Condition(s)
Exclude All
Yes
Short Description
A service at UCLH aiming to bridge the gap during transition from paediatric to adult NHS services.
Telephone Number
0203 448 3439
Address
WC1N 3BG
Age Relevance
16+
Contact History

Recommended by Paula Hills - taken from website. Address updated 13/9/23

Last Updated
13/09/2023
Blackwater Law
Category
Exclude All
Yes
Short Description
Blackwater Law in Braintree, are medical negligence experts with specialists in birth injury claims. Offering a free initial consultation, there is no obligation to proceed.
Telephone Number
0800 047 3564
Website Address
Town
Braintree
County
Essex
Address
CM7 9AJ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

New submission form. Address, phone number, email updated AC 13/9/23

Last Contacted
22/10/2019
Last Updated
13/09/2023
Exclude All
No
Short Description
A specialist treatment and training centre, and a charity dedicated to supporting children and families living with cerebral palsy and similar neurological conditions.
Telephone Number
020 8444 3355
Address
WD24 4YE
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to description, change to web site, added fax number. CHANGED LOCATION - FROM T+A TO PHYS DIFFICULTIES INC CP. consent given via email from Kevin. Updated online 13/1/10 - EGRefresh Project - Phone call 28.3.14 (CM) - email address changed LMKLB updated info to include helping hand scheme info as found on their website- 1.9.15updated email address using info from facebook page - RC 26/8/16. email updated AC 13/9/23

Last Contacted
04/08/2014
Last Updated
13/09/2023
Exclude All
No
Short Description
Brainwave - South West Centre is a charity that works with families to deliver individual home-based therapy and exercise programmes that help children with disabilities and developmental delay to achieve their potential.
Telephone Number
01278 429089
County
Somerset
Address
TA6 6LQ
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Entry amended 19.1.07 by Barbara Seymour email. changed description - consent via email from Gerry Gould - updated online 14/1/10 - EGRefresh Project - email 1 sent 19.9.13 (BB), email 2 sent 16.1.14 (LM). No response.Phone calls - 29.4.14 and 12.6.14. Information checked on website - all correct LM

Last Contacted
06/12/2014
Last Updated
15/12/2020
Carers Unite
Short Description
Support groups at Southend Mencap for parent carers of children and young people, or young adults with additional needs.
Telephone Number
07581 388667
Town
Southend-on-Sea
County
Essex
Address
SS1 1PG
Age Relevance
0+, 4+, 7+, 11+, 16+
Last Updated
26/10/2023
Name
Exclude All
No
Short Description
Cerebra is a national charity dedicated to helping families with children with brain conditions discover a better life together.
Telephone Number
01267 244200
Town
Carmarthen
County
Wales
Address
SA31 3LW
Age Relevance
0+, 4+, 7+, 11+
Contact History

Refresh Project 2013 - email 1 sent 19.9.13 BB, no response so email 2 sent 16.1.14Response received on 16.1.14 from Sandi Llewellyn. All details confirmed correct LMFurther response from Kayleigh Wilson on 16.1.14 informing of change of address LMKLB updated entry to included info on the helpline, holiday home, sensory, lending library, info taken from the website. Equipment and financial support and holiday tags added.- 3.9.15added additional email address - RC 8/8/16. Refresh 27/8/21 AP

Last Contacted
09/03/2015
Last Updated
27/08/2021
Short Description
Social group in Essex for children who use Augmentative and Alternative Communication (AAC) devices.
Telephone Number
07775 988879
Age Relevance
4+, 7+, 11+, 16+
Last Updated
27/03/2025
Disability Sport
Exclude All
Yes
Short Description
Colchester United Football in the Community have launched two disability programmes to support children with additional needs.
Telephone Number
07791313232
County
Essex
Address
CO2 9BG
Age Relevance
7+, 11+
Contact History

website, email updated AC 2/10/23

Last Updated
02/10/2023
Exclude All
No
Short Description
Expert-led rehabilitation for children and young people with movement disorders.
Telephone Number
020 8444 7242
Address
N10 1JP
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

changed description, added contact name, added fax number, changed email and web address. - consent via email from Kath - updated online 17/12/09 - EGRefresh Project 2013 - email 1 sent 20.9.13 BB, no response so email 2 sent 9.1.14 LMResponse received on 9.1.14 from Catherine. Fax number changed 3.2.14 LMupdated email address - RC 10/8/16Address, email and description changed in line with website and SNAP Directory New Entry form PH 15/7/16
Received contact form from Nicola Baker 31.10.18 with updated description. AP. Email from Nicola Baker updated description - removed Woodstar School reference and SALT reference. Removed (formerly London Centre for Children with Cerebral Palsy) 12/6/19 AP. Email from CPotential to update 19/3/2021. instagram, youtube, linkedin added AC 2/10/23

Last Contacted
01/09/2014
Last Updated
02/10/2023
Exclude All
No
Short Description
HemiHelp is part of the Contact family and provides information and support to families where there is a child with hemiplegia, which is a condition similar to cerebral palsy affecting one side of the body.
Telephone Number
0808 808 3555
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

CHANGED ADDRESS - CNSENT VIA EMAIL FROM EVE - updated online 17/12/09 - EGRefresh project - email 1 sent 20.9.13, email received on 20.9.13 no name given, removed fax number on 20.9.13 -KCupdated email address using info from website - RC 26/8/16. Entry updated from info sent in by Gail Wagstaff at Contact 16/8/22. AP

Last Contacted
25/10/2013
Last Updated
23/08/2022
Exclude All
No
Short Description
Home From Home Care is a family-led company which provides specialist residential service for adults (17+) with complex needs.
Telephone Number
0800 587 0372
Age Relevance
16+
Contact History

PK 20/05/2016 information taken from website therefore no consent sought Updated description, contact deatils name/number/email, consent given by Amelia Mochan on 31.5.16- KLB updated 22.6.16Phone no. amended in line with website PH 15/7/16 . email updated, instagram added AC 9/10/23

Last Contacted
22/06/2016
Last Updated
09/10/2023
Exclude All
No
Short Description
Kids First accepts all children from all areas. Conductive Education is a specialised treatment and because the range of requirements is different in all children with Cerebral Palsy, they are given one to one treatment by the Conductor.
Telephone Number
01375 641024
County
Essex
Address
SS17 9AA
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Consent: Carole & Michelle 14.6.06 Address, telephone changed - do not ring again for a while - range twice and seemded a little annoyed! - EG - 10/3/10Added Thurrock to name 7.23.14 LMRefresh Project - email 1 sent 9.1.14, email 2 sent 6.6.14Spoke to Carole 9.6.14 - all details correct apart from times changed to 9.30 - 4pm LMadded emails and website - RC 10/8/16

Last Contacted
06/09/2014
Last Updated
12/01/2021
Exclude All
No
Short Description
Leyton Orient Disability Sport enables children with any disability to participate in regular coaching sessions in a safe and enjoyable environment.
Telephone Number
020 8556 5973
Address
E10 5JY
Age Relevance
7+, 11+, 16+
Contact History

Added to the Directory after recommendation from a family - BB 18.9.2017

Last Contacted
18/09/2017
Short Description
Specialist paediatric neurological physiotherapy centre in Chelmsford.
Telephone Number
07796 466296
Website Address
Town
Chelmsford
County
Essex
Address
CM3 4BG
Age Relevance
0+, 4+, 7+, 11+, 16+
Last Updated
07/06/2024
Condition(s)
Exclude All
No
Short Description
NICE is a UK registered charity based in Birmingham, dedicated to supporting children and adults with incurable movement disorders.
Telephone Number
0121 449 1569
Town
Moseley
County
Birmingham
Address
B13 8RD
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

CHANGE TO NAME OF ORGANISATION - PREVIOUSLY THE NATIONAL INSTITUTE OF CONDUCTIVE EDUCATION - 26/3/10 - egRefresh Project - Phone call made 28.3.14 (CM) - all details still correct LMremoved fax number as not on website - RC 26/8/16

Last Contacted
04/08/2014
Last Updated
12/01/2021
Pace
Name
Exclude All
No
Short Description
Pace is a charity that transforms the lives of children and young people with cerebral palsy and other similar sensory motor conditions.
Telephone Number
01296 392739
County
Buckinghamshire
Address
HP19 9JL
Age Relevance
0+, 4+, 7+, 11+
Last Contacted
06/01/2020
Last Updated
01/12/2020
Name
Exclude All
No
Short Description
Scope is the disability equality charity in England and Wales.
Telephone Number
0808 800 3333
Address
E15 2GW
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

change to description, added conatct name and change to address. Consent via post from Jayne. Updated 9/3/10 - EGRefresh Project 2013 - email 1 sent 20.9.13 BB, no response so email 2 sent 9.1.14 LMResponse received on 9.1.14 from Alison Davies. Jayne Wylde's name removed as contact 3.2.14 LM updated email and address using info from website - RC 10/8/16Updated 27/01/2017 to include befriending service PK. Address added AC 30/10/23

Last Contacted
01/09/2014
Last Updated
30/10/2023
Exclude All
Yes
Short Description
Strive Mobility - A simple way to rent mobility equipment online.
Age Relevance
4+, 7+, 11+, 16+
Contact History

email updated AC 30/10/23

Last Contacted
01/08/2019
Last Updated
30/10/2023
The Movement Centre
Condition(s)
Short Description
The Movement Centre is a UK charity and specialist treatment centre, dedicated to supporting children and their families living with movement disabilities.
Telephone Number
01691 404248
Town
Oswestry
County
Shropshire
Address
SY10 7AG
Age Relevance
0+, 4+, 7+, 11+, 16+
Contact History

Request made by Ann Norwood July 2022. email, twitter, facebook updated AC 6/11/23

Last Contacted
15/07/2022
Last Updated
06/11/2023