Rett Syndrome is a complex neurological disorder that occurs mostly in females resulting in profound and multiple disabilities.

This national charity aims to:

• provide professional family-support services, activities and events at a local, regional and national level
• educate health, social care and education professionals about Rett syndrome to enable quicker diagnosis and improved standards of care throughout the UK
• advocate for people with Rett syndrome to be given the support and resources needed to be active communicators
• promote, support and encourage research into new therapies and treatments for Rett syndrome