Description
Hypermobility UK offers a national specialist advocacy and outreach service to individuals and aims to raise awareness of hypermobility amongst the caring profession, educationalists and service providers throughout the East Anglia area.
County
Essex
Address
CO13 9AD
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Call from David Rolph to change name from Hypermobility East Anglia and change email. 8.9.08. Changed category to Other Conditions/Hypermobility. changed email, web address and telephone numbers - consent via email from David - updated on line 14/12/09 - EGInformed via email from David Rolph on 14.2.13 to remove Colchester contact number and also to change the website address. Colchester contact removed and website address (www.hypermobilityuk.btck.co.uk) added by KC on 18.2.13Refresh Project- email 1 sent 19.9.13, email response received from David Rolph on 19.9.13 with new telephone and textphone number- KC updated 28.10.13. contact details removed AC 9/10/23

Last Contacted
28/10/2013
Last Updated
09/10/2023