Archives: Autoimmune

Condition(s)

https://www.actionforme.org.uk/

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Short Description

Action for ME is a national charity that provides support and advice to people affected by ME and their families and also campaigns to improve the lives of people with ME in the UK.

Telephone Number

0117 927 9551

Website Address

Town

Keynsham

Address

BS31 1EH

Age Relevance

0+, 4+, 7+, 11+, 16+

Contact History

Refresh Project- email 1 sent 19.9,13, email response received on 19.9.13 from John McCready with slight decription change to remove wording about enquiry pack and added welfare rights line- KC updated 28.10.13

Last Contacted

28/10/2013

Last Updated

26/01/2021

Coeliac UK

Name

Coeliac UK

Category

Condition(s)

https://www.coeliac.org.uk/home/

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Short Description

Coeliac UK is an independent registered charity for people who need to live without gluten.

Telephone Number

0333 332 2033

Website Address

County

Bucks

Address

HP11 2QW

Age Relevance

0+, 4+, 7+, 11+, 16+

Contact History

change to helpline number - consent via post - from Jean, 5/3/10 - EGRefresh Project - no email addresses. Checked information on website - address changed but all other info correct 12.6.14 LMupdated email and phone number using info from website - RC 17/8/16

Last Contacted

06/12/2014

Last Updated

03/09/2021

Disability Advice and Welfare Network (DAWN)

Disability Advice and Welfare Network (DAWN)

Name

Category

Into Adulthood, Money Matters, National Advice & Support

Condition(s)

ADD / ADHD, Albinism, Allergy, Angelman Syndrome, Anxiety / Mental Health, Aquired Brain Injury, Arthritis, Asthma / Lung Condition, Asthma/Lung Conditions, Autism Spectrum Disorders, Auto Immune, Autoimmune, Bladder and Bowel, Blood Conditions, Brain Injury, Brittle Bones, Cancer, Cerebral Palsy, Challenging Behaviour, Coeliac Disease, Cystic Fibrosis, Deafblind, Diabetes, Disfigurement, Down Syndrome, Dyslexia, Dyspraxia, Eating Disorders, Eczema, Epilepsy, Erbs Palsy, Fragile X, Gastrointestinal Disorders, Gender Identity, Genetic Disorders, Gifted Children, Growth Disorders, Handwriting Difficulties, Hearing Impairment, Heart Disorders, Hemiplegia, Incontinence, Kidney Disease, Learning Disability, Life Threatening Conditions, Liver Disease, Meningitis, Mental Health, Multiple Births, Multiple Sclerosis, Muscular Dystrophy, Myalgic Encephalomyelitis, Physical Difficulties, Rare Disorders / Syndromes, Sensory Processing, Stroke, Tourette Syndrome, Tracheostomy, Tremor, Visual Impairment

Short Description

Specialising in benefits claims and appeals for clients who are of Neurodiverse development, and will support anyone with any condition.

Website Address

https://dawnsupport.co.uk/

Town

Colchester

County

Essex

Address

CO7 7UG

Age Relevance

0+, 4+, 7+, 11+, 16+

Contact History

Submitted by DAWN. 19/8/24

Last Updated

20/08/2024

Gluten Free Foods

Name

Gluten Free Foods

Category

Health & Well-being

Condition(s)

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Short Description

Gluten Free Foods sells a large range online and provides information on a range of over 100 dedicated gluten and wheat free foods and recipes.

Age Relevance

0+, 4+, 7+, 11+, 16+

Contact History

updated from weblink to directory entry -RC 7/9/16. website, email, phone removed - no longer exists AC 9/10/23

Last Updated

09/10/2023

LUPUS UK

Name

LUPUS UK

Category

Condition(s)

https://www.lupusuk.org.uk/

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Short Description

LUPUS UK is a national charity supporting people with incurable systemic lupus and discoid lupus.

Telephone Number

01708 731251

Website Address

County

Essex

Address

RM1 3NH

Age Relevance

0+, 4+, 7+, 11+, 16+

Contact History

Refresh Project- Email 1 sent 19.9.13, email received on 20.9.13Geraldine Leonard to confirm all details correct - KC updated spreadsheet on 20.9.13

Last Contacted

23/10/2013

ME Association

Name

ME Association

Category

Condition(s)

http://www.meassociation.org.uk/

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Short Description

ME Association provides support, information and a quarterly magazine for people affected by ME, also known as Chronic Fatigue Syndrome, their families and carers.

Telephone Number

0344 576 5326

Website Address

County

Buckinghamshire

Address

MK18 4DF

Age Relevance

0+, 4+, 7+, 11+, 16+

Contact History

updated description, changed address, helpline, removed fax, changed tel. Consent gained via email from Tony. Updated online 15/12/09 - EGRefresh Project- email 1 sent 19.9.13, email response received from Tony Britton on 19.9.13 stating all details correct- Kc updated 28.10.13 updated email address and phone numbers using info from website -RC 31/8/16. phone updated, email removed AC 16/10/23

Last Contacted

28/10/2013

Last Updated

16/10/2023

The Young ME Sufferers Trust

The Young ME Sufferers Trust

Name

Category

Condition(s)

http://www.tymestrust.org/

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Short Description

The Young ME Sufferers Trust (TYMES Trust) provides support and information for young people with ME and their families, and for medical and educational professionals.

Telephone Number

0845 003 9002

Website Address

County

Essex

Address

CM4 9TE

Age Relevance

7+, 11+, 16+

Contact History

change to email - 29/3/10 - EG Change to tel, email name and description - EG - consent via phone from Jane - 20/4/10Refresh Project - Phone call 30.4.14 (AT) - left messageInformation checked on website - all correct 18.6.14. Added email details LM. facebook added AC 13/11/23

Last Contacted

18/06/2014

Last Updated

13/11/2023