Condition(s)
Exclude All
No
Short Description
Changing Faces helps children and adults face disfigurement with confidence.
Telephone Number
0300 012 0275
Address
S14FW
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Refresh Project 2013 - email 1 sent 19.9.13 BB, no response so email 2 sent 16.1.14Response received from Michelle Cole on 16.1.14. All details confirmed correct LM (Website changed from .co.uk to .org.uk LM)added additional phone number and email using info from website - RC 17/8/16. Refresh 27/8/21 AP. Address updated AC 27/9/23

Last Contacted
16/01/2014
Last Updated
27/09/2023
Condition(s)
Exclude All
No
Short Description
Supporting all those affected by craniosynostosis and rare craniofacial conditions.
Telephone Number
0330 120 0410
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to email and description - consent via email from Eric Ruff - updated online 1/3/10 - EGRefresh Project- email 1 sent 19.9.13, email response received on 19.9.13 from Eric Ruff with new address- KC updated 28.10.13

Last Contacted
28/10/2013
Last Updated
25/08/2022
Condition(s)
Exclude All
No
Short Description
Let's Face It is a support network linking people with facial disfigurement, their families, friends and professionals with resources for recovery.
Telephone Number
01843 491291
County
Kent
Address
CT8 8NG
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

NO CHANGE - CONSENT FROM CHRISTINA PIFF - 5/3/10 - EGRefresh Project - email 1 sent 19.9.13 (BB), email 2 sent 17.1.14 (LM) - no responsePhone call made 30.4.14 (AT) - left messageInformation checked on website 17.6.14 - all correct LMadded additional email address using info from website - RC 17/8/16. email updated AC 16/10/23

Last Contacted
17/06/2014
Last Updated
16/10/2023
Condition(s)
Exclude All
No
Short Description
The Birthmark Support Group provides a UK based support group for anyone with a birthmark. The Birthmark Support Group has a comprehensive website of medical help, information and links.
Telephone Number
07825 855 888
Address
WC1N 3XX
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to address and removed fax number - consent via email from Alana - 14/4/10 - EGRefresh Project- email 1 sent 19.9.13, email received on 20.9.13 from Jo to ask for telephone number update - KC updated 20.9.13

Last Contacted
04/10/2014